Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Symptom Check


bloatedntexas

Recommended Posts

bloatedntexas Rookie

Hi,

I thought it would be interesting to find out what your most common symptoms are for when you have ingested wheat. Here goes mine! I just would like to compare myself to other celiacs.

1. Excessive Bloating

2. Constipation

3. Gas

Anyone else predominently have these symptoms? I never get diarreah and it seems most celiacs do.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



confused Community Regular

1. bloating

2. gas

3. D and C

4. eyes twitching

5. feet get tingly

6. mouth sores

7. cranky

8 brain fog

paula

Emily Elizabeth Enthusiast

1. Distended Stomach/Bloating (first sign)

2. D

3. Agitated

4. Blurry stinging eyes and sensitivity to light

5. Mouth Sores

6. Foot Cramping

7. Gas

8. Fatigue/Foggy Head

9. Nasal Drip (forgot to add until someone mentioned it later)

Good post! I'm interested in other's symptoms as well.

bloatedntexas Rookie

thanks for sharing! oh yeah, I forgot, I get these, too!

1. fatigue

2. tingly feet (more like the feet always fall asleep)

3. dental problems due to malabsorbtion of vitamins

little d Enthusiast

Here are mine

Gas along with the noices in my intestines and bloating this happens first

D sometime C or vice versa (this happens a day or two later)

eye itching and very light sensitive it could be partly cloudy and I'm still sensitive(which never occured to me)

fatigue/brain fog (immediatly)

Mouth sours (not always)

If I am working night and have ingested Wheat of gluten the next day I will be very agitated.

donna

kbtoyssni Contributor

About one week of stomach pain.

Followed by one week of joint/muscle pain and brain fog.

Followed by another week of depression.

trishydee Rookie

Great Topic! Thanks!

1. Explosive, painful D

2. Mouth and nostrils burn

3. Headache

4. Joint & bone pain

5. Bloating & pain in stomach


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



noglutee4kt Newbie

This is a very interesting post!!!

Acid reflux

stomach cramping and lots of gurgling (my boyfriend calls it the glutee monster :angry: )

D (or as we call it "symptoms")

fatigue

very very cranky, emotional,grumpy.... call it what you may...not pleasant.

My hands and feet also get so freezing cold they hurt. but I'm not sure that it related to gluten!

I'm sure there's other stuff too...

Kate

SchnauzerMom Rookie

Gas

Alternate between C and D

Somach pain

Intestinal pain

Acid stomach

Lots of noise going on in stomach and intestines

Bloated feeling

tired

7-cody Apprentice

Sorry to go off-topic, I just have a quick question.

how do you explain bloating? what does that mean? like a rumble in your stomach?

also I'd contribute to this thread except for I haven't gone gluten-free yet. :P

MaryKatherine Newbie

This is so helpful, thanks for the question!

stomach cramping and lots of belly music

bloated like a beached whale

Intestinal cramping

fatigue

Nausea the next morning with lots of D that makes me feel wiped out

very anxious,weepy, and crabby with a dose of helplessness sometimes (I have a tendency to think the worst and go to a fear place when it all starts)

My feet are warm and My hands also get cold and clammy-yuk!

Sometimes a headache will follow

Loss of appetite and/or fear of food develops

Joint and muscle pain

JNBunnie1 Community Regular

Here's a list for ya

Blood pressure plummets so I pass out a lot

Sensitivity to light

SERIOUSLY lowered IQ, I swear I get stupider

Anxiety

Brain fog (oh the dreaded brain fog)

little d

low-grade fever

awful headaches

weakness

fatigue

unrelenting nausea, no puking

lip sores

unusually active mucous membrans (snotty nose)

bad seasonal and animal allergies

And this past time I got glutened, for the first time I was temporarily lactose intolerant AND I got DH for the first time! After three years gluten-free. Has that happened to anyone else, getting DH so far down the road?

kevsmom Contributor

Here's my list:

1. D

2. Brain Fog

3. Depression

4. Fatigue

5. Bloating

(Sometimes I think I suffer from the brain fog, depression and fatigue even if I haven't been glutened.) <_<

Teacher1958 Apprentice

My symptoms-

1. severe abdominal cramping with loose stools that occur repeatedly over a period of hours.

2. constipation

3. mouth sores

4. vitiligo (same thing Michael Jackson has with the skin fading, but not as noticable in my fair complexion)

5. spaceyness

6. worsening of ADD symptoms

7. fibromyalgia symptoms (depression, joint pain, fatigue)

8. myoclonic jerks

9. past history of premature labor

10. clumsiness likely caused by neurological effects of gluten on the brain

jewi0008 Contributor

My top reactions:

1. Mostly mouth problems. Burning, tingling, dry, sores

2. Gassy

3. Fatigued

4. Bloated then D

Suffering in Ohio Newbie

This is very helpful. I was curious as well. My top symptoms are:

1) Immediate bloating of the stomach. I look three months pregnant.

2) Burning sensation under my ribs and noisy stomach (about two hours later).

3) The worst smelling gas ever. I have people that will attest to this. (From two hours through about 24 from time of ingesting gluten)

4) Loose stools and frequent (bathroom three to four times the following day)

5) BRAIN FOG :( This is the worst of all symptoms. Before being diagnosed I began to think I was getting stupider with age. I couldn't figure out why my vocabulary was shrinking or words would come out wrong. This has made me self conscious and apprehensive to talk to almost anyone. I was always at the top of my class and now I feel like I can't even complete a sentence. (I work with higher education faculty and staff so grammar and vocabulary is very important.

6) Fatigue all week. I can have a 10 hour night

dionnek Enthusiast

1) C first few days then D for a few days

2) headache

3) brain fog/bumping into things

4) sometimes dizzyness and passing out

5)gas (especially at night), but not the smelly kind, just noisy :)

6) depression/mood swings for about a week

all of this takes about 2 weeks to go away for me.

I also have night sweats all the time (not just when glutened), so I don't think those are a symptom of celiac (something else that no dr. can figure out!).

stargazer Rookie

1. bloating

2. excessive gas

3.intestinal pain

4. diarrhea

5. fatigue

6. muscle aches

jerseyangel Proficient

After 2 years, I have fallen into a pretty predictable pattern. This is how I react to gluten via cross contamination--I've not eaten gluten on purpose.

After about 2-3 hours, stomach rumbling, gas and then D. This lasts on and off for a day or two, with some nausea.

When the stomach issues are winding down, the brain fog, clumsiness, difficulty getting the right words out, fatigue, reflux, and anxiety kick in for 2-3 weeks. I have trouble concentrating and just feel generally "out of it". I can function during this time, but it takes considerably more effort <_<

7-Cody, bloating is when you feel and look like you've gained several pounds in your stomach area. It's uncomfortable, your pants don't want to fit in the waist, and it can happen overnight. It's a common symptom of Celiac. It also happens to many people when they've been glutened. Welcome to the board! :)

sfm Apprentice
Hi,

I thought it would be interesting to find out what your most common symptoms are for when you have ingested wheat. Here goes mine! I just would like to compare myself to other celiacs.

1. Excessive Bloating

2. Constipation

3. Gas

Anyone else predominently have these symptoms? I never get diarreah and it seems most celiacs do.

Those symptoms are pretty standard. Some people have constipation instead of diarrhea.

My main symptom for gluten is pain - agonizing pain - on the left side of my abdomen. The gas and bloating I get with some other foods, or for a few days after I've been glutened (no matter what I eat).

mhansen Rookie

1. painful intestinal movement

2. dizzy and cold sweats right before I have to poo

3. constipation followed by the ever explosive soft stools.

Then I have that dermatitis herpitiformis (sp?) for a few days and my dermatologist says its in a non-common spot its right in my crack at the end of my tail bone. ANY one else have that?

I also have and have always had light sensitivity cloudy days are the worst.

thanks for the topic

bloatedntexas Rookie

GLAD this topic was so helpful and popular! it really helped me to relate and know that i am not alone in my gluten symptoms!

7-cody Apprentice
After 2 years, I have fallen into a pretty predictable pattern. This is how I react to gluten via cross contamination--I've not eaten gluten on purpose.

After about 2-3 hours, stomach rumbling, gas and then D. This lasts on and off for a day or two, with some nausea.

When the stomach issues are winding down, the brain fog, clumsiness, difficulty getting the right words out, fatigue, reflux, and anxiety kick in for 2-3 weeks. I have trouble concentrating and just feel generally "out of it". I can function during this time, but it takes considerably more effort <_<

7-Cody, bloating is when you feel and look like you've gained several pounds in your stomach area. It's uncomfortable, your pants don't want to fit in the waist, and it can happen overnight. It's a common symptom of Celiac. It also happens to many people when they've been glutened. Welcome to the board! :)

thanks angel! I wasn't sure... usually when I eat my stomach will get pretty big. Now I'm a skinny guy (6' and 170 lbs), but how do you tell if it's bloating or just because you ate a lot? I did a google search but it's too hard to even focus right now. If I don't feel rumbling or feel anything there really, can it still be bloating?

edit: Also, are there any Celiacs here that would say there main symptoms are C and brain fog by far?

jerseyangel Proficient
thanks angel! I wasn't sure... usually when I eat my stomach will get pretty big. Now I'm a skinny guy (6' and 170 lbs), but how do you tell if it's bloating or just because you ate a lot? I did a google search but it's too hard to even focus right now. If I don't feel rumbling or feel anything there really, can it still be bloating?

edit: Also, are there any Celiacs here that would say there main symptoms are C and brain fog by far?

Cody,

Bloating is more than normal distention you might get after eating that is not uncomfortable and goes away. It's more of a tight, overly full feeling--like you want someone to stick a pin in you to let the air out :D

There can certainly be bloating without rumbling--although bloating and gas tend to occur together frequently.

Shez30 Newbie
Hi,

I thought it would be interesting to find out what your most common symptoms are for when you have ingested wheat. Here goes mine! I just would like to compare myself to other celiacs.

1. Excessive Bloating

2. Constipation

3. Gas

Anyone else predominently have these symptoms? I never get diarreah and it seems most celiacs do.

My symptoms are...

Hi, I'm new to this entire forum, so If I do something wrong, someone please tell me. Anyways, I

was diagnosed 3 yrs. ago. I've noticed that every single time I accidentally ingest gluten I get a cold sore on my lip or several a day or two later, I also have general weakness and stomach pains sometimes with diarreah.[

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,334
    • Most Online (within 30 mins)
      7,748

    johnfreirefr
    Newest Member
    johnfreirefr
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.