Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Need To Vent


Crystalkd

Recommended Posts

Crystalkd Contributor

Sorry guys. I need to vent for a second. One of my best friends is getting married on Saturday. I'm maid of honor and let them know of the gluten-free diet as soon as I did. The reception is buffet and I can't seem to get them to understand that even though there will be grilled chicken and salad there that cc is just as bad. Plus there are two brunches and the rehersal dinner. The RD is at a chineiess buffet which REALLY concerns me!!! If I can get through this weekend with out getting sick it will be great. I didn't flip out like I would have. I'm getting better at dealing with peoples lack of understanding. It's still frustrating especially since I feel great today and don't want to be feeling like crap during my friends wedding. I can't bring my own food to the reception. (They have a rule against that.) It seems like now that I'm on the diet I have to eat more often and don't eat as much at one sitting so it's not like I can eat a big meal before every event this weekend. I'll figure it out but I needed to vent to people that unstand and maybe get some tips on how to make it through this weekend without getting sick.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



abigail Apprentice

thats what I just made a post about!

rules about no bringing food??????? what its that??

well make an exeption, WE HAVE SPECIAL NEEDS!!!!!!!!

this its not like a regular diet to loose weight!!!

it there a law that protect us an give us that "privilege"??

Abismart

EBsMom Apprentice
I'll figure it out but I needed to vent to people that unstand and maybe get some tips on how to make it through this weekend without getting sick.

The first thing that popped into my mind is that you can only "manage" the weekend if you have your own food. Can you pack some goodies for yourself - bite sized ones, such as nuts, dried fruit, Lara Bars....whatever you like and can eat. If you can nosh as needed, then at least you can keep your energy level up, keep yourself from getting too hungry, and allow yourself to push the party food around on your plate (pretend to eat) if you don't feel absolutely safe eating what is offered. Regarding the reception - truly, I'd ignore their "rule" and at least have a few bite sized snacks in your purse. Not eating isn't an option, as you have to keep your energy up; depending totally on the food that they serve might not be an option either. You can't be a good maid of honor if you're sick, so I think you have to do whatever is necessary to keep yourself safe. Good luck!!!

Rho

Crystalkd Contributor

I'm trying to figure it out. I've got Coco loco bars,the enviro kids snack bars, and rice cakes. I was going to chop up some veggies and take them with me. I will most likely go to the store in the morning to get some other things. Any ideas? Are all nuts safe (Part of the problem is I'm still trying to figure out the diet too. My mom said that we should be the first to eat so I should be good. I might get her to bring some stuff in my nephews bag since she's going to be there too.

Eriella Explorer

Nuts.. as in just plain nuts... are fine. Some of the flavoring makes them iffy. I also normally get fruit leathers (they have them at Target with another name like dried fruit strips), dried fruit, and cheese sticks.

Ellsabeta Newbie
Sorry guys. I need to vent for a second. One of my best friends is getting married on Saturday. I'm maid of honor and let them know of the gluten-free diet as soon as I did. The reception is buffet and I can't seem to get them to understand that even though there will be grilled chicken and salad there that cc is just as bad. Plus there are two brunches and the rehersal dinner. The RD is at a chineiess buffet which REALLY concerns me!!! If I can get through this weekend with out getting sick it will be great. I didn't flip out like I would have. I'm getting better at dealing with peoples lack of understanding. It's still frustrating especially since I feel great today and don't want to be feeling like crap during my friends wedding. I can't bring my own food to the reception. (They have a rule against that.) It seems like now that I'm on the diet I have to eat more often and don't eat as much at one sitting so it's not like I can eat a big meal before every event this weekend. I'll figure it out but I needed to vent to people that unstand and maybe get some tips on how to make it through this weekend without getting sick.

Oh, gosh. Some people just don't understand and it's unfortunate. I'm sorry this is happening to you.

The "can't bring your own food" thing is ridiculous! Whenever I'm in a situation where I know I can't eat the food before me, I usually pack a little cooler and keep it in my car (although I'm guessing you might not have your car with you). Perhaps inbetween the wedding and the rehearsal you can sneak out? I know as the maid of honor, this could be really difficult (I've been there before), so the snacks in your purse might be the best bet. But seriously, what kind of a caterer would have that rule? I'm surprised they get business.

After the wedding, I would most definately have a talk, or write a stern letter to the business. Perhaps even drop their name on this board -- that might get them to rethink their policies. :)

Let us know how it goes.

SunnyDyRain Enthusiast

perhaps you can ask the caterer to fix you a plate of grilled chicken and what ever else is safe before letting the crowd loose on it? Have you talked to the caterer at all to see what they suggest? They are paying for you to eat, they have to at least TRY!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Crystalkd Contributor

It's along story and I'll explain more once everything is over. Some of the issue has to do with the short notice and the mother of the bride. I picked up a couple of little things this morning. I know my mom hassome gluten-free stuff at her house as well so I might get her to bring something or get her to carry a few things in her bag. Thank you guys for the support!!! It helps! It feels like I don't get much from anyone right now.

Ursa Major Collaborator

One of my daughters got married almost two weeks ago (tomorrow it will be two weeks). The caterer made sure there was safe food for me, and I brought my own dessert and my own salad dressing. Two of my grandchildren ate my dessert too, as they are obviously gluten intolerant as well.

Unless they are prepared to make sure you are safe, they can't expect you to abide by their rules. If the bride has a problem with that, ask her if she would prefer you bringing your own food, or you vomiting on her dress, or rushing to the bathroom in the middle of the ceremony!

Mango04 Enthusiast

I know it's annoying, and I've vented about similair situations, but here are my two cents (for whatever they're worth :rolleyes: ):

When you say you can't get them to understand, do you mean you can't get the bride to understand, or you can't get the wedding caterer to understand?

I've been in multiple weddings, and it's really best to not ever ever ever say anything about your special dietary needs to the bride, or anyone in the bride's family responsible for throwing the wedding. They won't understand, and with everything else they have going on, they just don't have time to try and understand. It's hard enough for us to understand our own dietary needs, and I think life is just easier if we don't actually expect others to accomodate us. (It does suck sometimes, and sometimes we remain hungry while others are eating, but if you prepare ahead of time and have your own on hand, it's not that bad :))

If you haven't already, it might be a good idea to contact the people responsible for preparing the food (contact the place where they're having the recpetion and the location of the rehersal dinner). If you explain the situation, the chefs involved should definitely be able to prepare you plain, safe chicken and vegetables. At the Chinese place, they should be able to prepare you plain chicken and steamed veggies w/out any sauce.

If you already did that and nobody can help you, or even if they can help you, you really should eat something before each event and have something edible in your purse at all times (no one has to know you have it :)) Good luck. Hope it works out.

tarnalberry Community Regular

if you have to sneak your own food into the wedding, do it. don't get caught, of course, but don't pass out from lack of food either. they've put you in a tough spot. it's quite possible that making something safe (including from CC) for you at this point isn't going to happen, but in that case, you've got to have your own food.

Phyllis28 Apprentice

I ignore the "No Food Rule" on a regular basis. I have also found that I need to deal with restaurants and caterers myself. Pull out the American Disabilities Act if you have to. Bringing your own food is a reasonable accomadation.

Guest lizajane

I don't think you should be rude about it and say you are going to vomit, or be sick all day, etc. I have been going thorugh this for 22 years--weddings, family dinners, funerals with meals, political events with black tie dinners, breakfasts with vice presidents of Hallmark, Heads of neurosurgery of hospitals in Kansas City, players for Chiefs, etc. Its O.K. to eat before the main event!! It's O.K. to bring your own food to snack on so your blood sugar level doesn't drop. It's O.K. to ask the chef or party planner to see if something could be fixed for you and perhaps set aside until your turn to be served. Nobody but the person that is with you needs to know what you are doing to protect yourself, and the person you are there to honor is none the wiser. Perhaps some day you will be able to tell them, but not with grandious intentions--just some insight for people to realize what we live with and will do for them for their special day!

THIS IS A HORRIBLE DISEASE TO LIVE WITH ON A DAILY BASIS, BUT IT DOESN'T GET ANY EASIER, SO TAKE EACH ONE OF THESE TIMES AS A MENTAL CHALLENGE TO FEEDING YOURSELF! Sometimes they work, and sometimes they don't!! My mother never understood my disease and always ordered pizza for dinner on the nights we drove all day to visit her! I used to get SO mad that she couldn't even remember that I couldn't have pizza--my favorite food!! Then the end of Feb, 2007, she had a major stroke and can't order me pizza, and she can't have it either. I sit with her while she tries to eat a bland diet, and regrete the anger that I had over an 84 yr old woman with 9 kids who couldn't remember that I couldn't eat pizza-was it all about me? Did my whole family have to forget having pizza because I couldn't? Is it true that what goes around comes around and that's why she is on her horrible diet?

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - JoJo0611 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Awaiting Biopsy results

    2. - cristiana replied to emzie's topic in Related Issues & Disorders
      1

      Stomach hurts with movement

    3. - emzie posted a topic in Related Issues & Disorders
      1

      Stomach hurts with movement

    4. - Flash1970 replied to Ginger38's topic in Related Issues & Disorders
      3

      Shingles - Could It Be Related to Gluten/ Celiac


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,455
    • Most Online (within 30 mins)
      7,748

    jscal6
    Newest Member
    jscal6
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • JoJo0611
      I have had my endoscopy this morning with biopsies. My consultant said that it looked like I did have coeliac disease from what he could see. I now have to wait 3 weeks for the biopsy results. Do I continue eating gluten till my follow appointment in three weeks.  
    • cristiana
      Hi @emzie and welcome to the forum. Perhaps could be residual inflammation and bloating that is causing sensitivity in that area.  I was diagnosed with coeliac disease in 2013 and I remember some years ago my sister telling me around that time that she had a lady in her church, also a coeliac, who  had real pain when she turned her torso in a certain direction whilst doing exercises, but otherwise was responding well to the gluten-free diet. As far as I know is still the picture of health. I often end up with pain in various parts of my gut if I eat too much rich food or certain types of fibre (for some reasons walnuts make my gut hurt, and rice cakes!) and and as a rule, the pain usually hangs around for a number of days, maybe up to a week.   When I bend over or turn, I can feel it.  I think this is actually due to my other diagnosis of IBS, for years I thought I had a rumbling appendix but I think it must have just been IBS.  Reading the experiences of other sufferers, it seems quite typical.  Sensitized gut, build up of gas - it stands to reason that the extra pressure of turning can increase the pain. When I am glutened I get a burning, gnawing pain in my stomach on and off for some days - it isn't constant, but it can take up a few hours of the day.  I believe this to be gastritis, but it seems to hurt irrespective of movement.   Anyway, you are doing the right thing to seek a professional opinion, though, so do let us know how you get on.   Meanwhile, might I suggest you drink peppermint tea, or try slices of fresh ginger in hot water? A lot of IBS sufferers say the former is very helpful in relieving cramps, etc, and the latter is very soothing on the stomach. Cristiana
    • emzie
      Hi! One of the usual symptoms I have with a gluten flare up has deviated a bit and I thought I'd search for advice/opinions here. Also to see if anyone goes through similar stuff. Monday all of a sudden I got really bad pain in my stomach (centre, right under the chest, where the duodenum would be located). I ended up having to throw up for 2 hours, my body was trying to get rid of something from all sides and it was just horrible. Since then I havent been nauseous anymore at all, but the pain has stayed and it always worsens the moment i start moving. The more I move the more it hurts, and when i rest longer it seems to dissapear (no movement). I've had this before, but years ago I think around when I first got diagnosed with coeliac, where each time I moved, my stomach would hurt, to the point where I went to the ER because doctors got freaked out. That only lasted 1 night though, and Now it's already wednesday, so 3 days since then, but the pain persists and remains leveled. it doesn't get crazy intense, but it's still uncomfortable to the point I cant really go out because Im afraid itll turn into a giant flare up again. I couldn't think of where I could possibly have been glutened at this bad of a level and why it hasn't passed yet. I went to the GP, and as long as I have no fever and the pain isnt insane then its fine which I havent had yet. Tomorrow im also seeing a gastroenterologist specialized in IBS and coeliac for the first time finally in years, but I thought I'd ask on here anyway because it still hasnt dissapeared. It also hurts when someone presses on it. Maybe it's just really inflamed/irritated. I'm just frustrated because I'm missing out on my uni lectures and I do a sports bachelor, so I can't get behind on stuff & next to that i'm also going to go to the beach with my boyfriend's family this weekend: ( 
    • Flash1970
      Hi. So sorry to hear about your shingles. There is a lidocaine cream that you can get at Walmart that will help numb the pain.  That's what I used for mine. It can't be put near your eyes or in your ears. I hope your doctor gave you valacyclovir which is an antiviral.  It does lessen the symptoms. If it is in your eyes,  see an ophthalmologist.  They have an antiviral eye drop that can be prescribed.  Shingles in the eye could cause blindness.  I was unsure whether you have celiac or not.  If you do,  follow the diet.  I believe that extra stress on your body does affect everything. Shingles can recur. If you start getting the warning signs of nerves tingling,  see the dr and start taking the valacyclovir to prevent a breakout. If I sound technical,  I am a retired pharmacist. 
    • Scott Adams
      You are right to be proactive, as research does indicate that individuals with celiac disease can have a higher predisposition to enamel defects, cavities, and periodontal issues, even with excellent oral hygiene. While many people with celiac successfully undergo orthodontic treatment without complication, your caution is valid. It may be beneficial to seek a consultation with an orthodontist who is familiar with managing patients with autoimmune conditions or who is willing to collaborate with your daughter's gastroenterologist or a periodontist. They can perform a thorough assessment of her current oral health, discuss your specific concerns about recession and decay, and create a tailored hygiene plan. This second opinion could provide a clearer risk-benefit analysis, helping you decide if addressing the cosmetic concern of the lower teeth is worth the potential risks for your daughter, especially if they are not currently affecting function or her confidence. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.