Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Fatigue Is Back With A Vengeance

Lisa

By Lisa
in Coping with Celiac Disease

Recommended Posts

Lisa Mentor
Lisa
Posted

With efforts, I write this post. The fatigue is back big time.

I do have to admit that I do not have much of an appetite and have not in many years. I cook well and explore some great dinners. I can cook some drop dead dinners and I will eat that. But day to day, there is no desire to eat. No, I am not anorexic.

I have been cooking for an elderly friend in her house and toting my pot and pans to her house to cook the meals for two weeks now. Maybe a little stress involved here. But, I am just draggin.

How and what fuels do I need to consume to feel better. Iron fuels, like broccoli.....?

I do think another blood panel is due. Sorry, a little soup cry.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


oceangirl Collaborator
oceangirl
Posted

Lisa,

I'm very sorry you're not feeling up to snuff! You have been so helpful to me in the past I am wishing I had some great suggestions. In terms of foods to "beef you up"- do you eat beef? Then I would recommend my Mom's old stand-by- liver! Chicken livers are pretty tasty actually and very high in iron. I also think brazil nuts are good as well as molasses. (old-fashioned remedies) A blood test wouldn't be a bad idea. (I am thinking the same...) Salmon is rich in calcium and many other good things; I eat it a lot. I always buy it fresh, not in the can, hopefully, in N. Carolina you can find it this way as well. I hope you feel better very soon!

lisa

mftnchn Explorer
mftnchn
Posted

There are so many causes of fatigue.

So just one idea: what about beefing up your regime to eliminate toxins? Like more water, probiotics, activated carbon to absorb toxins in your intestine. If you are dealing with the big C instead of the big D--a little extra help so you are eliminating every day?

Also in the heat, electrolyte depletion perhaps?? So a sports drink maybe or your own mixture?

nikki-uk Enthusiast
nikki-uk
Posted

I've no great ideas I'm afraid Lisa as my hubby suffers the same thing (fatigue/lack of appetite) most of the time. :rolleyes:

Just checking the obvious - anaemia/hypothyroid been crossed off the list???

Hope you feel better soon :)

CarlaB Enthusiast
CarlaB
Posted

Lisa (Nikki, too), I take NT Factor for fatigue and it's really helped. I get it from my doctor so I can get the full-strength stuff. Google it and read about it.

DestinyLeah Apprentice
DestinyLeah
Posted

Must be fatigue week on the boards. I have not had an appetite since I cut gluten, but I have never felt like it was a huge effort to drag myself across the room to the computer. To make matters even worse, when I do lie down, there is no sleep. And when I finally fall asleep, staying that was does not happen on the best of nights. Add to that the fact that I can no longer sit in the summer heat without a sweater, and the hubby likes the air on at night, and we have a major issue.

So while I cannot help at all, you have my sympathy. I know how you feel.

pedro Explorer
pedro
Posted

Hi Lisa

I am sorry you are not feeling well. If are eating well, and you are having time to rest, please make sure your doctor order some blood work. It only takes a couple of minutes, and you will get lots of answers. I hope and pary you get your energy back. Your are an incredible person.

Many blessings to you and your family.

Please let us know of your progress.

Take care.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


nikki-uk Enthusiast
nikki-uk
Posted
Add to that the fact that I can no longer sit in the summer heat without a sweater, and the hubby likes the air on at night, and we have a major issue.

A-ha!!..another cold person (my hubby is always cold)

Have you had your thyroid checked?? ( hubby's TSH come back ok :huh: )

DestinyLeah Apprentice
DestinyLeah
Posted

It is 99 out today, and I am wearing my fluffy red sweater like a dork.

Thyroid levels were checked, and came back just fine.

Edited to include:

A notable factor in my cold naturedness is that it started when I cut gluten from my diet, has gotten worse over time, along with very dry mouth and throat and itchy red eyes. But when I do overheat, it takes hours to cool off, and usually a very cold bath and bed rest under a fan.

nikki-uk Enthusiast
nikki-uk
Posted
along with very dry mouth and throat and itchy red eyes.

This sentence jumped out at me .You might want to have a look at Open Original Shared Link to see if it matches your symptoms?

Janeti Apprentice
Janeti
Posted
This sentence jumped out at me .You might want to have a look at Open Original Shared Link to see if it matches your symptoms?

I am going to have to jump right in here. I can't stand the fatigue. Sometimes my eyes just want to close, so I will go and lie down and wind up staring at the ceiling...why can't I sleep?? I also have very sore muscles though, is this a vitamin deficiency?

Lisa Mentor
Lisa
Posted
  • Author

Fatigue can very much be from deficiencies. B-12 injection or sublinual can be very helpful.

Avoid stress, for me, it puts me right onto the sofa for days.

Karen B. Explorer
Karen B.
Posted
Add to that the fact that I can no longer sit in the summer heat without a sweater, and the hubby likes the air on at night, and we have a major issue.

Before my Celiac diagnosis, I had this problem and read somewhere that kelp would halp it. I started taking kelp supplements and it did help. All kelp supplements do is provide iodine for your thyroid. However, my thyroid always tests normal.

Since going gluten-free, I haven't had this problem and don't have to take kelp. I can only assume that I'm absorbing iodine from my food now.

Also, I use B-12 Blast drops from Bricker Labs (get it at Whole Foods) for an extra boost on B-12 and Folic Acid. I tend to run low on these and that makes me draggy.

1-out-of-133 Newbie
1-out-of-133
Posted

Hi Momma Goose,

I hate being tired also. Sorry to add just another "thing" when you are tired, but I have studied quite a bit of Traditional Chinese Medicine. If you are cold, please don't take any kelp-- it will just make you colder. Either go see an acupuncturist or for a simple but "not really having a diagnosis"-- look into ginseng. Chinese ginseng is the most warming, but all (American or Korean) will add some energy back into you. I hope your energy returns soon, you're important.

DestinyLeah Apprentice
DestinyLeah
Posted

Sjorgen's describes me to a t. What kind of doctor tests for that, though?

Karen B. Explorer
Karen B.
Posted
Hi Momma Goose,

I hate being tired also. Sorry to add just another "thing" when you are tired, but I have studied quite a bit of Traditional Chinese Medicine. If you are cold, please don't take any kelp-- it will just make you colder. Either go see an acupuncturist or for a simple but "not really having a diagnosis"-- look into ginseng. Chinese ginseng is the most warming, but all (American or Korean) will add some energy back into you. I hope your energy returns soon, you're important.

I suspect it depends on why you are cold. Pre-diagnosis, every time I backed off of the kelp, I got freezing spells where I couldn't warm up unless I had soup or some such. That was a few years ago when I didn't know I had Celiac and wasn't absorbing my nutrients, now I no longer need it. But I really was glad it worked for me when I was experiencing the cold spells.

I have heard of using ginseng tea to warm up and ginger tea too but I've always wondered if it was the hot tea or the herb in it that does the job.

Phyllis28 Apprentice
Phyllis28
Posted

Momma Goose,

I am sorry you not feeling well. I hope you feel better soon.

Lisa Mentor
Lisa
Posted
  • Author
Momma Goose,

I am sorry you not feeling well. I hope you feel better soon.

Thanks Phyllis,

I think alot has to do with stress. I have taken on the role of a caregiver and managing two homes. That certainly is not an easy job. I'm just plumb worn out.

I'm going to start with Folic suppliments and hope that will help a little, in addition to the b-12 and daily vit.

Thank you all for your suggestions.

KAG Rookie
KAG
Posted

Momma Goose,

I have always thought it would be wonderful if we only had to eat overy other day. If I could just cook 3 or 4 times a week I would be happy. This 3 times a day thing is tedious and boring. I have young kids and I know that it's hard to be the one watching out for others nutrition as well as your own. As far as being tired, I always feel better when I cut out any sugar and/or processed foods. Chicken soup makes me and my intestines feel much better. And although you may not feel like it, being out in nature and out the in the sun (careful not to burn!) going for a walk always helps me sleep better at night.

Hope you feel better soon.

Kim

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. xxnonamexx
      - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Fermented foods, Kefir, Kombucha?

      I have read fermented foods like sauerkraut, pickles, Kefir, Kombucha are great for gut health besides probiotics. However I have searched and read about ones that were tested (Kefir, Kombucha) and there is no clear one that is very helpful. Has anyone take Kefir, Kombucha and noticed a difference in gut health? I read one is lactose free but when tested...
    2. SamAlvi
      - SamAlvi replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      High TTG-IgG and Normal TTG-IgA

      Thanks again for the detailed explanation. Just to clarify, I actually did have my initial tests done while I was still consuming gluten. I stopped eating gluten only after those tests were completed, and it has now been about 70 days since I went gluten-free. I understand the limitations around diagnosing NCGS and the importance of antibody testing...
    3. knitty kitty
      - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

      Blood tests for thiamine are unreliable. The nutrients from your food get absorbed into the bloodstream and travel around the body. So, a steak dinner can falsely raise thiamine blood levels in the following days. Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte...
    4. lizzie42
      - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine?
    5. knitty kitty
      - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Son's legs shaking

      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine. Legumes (beans) do contain thiamine. Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and Cobalamine B12 are mostly found in meats. Meat, especially organ...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,875
    • Most Online (within 30 mins)
      7,748
    Jen J.
    Newest Member
    Jen J.
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • xxnonamexx
      Fermented foods, Kefir, Kombucha?

      By xxnonamexx · Posted

      I have read fermented foods like sauerkraut, pickles, Kefir, Kombucha are great for gut health besides probiotics. However I have searched and read about ones that were tested (Kefir, Kombucha) and there is no clear one that is very helpful. Has anyone take Kefir, Kombucha and noticed a difference in gut health? I read one is lactose free but when tested was high in lactose so I would probably try a non dairy one. Thanks
    • SamAlvi
      High TTG-IgG and Normal TTG-IgA

      By SamAlvi · Posted

      Thanks again for the detailed explanation. Just to clarify, I actually did have my initial tests done while I was still consuming gluten. I stopped eating gluten only after those tests were completed, and it has now been about 70 days since I went gluten-free. I understand the limitations around diagnosing NCGS and the importance of antibody testing and biopsy for celiac disease. Unfortunately, where I live, access to comprehensive testing (including total IgA and endoscopy with biopsy) is limited, which makes things more complicated. Your explanation about small-bowel damage, nutrient absorption, and iron-deficiency anemia still aligns closely with my history, and it’s been very helpful in understanding what may be going on. I don't wanna get Endoscopy and I can't start eating Gluten again because it's hurt really with severe diarrhea.  I appreciate you taking the time to share such detailed and informative guidance. Thank you so much for this detailed and thoughtful response. I really appreciate you pointing out the relationship between anemia and antibody patterns, and how the high DGP IgG still supports celiac disease in my case. A gluten challenge isn’t something I feel safe attempting due to how severe my reactions were, so your suggestion about genetic testing makes a lot of sense. I’ll look into whether HLA testing is available where I live and discuss it with my doctor. I also appreciate you mentioning gastrointestinal beriberi and thiamine deficiency. This isn’t something any of my doctors have discussed with me, and given my symptoms and nutritional history, it’s definitely worth raising with them. I’ll also ask about correcting deficiencies more comprehensively, including B vitamins alongside iron. Thanks again for sharing your knowledge and taking the time to help. I’ll update the forum as I make progress.
    • knitty kitty
      Son's legs shaking

      By knitty kitty · Posted

      Blood tests for thiamine are unreliable.  The nutrients from your food get absorbed into the bloodstream and travel around the body.  So, a steak dinner can falsely raise thiamine blood levels in the following days.  Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte Transketolace Activity test.  But even that test has been questioned as to accuracy.  It is expensive and takes time to do.   Because of the discrepancies with thiamine tests and urgency with correcting thiamine deficiency, the World Health Organization recommends giving thiamine for several weeks and looking for health improvement.  Thiamine is water soluble, safe and nontoxic even in high doses.   Many doctors are not given sufficient education in nutrition and deficiency symptoms, and may not be familiar with how often they occur in Celiac disease.  B12 and Vitamin D can be stored for as long as a year in the liver, so not having deficiencies in these two vitamins is not a good indicator of the status of the other seven water soluble B vitamins.  It is possible to have deficiency symptoms BEFORE there's changes in the blood levels.   Ask your doctor about Benfotiamine, a form of thiamine that is better absorbed than Thiamine Mononitrate.  Thiamine Mononitrate is used in many vitamins because it is shelf-stable, a form of thiamine that won't break down sitting around on a store shelf.  This form is difficult for the body to turn into a usable form.  Only thirty percent is absorbed in the intestine, and less is actually used.   Thiamine interacts with all of the other B vitamins, so they should all be supplemented together.  Magnesium is needed to make life sustaining enzymes with thiamine, so a magnesium supplement should be added if magnesium levels are low.   Thiamine is water soluble, safe and nontoxic even in high doses.  There's no harm in trying.
    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine? 
    • knitty kitty
      Son's legs shaking

      By knitty kitty · Posted

      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.