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redjoy

By redjoy
in Coping with Celiac Disease

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redjoy Newbie
redjoy
Posted

Hi, for yrs I thought I was suffering w/IBS, tried treating it but not much changed. I just had a lung infection that started in March & went on 3 months. I have lost so much weight I look like skin & bones. I am also depressed, very tired & no energy. When I read about this diesease it seemed I had the same symptoms. I remember my Dr saying a long time ago he was going to test me for this but never got around to it. I go back to the lung Dr tommorrow he took another CS then I am going to ask my Dr to run blood work to see. I see you really have to watch what you eat, I ate cookies, ice cream bread etc & would run to the bathroom. A man that works w/my husband sd he has it & has to look at everything, sd it's even in shampoo which surprised me.

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drewsant Rookie
drewsant
Posted

I've been told all my life basically it was IBS. I went to specialists and everything, and have had tons of tests done, and ruled out everything but Celiac or allergies.

Finally 2 years ago, I went back to my GP, and talked with the Advanced Registered Nurse Practitioner, and told him that I would eat 3 bites of a sandwich or toast or crackers, and I'd be running to the bathroom. He mentioned Celiac, and said to do the gluten-free diet. That totally overwhelmed me. I also went to an allergist and found out I'm allergic to wheat, soy, chicken, fish, and tree nuts. The 1st 4 foods were my primary diet. If I eat just fresh fruits and veggies, and basic red meat, I don't have any symptoms at all.

I think that until just a few years ago, Drs. still thought Celiac was a really rare disease, but now they're coming around to it.

Crystalkd Contributor
Crystalkd
Posted

I'd been told that I had IBS, a spasming colon or that it was all in my head. I've been on the diet for three weeks. I'm still learning where the hidden gluten is but I'm doing a lot better.

blueeyedmanda Community Regular
blueeyedmanda
Posted

I for a long thought I had IBS from being a constant worrier and my job really stressed me out. It seems as if the symptoms between celiac and IBS are very similar. I am so glad it is Celiac I have and not IBS, I can control celiac. I eat gluten free. I honestly felt as if I was taking my life back when I went gluten free.

rsm Newbie
rsm
Posted

According to the doctors I had IBS, 25 years. After being gluten free for 3 months things are changing, stomach doesn't hurt, digestion is starting to return. I tried atkins a few years ago and noticed a definite change for the better. Once my daughter discovered the celiac connection it all clicked. We are both doing better gluten free.

gfmolly Contributor
gfmolly
Posted

I hope you are feeling better soon! I, too have been told that I have IBS and was told to try gluten-free and it made a world of difference! Many on the boards have trouble with dairy as well due to damaged small intestines, so you may want to try that as well. A month and a half into the diet and I have normal bm's instead of d everyday. I feel much more healthy and have energy. It's worth looking into.

Best wishes!

Terri

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