Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Does Anyone Out There Not Support The Use Of Probiotics?


Sweetfudge

Recommended Posts

Sweetfudge Community Regular

Just doing more research on probiotics, and whether or not I should be taking them. Everyone here seems to think they're good. Is there any evidence to the contrary?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



blueeyedmanda Community Regular

I don't take them, I just never started. I am not for or against them since I don't really have an opinion.

ravenwoodglass Mentor

For me it is a personal preference driven by years of toxic meds and a dislike and distrust of pills but I much prefer to balance my tummy with a certified gluten-free yogurt. We even use it as a preventative when one of us has to take antibiotics. We start the yogurt the day we start the antibiotics and continue through the treatment and that seems to prevent the imbalance. I would go with that first then if it is not enough you could go with the pills.

lovegrov Collaborator

I've heard nothing bad.

richard

darkangel Rookie

The only slightly negative thing I've ever come across in my research is IF your gut is in really bad shape and inflamed, probiotics could cause further irritation. I think this applies more to folks suffering from Crohn's and ulcerative colitis, though.

IMHO, probiotic supplementation is essential for most of us who have digestive issues, particularly if you've had courses of broad spectrum antibiotics, have taken antibiotics for long periods of time for acne, are on birth control pills, have eaten a starchy/sugary diet. All of these things disturb natural gut ecology.

I prefer to get mine in the form of a pure, powdered supplement I mix with water. I have issues with dairy and can't tolerate any kind of yogurt - even the homemade kind on the Specific Carbohydrate Diet, which is lactose-free. Many storebought varieties do not have enough viable live strains to do any good, AND you've got the issue of possible gluten or unwanted sugar.

casnco Enthusiast
Just doing more research on probiotics, and whether or not I should be taking them. Everyone here seems to think they're good. Is there any evidence to the contrary?

I purchased a probiotic via a mail order company. I took them for a month and didn't notice any difference. I quit them feeling it was a waste of time and money. Then I went to an herbalist. She told me the probiotic needs to be refridgerated to keep them alive or working, whatever the term is. She gave one that says gluten free and I have been taking it for three months. What I notice is that when I get cross contaminated my recovery time is only a couple of days as apposed to a couple of months. I have added a vitamin to my daily routine now. I never felt any different with vitamins either, but since the probiotic the vitamins are making it to my blood stream and not my urine! My herbalist has changed to a different probiotic this month because she said there are other colonies that need to be replaced in the intestine.

I hate pills!!! I would never take something if it didn't make a noticable change. But I really feel better and believe my gut is in better shape now than it has been in years because of the probiotic. My herbalist also said that there will not be a need to take the probiotic for the rest of my life. It is only for a short time. (three months seems like a long time, but in the big picture, my gut didn't get all messed up overnight so I will stick with her advice. It has been great so far.)

Good Luck! And make sure you buy your probiotics from someone who knows alot about them.

Debbie

jerseyangel Proficient

In my opinion, I think they're fine to use. I've seen quite a few people here who get great benefit from probiotics.

Myself--I've yet to try one that I could tolerate.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jestgar Rising Star

I've started eating home meade yogurt and I've noticed a big difference in recovery time if I've eaten the wrong thing.

burdee Enthusiast
In my opinion, I think they're fine to use. I've seen quite a few people here who get great benefit from probiotics.

Myself--I've yet to try one that I could tolerate.

Patti:

If you NEED probiotics, because your 'good' intestinal bacteria are low or even depleted, you SHOULD react to them and not easily tolerate them when you first begin probiotic therapy. The new good bacteria change the way your intestines process food. If you experience no reaction or no difference, the organisms are probably dead or non-viable. I just finished a 2 week course of freeze dried powdered probiotics. Each night before dinner I mixed a probiotic packet with water and drank it. On the first night I felt like the good and bad bacteria were really slugging it out or at least beating my intestines with their little boxing gloves. LOL Every night thereafter for the next week I had a LOT of bloating and then gas. Eventually that reaction decreased until I only felt a little bloating and gas by the time I took the last of those packets which contained 170 billion live organisms each. Now when I take my freeze dried probiotic capsules which only contain 8 billion live organism per capsule, I hardly feel any reaction. So I KNOW I finally got my 'good' bacteria levels high enough. Also I'm no longer bruising easily (vitamin K deficiency) or irregular.

I don't think everybody needs probiotics. However anyone who ever took antibiotic treatment courses needs probiotics to replenish their good bacteria, especially if they have signs of vitamin K deficiency (frequent bruising) or irregularity (despite fiber and magnesium) caused by impaired gut motility. Yogurt does not supply enough live organisms or enough variety of necessary good bacteria to replenish depleted intestines after a course of antibiotics.

BURDEE

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen

    2. - Mari replied to KathyR37's topic in Coping with Celiac Disease
      5

      New here

    3. - Colleen H replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen

    4. - Colleen H posted a topic in Coping with Celiac Disease
      0

      Methylprednisone treatment for inflammation?

    5. - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,879
    • Most Online (within 30 mins)
      7,748

    Peta Dunn
    Newest Member
    Peta Dunn
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      Ferritin levels.  And see what your hemoglobin looks like too, that will tell you if you are anemic?  You can have 'low normal' levels that will not be flagged by blood tests.  I had 'low normal' levels, my lab reading was. c12, just over what was considered normal, but I had small benign lesion on my tongue, and sometimes a sore mouth, and a consultant maxillofacial ordered an iron infusion for me as he felt my levels were too low and if he  raised them to 40, it would help.   Because you are not feeling 100% it might be worth looking at your levels, then discussing with your doctor if they are low normal.  But I stress, don't supplement iron without your levels being monitored, too much is dangerous.
    • Mari
      Hi Katht -  I sympathize with your struggles in following a gluten-free diet and lifestyle. I found out that I had Celiac Disease a few months before I turned 70. I just turned 89 and it has taken me almost 20 years to attain a fairly normal intestinal  function. I also lost a lot of weight, down to 100 lb. down from about 140 lb. What Trents wrote you was very true for me. I am still elimination foods from my diet. One person suggested you keep a food diary and that is a good idea but it is probably best just to do an elimination diet. There are several ne and maybe one for celiacs. I used one for a while and started with plain rice and zucchini and then added back other foods to see if I reacted or not. That helped a great deal but what I did not realise that it would only very small amounts of some foods to cause inflammation in my intestine. Within the last few years I have stopped eating any trace amounts of hot peppers, corn and soy(mostly in supplements) and nuts, (the corn in Tylenol was giving me stomach aches and the nuts were causing foot pains). Starting an elimination diet with white rice is better than brown rice that has some natural toxins. In addition it is very important to drink sufficient plain water. You can find out how much to drink for your height and weight online. I do have difficulty drinking 48 ounces of water but just recently have found an electrolyte supplement that helps me stay well hydrated, Adding the water and electrolytes may reduce muscle cramps and gag spams you wrote about. . Also buy some anti-gluten enzyme capsules to take with meals. I use GliadinX advertised here. These are a lot of things to do at one time as they reflect my 20 years of experience. I hope you do what you can manage to do over time. Good luck and take care.
    • Colleen H
      Yes thyroid was tested.. negative  Iron ...I'm. Not sure ... Would that fall under red blood count?  If so I was ok  Thank you for the detailed response..☺️
    • Colleen H
      Hi all !! Did anyone ever get prescribed methylprednisone steroids for inflammation of stomach and intestines?  Did it work ??  Thank you !! 
    • cristiana
      Hi Colleen Are you supplementing B12/having injections? I have learned recently that sometimes when you start addressing a B12 deficiency, it can temporarily make your symptoms worse.  But it is important not to stop the treatment.  Regarding your problems with anxiety, again that is another symptom of a B12 deficiency.   I didn't know what anxiety was until it hit me like a train several months before gastrointestinal issues began, so I can certainly relate.   Two books which helped me hugely were At Last A Life by Paul David (there is a website you can look up) and The Depression Cure: The Six-Step Programme to Beat Depression Without Drugs by Dr Steve Llardi.  Although his book is aimed at people who have depression, following the principals he sets out was so helpful in lessening my anxiety.  Llardi suggests we need to focus on getting enough: - physical exercise - omega-3 fatty acids - natural sunlight exposure - restorative sleep - social connectedness - meaningful, engaging activity   ... and we should feel a lot better. That is not to stay you must stop taking medication for depression or anxiety if you have been prescribed it, but adopting the changes Dr Llardi sets out in the book should really help. Can I just ask two more questions:  1) you say that you are B12 deficient, did they test your iron levels too?  If not, you really ought to be checked for deficiency and, 2) did they check your thyroid function, as an overactive thyroid can be cause rapid heartbeat and a lot of coeliacs have thyroid issues? Cristiana        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.