Questions About Dd's Enterolab Results

[EBsMom]

My 9 yo daughter's Enterolab results came back today. As I expected, she was positive for the Antigliadin IgA (21) and the Antitissue Transglutaminase IgA (20), and her fecal fat score was high (423) as well.

I was surprised to see that her anticasein IgA was also postive (21) and - forgive me for my ignorance - am I correct in assuming that means no dairy for life? She's already gluten-free/casein free, but she was clinging to the hope that she could have dairy again at some point. Is the reintroduction of dairy into the diet only possible if the "milk problem" is a lactose intolerance? I want to be really clear on this before I tell her she can't ever have dairy again, because she'll be a sad puppy if that's the case.

Also, her gene test results were as follows:

HLA-DQB1 Molecular analysis, Allele 1 0301

HLA-DQB1 Molecular analysis, Allele 2 0602

Serologic equivalent: HLA-DQ 3,1 (Subtype 7,6)

I understand that she has two gluten-sensitivity genes. I *think* they're the HLA-DQ 3 and HLA-DQ 1. Is that right? And what does the Subtype refer to?

Thanks very much for any and all responses. I'm so glad to have this info now - she's been gluten-free/casein free for 3 1/2 weeks and improving by the day - and now I know why! Also, I've joined her in her gluten-free/casein free diet - at first for moral support - and now because I feel better when I eat that way. I'm considering the implications of that....not sure if I'll test myself or not.

Rho (in NY)

[AndreaB]

Enterolab does state that if you test positive by there test standards that it is for life.

In most cases this is probably true. If you don't have underlying health issues and symptoms etc clear up then stay gluten-free/cf.

I know there are some who have challenged the dairy and do ok with it. There are other underlying health issues though, such as lyme, metal toxicity, candida, parasites.

If she has a need a challenging it I certainly don't see that it would hurt. I'd wait 6 months-1 year before doing so though. She also would need to be honest with herself if a problem is perceived, whether it's intestinal or behavioral.

Yes, is is DQ1 and DQ3 although for three it's usually written using the subtype (which would be DQ7). DQ8 is the celiac gene so if someone were DQ3 (subtype 8) they'd refer to it as DQ8.

I hope that makes a smidgen of sense.

[mftnchn]

Whether you need to be casein free for life isn't conclusive I don't think. I haven't seen anything that says it causes celiac disease like gluten. Dr. Fine seems pretty dogmatic about it, and I wonder if it is based on his own personal experience with milk.

What my allergist has explained is that wiith a food allergy sometimes you can never tolerate it again. But each person is individual. You may be eventually able to rotate it. (Eat it only at a certain time interval, from once every four days to one every few months, etc.)