Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Bloating


hafadai43

Recommended Posts

marciab Enthusiast

I've finally tracked mine down to peanut butter. I didn't want to admit it because I love it, but this last time was really bad. After only 2 days without eating it though, it's gone. Definitely not worth it.

So, I would suggest the elimination diet too. Marcia


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



burdee Enthusiast
This won't help you with finding the answer, but it may help relieve your symptoms a little... when I'm bloated (which is a fair amount of the time) I find that apple cider vinegar tablets relieve the symptoms a little. I found myself taking them often enough that I just added them to my morning and evening vitamin routine.

I wish you luck. Even though it sucks to go off all dairy, I would give that a shot.

Jonathon Wright, MD in "Why Stomach Acid is Good for You" suggests that people with gas, bloating and indigestion after eating should try a few tablespoons of apple cider in water after a meal. If that improves digestion, he says they might need more stomach acid. Few people have too much stomach acid, but many have too little stomach acid. Anyone who every took acid blockers may now have severely low stomach acid, which causes bloating and gas after eating.

Like most others in this thread I continued to suffer bloating after eating ANYTHING, even after I eliminated gluten, dairy and soy (allergies indicated by Enterolab test results) and then egg and cane sugar (allergies indicated by ELISA test results). My naturopath thought treating me for bacterial dysbiosis (I had too much bad bacteria and not enough good bacteria) would eliminate the bloat. After killing off Klebsiella and 'reseeding' my gut with probiotics I STILL had bloating and gas after every meal. I had been taking digestive enzymes for awhile, but those didn't eliminate the bloat. I finally decided to try digestive enzymes with betaine hydrochloride after reading "Why Stomach Acid Is Good for You" by Jonathon Wright, MD. Betaine HCl not only eliminated the post meal bloating, but resolved my life long irregularity problem (despite eating lots of fiber, drinking lots of fluids and taking magnesium).

If anyone continues to suffer bloating after eliminating gluten, consider in this order:

(1) Other food allergies (I suggest the ELISA blood test, rather than guessing with elimination diets);

(2) Bacterial or fungus overgrowth (someone in this thread mentioned Candida) which can be diagnosed with a comprehensive stool bacteria and yeast test;

(3) Taking high dose probiotics (after getting rid of excess bad bacteria or fungus), esp. freeze dried products with 100-200 live organisms per dose (which will also cause gas while you take them); and

(4) Digestive enzymes with betaine hydrochloride.

There are several products designed to assist digestion of beans. I've tried Beano and ExcuseMe. Both are effective, but Beano now contains Mannitol, to which I react with cramping and bloating, just like I react to sorbitol.

BURDEE

hafadai43 Apprentice

I go to the doctor this Wednesday to get a bone density scan and to check up with my doctor on everything (recent blood tests, adding phosphorus and LOTS of iron in supplument form, etc.). I will be talking to her more about the bloating. I will bring up some of the suggestions all of you gave me, so thank you! I'm going to ask to be tested for at least dairy, corn, and soy allergies. It stinks when you take such good care of yourself and you still feel like poo. I think God gives Celiac Disease to all the strong people ;) It takes a lot of patience and strength and will to get through every day life at times.

This morning I woke up and felt wonderful! I got up even though my son hadn't woken me up yet and I exercised. It felt great. I took all of my supplements, went shopping with my son, went to the park, and when I came home, still feeling pretty good, I laid my son down for a nap and began making my first meal of the day. (With my iron supplements, I have to wait at least an hour to eat). I had bean salad wraps consisting of corn tortillas, black beans, a red pepper, hellmann's mayo (it's gluten free! I called), lime juice and lettuce. It tasted wonderful and very soon after....DUM DUM DUUUMMMMM! (Doom-souding music there) I got bloated. There goes a good chunk of my good feeling. I know I shouldn't get so down about it...but it's incredibly frustrating. I have trained myself over the years to keep my stomach flexed at all times to make it much less noticeable...so I have great ab muscles...but sometimes I just want to let go and not look pregnant. I know you all can understand, and I am sorry you go through it as well.

So many uncertainties when dealing with one's gut. So many exceptions to every single rule. You try to deal, but can never live a "normal" life again. The difficult search to cure the bloating, upset stomach, etc. is well worth the effort if it helps us live a better life.

CMCM Rising Star

I bloat from soy even though I did not test as sensitive to soy. Even gluten free soy sauce makes me bloated and ill. I just avoid soy as much as I can. Cheese could bloat you up....it does me if I have very much. Ultimately, if you are bloating up I'd say you've got some other intolerances going on. I found with myself that I'm sugar/carb sensitive, and I have a terrible problem with the various gluten free goodies out there....I occasionally have them, but not much at a time, and not often. What I had to do was really get down to a basic diet....which for me was meat/fish/eggs/green veggies. I do fine with just those things. Then start adding things in one at a time and see what affects you. I also have observed that certain combinations can affect me, too, whereas eaten alone the two foods might be OK.n This stuff is really tricky!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      Son's legs shaking

    2. - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      Son's legs shaking

    3. - Scott Adams replied to Russ H's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Anti-endomysial Antibody (EMA) Testing

    4. - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      Son's legs shaking

    5. - Scott Adams replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Bob red mill gluten free oats

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,869
    • Most Online (within 30 mins)
      7,748

    MaryannHall
    Newest Member
    MaryannHall
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
    • lizzie42
      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
    • Scott Adams
      That is interesting, and it's the first time I heard about the umbilical cord beings used for that test. Thanks for sharing!
    • knitty kitty
      @lizzie42, You're being a good mom, seeking answers for your son.  Cheers! Subclinical thiamine deficiency commonly occurs with anemia.  An outright Thiamine deficiency can be precipitated by the consumption of a high carbohydrate meal.   Symptoms of Thiamine deficiency include feeling shakey or wobbly in the legs, muscle weakness or cramps, as well as aggression and irritability, confusion, mood swings and behavior changes.  Thiamine is essential to the production of neurotransmitters like serotonin and dopamine which keep us calm and rational.   @Jsingh, histamine intolerance is also a symptom of Thiamine deficiency.  Thiamine is needed to prevent mast cells from releasing histamine at the slightest provocation as is seen in histamine intolerance.  Thiamine and the other B vitamins and Vitamin C are needed to clear histamine from the body.  Without sufficient thiamine and other B vitamins to clear it, the histamine builds up.  High histamine levels can change behavior, too.  High histamine levels are found in the brains of patients with schizophrenia.  Thiamine deficiency can also cause extreme hunger or conversely anorexia.   High carbohydrate meals can precipitate thiamine deficiency because additional thiamine is required to process carbohydrates for the body to use as fuel.  The more carbohydrates one eats daily, the more one needs additional thiamine above the RDA.  Thiamine is water soluble, safe and nontoxic even in high doses. Keep in mind that gluten-free processed foods like cookies and such are not required to be fortified and enriched with vitamins and minerals like their gluten containing counterparts are.  Limit processed gluten-free foods.  They are often full of empty calories and unhealthy saturated fats and additives, and are high in histamine or histamine release triggers.  It's time you bought your own vitamins to supplement what is not being absorbed due to malabsorption of Celiac disease.  Benfotiamine is a form of Thiamine that has been shown to improve intestinal health as well as brain function. Do talk to your doctors and dieticians about supplementing with the essential vitamins and minerals while your children are growing up gluten free.  Serve nutritionally dense foods.  Meats and liver are great sources of B vitamins and minerals. Hope this helps!  Keep us posted on your progress!
    • Scott Adams
      Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this category, and eliminating them is the best way to figure this out. Some people substitute gluten-free quinoa flakes for oats if they want a hot cereal substitute. If you are interested in summaries of scientific publications on the topic of oats and celiac disease, we have an entire category dedicated to it which is here: https://www.celiac.com/celiac-disease/oats-and-celiac-disease-are-they-gluten-free/   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.