Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Negative Enterolab Test

Sally's Mommy

Recommended Posts

Sally's Mommy Newbie
Sally's Mommy
Posted

I have posted here off and on, questioning whether or not my daughter and I have problems with gluten sensitivity. I finally ordered the Enterolab test, and it came back negative! I wanted to post this, because I know the question often comes up wondering whether or not anyone ever gets a negative test from them. Well, I did! I'm relieved, but still wondering what's up with me. I do have psoriasis, and I do have loose stool (in fact, that was the one "positive" on my Enterolab test--my fecal fat score). I'm not sure what to make of that, but I guess I'll have to play around with my diet and figure out what's up there.

Anyway, yes Enterolab DOES come back negative for some people! Hope that helps someone on the fence about testing with them.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


bakinghomesteader Contributor
bakinghomesteader
Posted

That is so weird! I was just going to post that question. "Has anyone ever gotten a negative result from Enterolab" I just got mine back today, they were positive. Just confirmed what I thought. Now my husband will be even more supportive. :P

CarlaB Enthusiast
CarlaB
Posted

You might look into bacterial dysbiosis, it can cause malabsorption and diarrhea, and a whole slew of other symptoms.

Congrats on the negative test!!!!

gfpaperdoll Rookie
gfpaperdoll
Posted

I would pursue other testing but I would also go back to enterolab & get the gene test.

Also, you can just do a dietary trial & see if you get better, if you do then there is your answer...

dally099 Contributor
dally099
Posted

hi there, my tests were negative as well, by one point, however my gene screening came back that im a DQ8, sooooo i talked to the nurse there and she told me that i probably caught it early a year from now the numbers would probably be higher, so i have been gluten free for 6 months now and feel much better. good luck in your search, i hope you are feeling better soon,

confused Community Regular
confused
Posted
I have posted here off and on, questioning whether or not my daughter and I have problems with gluten sensitivity. I finally ordered the Enterolab test, and it came back negative! I wanted to post this, because I know the question often comes up wondering whether or not anyone ever gets a negative test from them. Well, I did! I'm relieved, but still wondering what's up with me. I do have psoriasis, and I do have loose stool (in fact, that was the one "positive" on my Enterolab test--my fecal fat score). I'm not sure what to make of that, but I guess I'll have to play around with my diet and figure out what's up there.

Anyway, yes Enterolab DOES come back negative for some people! Hope that helps someone on the fence about testing with them.

Did you get the casein test to, or just the basic stool testing with the malabsorption. Casein could be causing the malabsorption. Would you mind posting all of your scores. It could be possible that maybe u are just IGa deficient and still be reacting to gluten.

paula

Sally's Mommy Newbie
Sally's Mommy
Posted
  • Author
Would you mind posting all of your scores. It could be possible that maybe u are just IGa deficient and still be reacting to gluten.

paula

Sure--here are my results:

Fecal Antigliadin IgA 9 (Normal Range <10 Units)

Fecal Antitissue Transglutaminase IgA 9 Units (Normal Range <10 Units)

Quantitative Microscopic Fecal Fat Score 399 Units (Normal Range <300 Units)

Cow's Milk Protein Sensitivity Stool Test

Fecal anti-casein (cow's milk) IgA antibody 8 Units (Normal Range <10 Units)

Acute/Chronic Colitis Stool Test

Fecal lactoferrin Negative (Normal - Negative)

I did not get the gene testing done. Maybe I should have, but from what I've seen on here (and several months back there was a big discussion about this) pretty much everyone shows up as having genes that could predispose them to celiac disease. Right? :blink:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


holiday16 Enthusiast
holiday16
Posted

Just have to add that I called and talked with the nurse at Enterolab because so many people in my family got tested and the results would be borderline postive except for one person that was borderline negative. My question to her was if it was possible that showed a trend towards possible low IGA since it is genetic. She thought it might so I went to my Dr. and had my total IGA tested. It came back as about 67 the first time and 71 the second time I had it rechecked, with the lower end of normal being 80. So it was low, but not super low. It would be enough to skew the results of the test however. Even though my symptoms were so severe and I am super sensitive to gluten I only scored an 11 which didn't quite match up, but having low IGA explained why my numbers were so low and yet I improved so much.

Just another factor to consider as someone mentioned. I think celiacs are 10 times more likely to have low IGA if I remember right.

PeggyV Apprentice
PeggyV
Posted
Sure--here are my results:

Fecal Antigliadin IgA 9 (Normal Range <10 Units)

Fecal Antitissue Transglutaminase IgA 9 Units (Normal Range <10 Units)

Quantitative Microscopic Fecal Fat Score 399 Units (Normal Range <300 Units)

Cow's Milk Protein Sensitivity Stool Test

Fecal anti-casein (cow's milk) IgA antibody 8 Units (Normal Range <10 Units)

Acute/Chronic Colitis Stool Test

Fecal lactoferrin Negative (Normal - Negative)

I did not get the gene testing done. Maybe I should have, but from what I've seen on here (and several months back there was a big discussion about this) pretty much everyone shows up as having genes that could predispose them to celiac disease. Right? :blink:

I had the Enterolab test done also. I was in the normal range also, even though they told me my Fecal Fat score was 435. I had the gene test and they told me I had 2 gluten intolerant genes. HA-DQ 3,1 (subtype 9,5) they told me I had no active gluten sensitivity. I had been gluten free about 5 months and gluten light for years.

I have been gluten free almost a year now, and I do know that if I accidently consume gluten in even small amounts I bloat up, get D, get a sharp pain down my leg, get back aches and feel tired this lasts for days up to 2 weeks. I also break out in clusters of small blisters the itch terribly and turn bright red/purple, usually on my hands, arms, stomach, legs and recently foot. Despite what Entrolab says, I strongly suspect I have Celiacs and dont plan to change my diet. I cant even imagine what eating gluten again on purpose would do! I am not going to pursue a diagnosis because we are retiring in the next 5 years and will need to find insurance.

Good luck, I hope you find what is wrong.

Peggy

dally099 Contributor
dally099
Posted

i would say you are pretty borderline, talk with the nurse at entrolab and get her thoughts. their are pretty helpfull there, GOOD LUCK

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen...
    2. Scott Adams
      - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that y...
    3. Scott Adams
      - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid mul...
    4. Scott Adams
      - Scott Adams commented on Scott Adams's article in Multiple Sclerosis and Celiac Disease
      2

      Gluten-Free Diet Linked to Reduced Inflammation and Improved Outcomes in Multiple Sclerosis (+Video)

      Better to know late than never, and it is too bad they did not test you for it earlier!
    5. Scott Adams
      0

      Koikoi Trading Inc., Issues Allergy Alert on Undeclared Wheat and Sesame in FU ZHOU FISH BALL

  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,323
    • Most Online (within 30 mins)
      7,748
    bttyknight83
    Newest Member
    bttyknight83
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      IBS-D vs Celiac

      By Scott Adams · Posted

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Question

      By Scott Adams · Posted

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      IBS-D vs Celiac

      By trents · Posted

      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.