Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Sandy Bowel Movements

Kujda

Recommended Posts

Kujda Rookie
Kujda
Posted

One odd symptom my son has had when on gluten or if he accidentally gets any is he will have bowel movements that look like a pile of sand. Grainy and thick. He has also had the mucus ones but the "sand poops" as we call them are weird. He also gets a strange rash on his bottom that looks like he took a rake and scratched his bum. This happens with poops.

Has anyone ever had experience with this? Or have you heard of this as a possible symptom of gluten or any other food allergy?

The doc told me he did this to himself in his sleep. If that was the case he would have POOP all over him and his bed. Never happened.

KRISTIN

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mamaloca2 Apprentice
mamaloca2
Posted

One odd symptom my son has had when on gluten or if he accidentally gets any is he will have bowel movements that look like a pile of sand. Grainy and thick. He has also had the mucus ones but the "sand poops" as we call them are weird. He also gets a strange rash on his bottom that looks like he took a rake and scratched his bum. This happens with poops.

Has anyone ever had experience with this? Or have you heard of this as a possible symptom of gluten or any other food allergy?

The doc told me he did this to himself in his sleep. If that was the case he would have POOP all over him and his bed. Never happened.

KRISTIN

Yes. this is just like my daughter when she gets gluten. Doctors frustrate the heck out of me! if you do a search for "sandy poop" or "grainy poop" it will take you right back to this forum where other parents talk about the same experience w/ their kids. Unfortuanately you have to do a lot of your own research because doctors don't understand this disease and don't take the time to find out. Good luck with everything.

Kujda Rookie
Kujda
Posted
  • Author
Yes. this is just like my daughter when she gets gluten. Doctors frustrate the heck out of me! if you do a search for "sandy poop" or "grainy poop" it will take you right back to this forum where other parents talk about the same experience w/ their kids. Unfortuanately you have to do a lot of your own research because doctors don't understand this disease and don't take the time to find out. Good luck with everything.

Thank you. This is the first time I've been able to talk to someone about this who understands. Just hearing from you that this has happened to your daughter makes me think I am right and doctors don't know everything. Thanks agin for your support! kristin

Momof2cuties Apprentice
Momof2cuties
Posted

Wow! I didn't realize that was normal for our little ones. Or at least part of the disease rather than normal. My daughter's poo has always been that way, too! I'm glad I'm not alone on that one.

Kujda Rookie
Kujda
Posted
  • Author
Wow! I didn't realize that was normal for our little ones. Or at least part of the disease rather than normal. My daughter's poo has always been that way, too! I'm glad I'm not alone on that one.

The sandy poops didn't even raise an eyebrow from my doc. Of course I knew from looking at them there was nothing normal about them. Since being gluten free for 3 months they are almost completely gone and it doesn't look like he ate a sand castle!

When she has a sandy poop is hard to wipe it all off? SOmetimes we had to put him in the tub because it was so much.

Glad not to be alone either!

Kristin

JennyC Enthusiast
JennyC
Posted

My son's poop was always sandy before going gluten free as well. Thankfully it's gone now. When he gets glutened he has the gross floaty loose stools. :( I don't think that's much better though.

Momof2cuties Apprentice
Momof2cuties
Posted
The sandy poops didn't even raise an eyebrow from my doc. Of course I knew from looking at them there was nothing normal about them. Since being gluten free for 3 months they are almost completely gone and it doesn't look like he ate a sand castle!

When she has a sandy poop is hard to wipe it all off? SOmetimes we had to put him in the tub because it was so much.

Glad not to be alone either!

Kristin

Yes! I felt like I'd go through about a dozen wipes sometimes. The poor child was so tortured by the painful diaper changes that she won't go anywhere near her changing table. We have to change her on the floor. Poor kid!

But, since being gluten-free her poos are much better. No more sandy appearnace, but they are still a little pale in color. We'll see how it goes.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


marlene57 Newbie
marlene57
Posted

Hi,

Just thought you'd like to know....

I've had "sandy" stools for quite some time now. Since being gluten-free, it only happens when I get glutened.

I notice it when I wipe myself. It is terribly abrasive and makes me raw down there. A cool wipe helps make it feel better. Just hold the wipe on the sore area and your baby will feel better.

Marlene57

  • 3 years later...
mamaofmany Newbie
mamaofmany
Posted

Oh my goodness I am beyond words that your doctor said that! I have a 2 and a half year old little boy that is having the same kind of poops. Very sandy, grainy like usually brown and tan in color. He has had the mucous kind and those look disgusting but mostly it's the sandy kind. At the moment he has a horrible raw butt the same description you gave. I would probably look at a doctor if they had told me my child done that to himself and said "Are you kidding me! Can you come up with something better with that!" Doctors are so ridiculous sometimes. He has an appointment sit up to see his pediatrician on the 2nd of November. I want him tested for Celiac. I started yesterday evening stripping his diet of all gluten. And already his poop has changed to semi normal and he's pooping less. He usually has a good bit of 4 to 5 or more sandy poops a day. I know it has been several years since you posted this but whatever come about the problem. Was it a gluten issue causing it?

One odd symptom my son has had when on gluten or if he accidentally gets any is he will have bowel movements that look like a pile of sand. Grainy and thick. He has also had the mucus ones but the "sand poops" as we call them are weird. He also gets a strange rash on his bottom that looks like he took a rake and scratched his bum. This happens with poops.

Has anyone ever had experience with this? Or have you heard of this as a possible symptom of gluten or any other food allergy?

The doc told me he did this to himself in his sleep. If that was the case he would have POOP all over him and his bed. Never happened.

KRISTIN

celiac-mommy Collaborator
celiac-mommy
Posted

Was it a gluten issue causing it?

I know in our case it was gluten. Horrible acid-type rashes around the anus and poo that looks like he's been eating fistfulls of sand.

  • 2 months later...
beebs Enthusiast
beebs
Posted

I know in our case it was gluten. Horrible acid-type rashes around the anus and poo that looks like he's been eating fistfulls of sand.

I know this thread is old. But I read it and I just want to cry. I have been fighting the medical profession for exactly a year trying to get them to realise =I guess -that my son is likely celiac. I am almost sure of it - about 90%. His stools changed this time last year - and by far the most common one is that sandy looking one. I try describing it to our Paed GI and he just doesn't understand what I am trying to say. Because it isn't the "classic" celiac poo. He doesn't think he is. We are talking about a 4 year old - but he was 3 when he became so severely aneimic for no apparent reason that he developed a heart murmur. God I hate how this disease is so hard to diagnose - yes so easy to treat.

Boohoooo. My other son is about to have an endo and the paed GI is pretty sure about him being Celiac cause he has all the "classic symptoms", he had a cystic fibrosis scare last week - I just want a diag for my kids so we can move on and they can get healthy.

kareng Grand Master
kareng
Posted

I know this thread is old. But I read it and I just want to cry. I have been fighting the medical profession for exactly a year trying to get them to realise =I guess -that my son is likely celiac. I am almost sure of it - about 90%. His stools changed this time last year - and by far the most common one is that sandy looking one. I try describing it to our Paed GI and he just doesn't understand what I am trying to say. Because it isn't the "classic" celiac poo. He doesn't think he is. We are talking about a 4 year old - but he was 3 when he became so severely aneimic for no apparent reason that he developed a heart murmur. God I hate how this disease is so hard to diagnose - yes so easy to treat.

Boohoooo. My other son is about to have an endo and the paed GI is pretty sure about him being Celiac cause he has all the "classic symptoms", he had a cystic fibrosis scare last week - I just want a diag for my kids so we can move on and they can get healthy.

If your GI is sure the other one has celiac disease, he must consider that all your children have it. It is genetic. I have it and my kids have been tested and will be blood tested every 2 years (that was the recomendation I saw).

salexander421 Enthusiast
salexander421
Posted

My girls both get the grainy/sandy poo that is so hard to wipe off. Does anyone know what causes this? Does it have to do with malabsorption??

beebs Enthusiast
beebs
Posted

If your GI is sure the other one has celiac disease, he must consider that all your children have it. It is genetic. I have it and my kids have been tested and will be blood tested every 2 years (that was the recomendation I saw).

Oh yeah - he is likely going to have an endo too eventually, its just that for some reason, this paed GI doesn't think he has it. He doesn't say deffo no - just that he doesn't think so. Whereas with my younger one he took one look and listened to the symptoms and said he thought it was very likely after the first time seeing him. Far cry from the full year it has taken anyone to take my eldest son seriously. This guy is one of the top celiac Drs where I am - so I am surprised he doens't think my eldest has it.

  • 1 year later...
KristenBogun Newbie
KristenBogun
Posted

Thank you for these posts! My 2 yr old daughter seems to show signs of celiac. I want to say she's constipated, but it's more or different than that. She has exactly this, sandy poops. It is so hard to clean off and painful for her because it's abrasive. I have be so gentle and use cold, wet paper towels to clean it. I'm glad I'll be able to explain this symptom better to my pediatrician when I go visit for her 2 yr check up next week.

I'm going to request the tests for her and I should probably get them too - have different symptoms myself. Even we test negative, I'm still trying out gluten free.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that y...
    2. Scott Adams
      - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid mul...
    3. Scott Adams
      - Scott Adams commented on Scott Adams's article in Multiple Sclerosis and Celiac Disease
      2

      Gluten-Free Diet Linked to Reduced Inflammation and Improved Outcomes in Multiple Sclerosis (+Video)

      Better to know late than never, and it is too bad they did not test you for it earlier!
    4. Scott Adams
      0

      Koikoi Trading Inc., Issues Allergy Alert on Undeclared Wheat and Sesame in FU ZHOU FISH BALL

    5. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after eating them. If it happens a few times after eating the same foods- I cut back...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,321
    • Most Online (within 30 mins)
      7,748
    James Minton
    Newest Member
    James Minton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Scott Adams
      IBS-D vs Celiac

      By Scott Adams · Posted

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Question

      By Scott Adams · Posted

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      IBS-D vs Celiac

      By trents · Posted

      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.