Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten And Joint/hip Pain


Quetico

Recommended Posts

Quetico Newbie

Hi Everyone,

I'm gluten-intolerant and have adhered to a gluten-free diet for three years. Prior to going gluten-free I was extremely ill. You all know the side-effects. I was on Celebrex for rheumatic conditions and always had an overall ache in my body.

One year ago I was diagnosed with hip-dysplasia and had reconstructive surgery at the Mayo. The recovery will take a year to get to 100% I'm 29, live an active lifestyle (as active as my hip allows) in a Colorado mtn. town. Anyway, my recovery is going very well. However, the other day I got glutened. I ate yogurt (Safeway's new O Organics brand) that was questionable. It might have been the natural flavor. I immediately had that stabbing feeling in my gut, and this was followed by severe pain in my hip, and it still hurt the next day, as did my stomach.

I'm wondering if the gluten I ate caused my joints to be inflammed and aggravated my hip pain.

Has anyone else had an experience where a bad joint has become worse following the ingestion of gluten?

I'm hoping it was just the gluten that caused my hip to hurt so bad, and not that my hip is just getting worse.

Any shared stories would be great!

Thanks!

Casey


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



horsegirl Enthusiast

Hi Casey,

My main symptoms associated with gluten are similar to fibromyalgia (painful muscles, fatigue, tender spots all over) & a general achiness & heaviness in my arms & legs. I also notice that my osteoarthritis pain is MUCH more severe in my joints when I've been glutened. I have arthritis in all 3 regions of my spine, my toes, fingers, & mild hip dysplasia too (no surgery recommended).

I'm sure some of the damage to my joints is from years of not knowing I was gluten intolerant.

So, it's certainly not unusual for you to have joint pain from gluten. Some people on this forum have also told me it could be soy intolerance too, which can cause joint pain.

But, if the pain doesn't go away after a little while as your body gets rid of the gluten, I think you

should contact your doctor, just to make sure it's not something else going on in your hip.

Good luck to you. I can relate to having orthopedic & neurological problems at a young age...

I'm only 36 now, & had back surgery when I was 20.

Keep in touch if you'd like!

Martha

Quetico Newbie

Hi Casey,

My main symptoms associated with gluten are similar to fibromyalgia (painful muscles, fatigue, tender spots all over) & a general achiness & heaviness in my arms & legs. I also notice that my osteoarthritis pain is MUCH more severe in my joints when I've been glutened. I have arthritis in all 3 regions of my spine, my toes, fingers, & mild hip dysplasia too (no surgery recommended).

I'm sure some of the damage to my joints is from years of not knowing I was gluten intolerant.

So, it's certainly not unusual for you to have joint pain from gluten. Some people on this forum have also told me it could be soy intolerance too, which can cause joint pain.

But, if the pain doesn't go away after a little while as your body gets rid of the gluten, I think you

should contact your doctor, just to make sure it's not something else going on in your hip.

Good luck to you. I can relate to having orthopedic & neurological problems at a young age...

I'm only 36 now, & had back surgery when I was 20.

Keep in touch if you'd like!

Martha

Hi Martha,

Still having hip pain today, so I'm going to the doc to get looked at and rule out any possible damage. No doubt the gluten made it worse. That was Sunday afternoon when I ate gluten and the pain started Now it been 2 days and the pain hasn't subsided. How long does the gluten seem to affect your joints?

I used to have the same kind of symptoms you mentioned...achiness, tender spots, very sensitive skin (it almost felt sunburnt). The list goes on...what a miracle to have discovered it was gluten and, other than my hip, I feel so healthy compared to before going gluten-free.

When did you discover you were gluten-intolerant/celiac? I started feeling ill when I was 20 and it took quite awhile before getting diagnosed. I remember when I was a junior in college and my body feeling like an 80 year old's. I still have that feeling sometimes, but not as bad.

Thanks Martha! Any other advice on dealing with your arthritis? Ever tried acupunture?

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,799
    • Most Online (within 30 mins)
      7,748

    Liss Drisk
    Newest Member
    Liss Drisk
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • RMJ
      The normal ranges can vary for the tissue transglutaminase and gliadin antibody celiac tests because the units aren’t absolute.  Could you please tell us what the normal ranges are for the laboratory used? If her tissue transglutaminase results are 10-fold above the normal range some would diagnose her on that alone.  Endomysial antibody ranges are more standardized, and a titer of 1:5 would usually be normal.  Might that be the normal range and not her result?  Her total immunoglobulin A is normal for her age. (This is tested because if low, then the other IgA tests might not be valid).
    • Samanthaeileen1
      Hello there! New to celiac community, although I have lots of family in it.  My two year old was just diagnosed with celiac disease based on symptoms and bloodwork.  symptoms (swollen belly, stomach hurting, gagging all the time, regular small vomit, fatigue, irritability, bum hurting, etc) she got tests at 18 months and her bloodwork was normal. She just got tested again at 2 1/2  because her symptoms were getting worse and these were her results :   Tissue Transglutaminase Ab, IgA 58.8 Unit/mL (High) Endomysial Antibody IgA Titer 1:5 titer (Abnormal)   Gliadin Antibody IgA < 1.0 Unit/mL Gliadin Antibody IgG 8.5 Unit/mL Immunoglobulin A 66 mg/dL Her regular pediatrician diagnosed her with celiac and told us to put her on the strict gluten free diet and that we wouldn’t do an endoscopy since it was so positive and she is so little (26lbs and two years old). I’m honestly happy with this decision, but my family is saying I should push and get an endoscopy for her. It just seems unnecessary and an endoscopy has its own risks that make me nervous. I’m certain she has celiac especially with it running in mine and my husbands family. We are now thinking of testing ourselves and our 5 year old as well.  anyways what would y’all recommend though? Should we ask for an endoscopy and a GI referral? (We are moving soon in 5 months so I think that’s part of why she didn’t refer us to GI)    
    • olivia11
      This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too color coding and baking G F first makes a lot of sense. This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too color coding and baking G F first makes a lot of sense. This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too color coding and baking G F first makes a lot of sense.   You are not confusing yourself  you have got it right. Thiamax (TTFD) plus a B-complex, and if you want benfotiamine, the Life Extension formula covers that at ~100 mg.
    • olivia11
      High fiber can definitely cause sudden GI distress especially if it’s a new addition but accidental gluten exposure can feel similar. Keeping a simple food/symptom log and introducing new gluten-free foods one at a time can really help you spot the pattern. This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too; color-coding and baking gluten-free first makes a lot of sense. This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too; color-coding and baking gluten-free first makes a lot of sense. This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too; color-coding and baking gluten-free first makes a lot of sense. This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too; color-coding and baking gluten-free first makes a lot of sense.
    • xxnonamexx
      sorry a bit confused so I should take my B complex along with Objective Nutrients Thiamax for TTFD but what about a Benfotiamine to take. The Life extensions contains Benfotiamine and Thiamine together or im confusing myself. I am trying to see if I take Thiamax what should I take for Benfotiamine. Thanks EDITING after further research I see ones water soluble ones fat soluble. So I guess 100MG as you suggested of Life Extension contains Benfotiamine and Thiamine Hydrochloride. and the Objective Nutrients Thiamax contains TTFD.     would work for me.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.