Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Symptoms And Monthly Cycle?

Guest kivmom3

By Guest kivmom3
in Coping with Celiac Disease

Recommended Posts

Guest kivmom3
Guest kivmom3
Posted

I've been gluten free now for a little over 3 months. I've had good days and bad days. Recently I've seen a GI doctor who specializes in the disease and had the biopsy to confirm what stage of the disease I am at. Well, i started zantac/zyrtec combo about 2 weeks now and have been gassy, bloated and just not feeling right. Tonight, I got the start of my period (25 days only!!!! is that even possible to be early?) and literally have been in the bathroom since 7:00 p.m. and it's now 9:00 and my symptoms are just calming down.

I keep a food diary and have had nothing today but steamed veggies, meat and fruits. I do not eat soy/rice or dairy. I had hot quinoa this morning and felt fine all day until 7:00 this evening.

I guess my question is can you feel glutened with menstruation?

I even called the doctor and I had to have the doctor on call not the speicalist I saw and he told me i have a stomach virus!!! yeah, I've heard that before.... Even when I told him i am a celiac. He was worthless.

Any suggestions/comments would be MUCH APPRECIATED!!!! :) Please help me feel like I'm going to be okay and this is normal!!

I should also mention that I am going to call the specialist AGAIN (I've been trying to get a hold of him for 2 days now) in the morning if I am not better...

Thanks for reading and helping,

Gg

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mommyagain Explorer
mommyagain
Posted

I have always had worse symptoms when my hormones were fluctuating. I have never been 100% gluten free while menstruating (I'm gluten free now, but I'm pregnant) so I can't say if I ever felt glutened when I knew I hadn't been.

Is there any chance that you got cross contaminated? Also, a lot of people don't react on the day that they consumed gluten, for some, it takes several days, especially if it was a small amount (like from cross contamination). No one really knows exactly why/how gluten does what it does, and it seems to affect all of us differently. Have you eaten anything that someone else prepared lately?

Have you checked every personal care item (makeup, shampoo, lotions, etc) that you use?

Did the gas and bloating start when you started the meds, or closer to when your period started?

We all hope you feel better soon. If it continues to happen every month around this time, you may want to talk to your gynecologist about a form of birth control that limits (or eliminates) your period altogether. Unless of course, you're planning on trying to get pregnant soon...

sickchick Community Regular
sickchick
Posted

ehhh periods. I get the worst nausea EVER, and diahrrea and have been known to have it coming out of everywhere all at once... it's the WORST misery ever :huh:

HouseKat Apprentice
HouseKat
Posted
I guess my question is can you feel glutened with menstruation?

In my experience, yes. I noticed years ago that my GI symptoms were worse during my periods. I've been gluten free for a month now, and was doing very well until my cycle started a few days ago. I'm experiencing the big D even though I have not had any gluten. (I also have Polycistic Ovary Disease, so my hormones are a bit more intense and out-of-whack than the average person.)

Cynbd Contributor
Cynbd
Posted

I have been gluten free for almost a year now (gluten-free since Nov. 2006), and I definitely feel glutened during my period. My cycle is getting shorter too. It is awful. I do try to take 2 Motrins every 4 hours so the cramps don't get really bad... I find that the cramps make the D worse... it's all that pressure... ugh...

hez Enthusiast
hez
Posted

I have d before my cycle. I spoke with my doc about this. My doc thinks gi symptoms are pretty common for alot of women. Started talking to my non-celiac friends and they experience a disruption in the routine as well. I have chalked it up to hormones.

Hez

confusedks Enthusiast
confusedks
Posted

Yes! I get really bad GI symptoms. I got it on saturday and I am still having a lot of tummy troubles. <_<

Kassandra

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


JNBunnie1 Community Regular
JNBunnie1
Posted

WHOO BOY do I get GI symptoms on my period!!! MY boyfriend even teases me about it at this point. And it's been happening for years now, I think it has a lot to do with the fact that the drug your system releases to cause the contraction of the uterus also affects the bowels. I've noticed that the more difficult a woman's cramps, the more diarrhea she gets. I take Ibuprofen and Imodium if I have something to do, if I'm at home then I just let it run it's course, once I'm a bit 'emptied out' the whole system calms down. Try a heating pad as well, and mint tea for anyone with nausea. I think the nausea is the stomach being affected by the cramps lower down, at least, my nausea goes away when my cramps go away. :)

Nancym Enthusiast
Nancym
Posted

Google dysmennorhea and see if that doesn't answer your question. :D

melmak5 Contributor
melmak5
Posted

Yes, this happened to me before I ever had any digestive woes, celiac or any other problems.

The day before I get my period I used to get D, like crazy.

(Mind you, before all of this, I was a once a day, normal bm girl.)

I also get pain in my lower abdomen and upper thighs.

I hope you are feeling better.

melmak5 Contributor
melmak5
Posted

I forgot to add...

Staying well hydrated is key. It really does help.

loco-ladi Contributor
loco-ladi
Posted

Well, let me into this line and my hand is raised WAY UP HIGH with a CMI for all of the above, lol...

Matter of fact.... Would bet ya all money I start in the next 12 hours, been tired, gassy, D, and so tired I have literally slept all day after having a restless night......

and early or even late, oh yes its possible, heck if it wasn't for my syptoms I would have no warning at all!

Guest thatchickali
Guest thatchickali
Posted

This is my first Gluten Free cycle.

Oh, I've felt horrible, not to mention the morning I started I woke up with a head cold too.

I feel like I've been hit by a truck........

loco-ladi Contributor
loco-ladi
Posted

Yuppers right on target, never was regular until i went gluten-free, this time of the month with the visit from aunt flo I often wonder if it was really worth it, then she leaves and I realize yes it is!

  • 3 years later...
julie041092 Newbie
julie041092
Posted

Girl, Im right there with you, at this very moment. I've had major diarrhea for a few days, and I started my period yesterday, so if the diarrhea is done by the time my period is done, I will actually be relieved that it is just because of my period, not actual gluten ingestion!

bridgetm Enthusiast
bridgetm
Posted

Girl, Im right there with you, at this very moment. I've had major diarrhea for a few days, and I started my period yesterday, so if the diarrhea is done by the time my period is done, I will actually be relieved that it is just because of my period, not actual gluten ingestion!

I'm with you there Julie. I never thought I'd be so excited to see our "monthly gift". Ironically, it tends to come within a few hours or a day of eating out or trying something new so I start to freak out and go over potential CC sources, etc., but then I get to the bathroom and it's "Oh, well, that's not so bad. Let's go eat."

LivesIntheSun Apprentice
LivesIntheSun
Posted

Hey,

I don't get bowel symptoms from gluten but I sure as hell do from my period! I get all windy a couple of days before and then on the first day of my period I get cramps that are out of this world and D, I often have to spend a few hours in the bathroom suffering. Yhe trick for me is to take some pain killers as SOON as i feel the SLIGHTEST cramping, because otherwise it gets out of control all of a sudden and I can't be out of the house, if you get me. :o

K8ling Enthusiast
K8ling
Posted

I ALWAYS feel glutened during my period. Even being pregnant occasionally I mistake normal pregnancy upset for being glutened.

I hope it gets better for you :)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Wheatwacked
      - Wheatwacked replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      12

      Blood Test for Celiac wheat type matters?

      no argument. Never take the pills sold for Nuclear events, except in a nuclear event when instructed to by authorities. Some of these go up to 130 milligrams per pill. 5000 times the strength of the dietary supplement. 130 times the safe upper limit. 130 mg = 130,000 mcg. Dietary supplements like Lugol's Solution and Liquid Iodine are 50 micrograms...
    2. trents
      - trents replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Seeking advice on potential gluten challenge

      Welcome to the celiac.com community, @JudyLou! There are a couple of things you might consider to help you in your decision that would not require you to do a gluten challenge. The first, that is if you have not had this test run already, is to request a "total IGA" test to be run. One of the reasons that celiac blood antibody tests can be negative...
    3. JudyLou
      - JudyLou posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Seeking advice on potential gluten challenge

      Hi there, I’m debating whether to consider a gluten challenge and I’m hoping someone here can help with that decision (so far, none of the doctors have been helpful). I have a history of breaking out in a horrible, burning/itchy somewhat blistering rash about every 8 years. This started when I was in my early 30’s and at that point it started at the ankle...
    4. marzian
      - marzian commented on Scott Adams's article in Diagnosis, Testing & Treatment
      5

      A Future Beyond the Gluten-Free Diet? Scientists Test a New Cell Therapy for Celiac Disease (+Video)

      This is very exciting news. The research lends itself to preventing the immune system in other autoimmune disorders from getting out of sorts. As someone with a compendium of autoimmune disorders I feel a bit of hope.
    5. Jmartes71
      - Jmartes71 posted a topic in Related Issues & Disorders
      0

      Medications

      Hello, just popped in my head to ask this question about medications and celiac? I have always had refurse reaction to meds since I can remember of what little meds my body is able to tolerate. I was taking gabapentin 300mg for a week, in past I believe 150? Any ways it amps me up not able to sleep, though very tired.However I did notice it helped with...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,145
    • Most Online (within 30 mins)
      7,748
    Marsu
    Newest Member
    Marsu
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Wheatwacked
      Blood Test for Celiac wheat type matters?

      By Wheatwacked · Posted

      no argument. Never take the pills sold for Nuclear events, except in a nuclear event when instructed to by authorities.  Some of these go up to 130 milligrams per pill. 5000 times the strength of the dietary supplement.  130 times the safe upper limit.  130 mg = 130,000 mcg. Dietary supplements like Lugol's Solution and Liquid Iodine are 50 micrograms per drop.  It takes 20 drops to reach the safe upper limit. In the US the Safe upper limit is 1100 mcg.  In Europe 600 mcg and in Japan 3000 mcg ( 3 mg).
    • trents
      Seeking advice on potential gluten challenge

      By trents · Posted

      Welcome to the celiac.com community, @JudyLou! There are a couple of things you might consider to help you in your decision that would not require you to do a gluten challenge. The first, that is if you have not had this test run already, is to request a "total IGA" test to be run. One of the reasons that celiac blood antibody tests can be negative, apart from not having celiac disease, that is, is because of IGA deficiency. If a person is IGA deficient, they will not respond accurately to the celiac disease blood antibody tests (such as the commonly run TTG-IGA). The total IGA test is designed to check for IGA deficiency. The total IGA test is not a celiac antibody test so I wouldn't think that a gluten challenge is necessary. The second is to have genetic testing done to determine if you have the genetic potential to develop celiac disease. About 30-40% of  the general population have the genetic potential but only about 1% actually develop celiac disease. So, genetic testing cannot be used to diagnose celiac disease but it can be used to rule it out. Those who don't have the genetic potential but still have reaction to gluten would not be diagnosed with celiac disease but with NCGS (Non Celiac Gluten Sensitivity).  Another possibility is that you do have celiac disease but are in remission. We do see this but often it doesn't last.
    • JudyLou
      Seeking advice on potential gluten challenge

      By JudyLou · Posted

      Hi there, I’m debating whether to consider a gluten challenge and I’m hoping someone here can help with that decision (so far, none of the doctors have been helpful). I have a history of breaking out in a horrible, burning/itchy somewhat blistering rash about every 8 years. This started when I was in my early 30’s and at that point it started at the ankles and went about to my knees. Every time I had the rash it would cover more of my body, so my arms and part of my torso were impacted as well, and it was always symmetrical. First I was told it was an allergic reaction to a bug bite. Next I was told it was eczema (after a biopsy of the lesion - not the skin near the lesion) and given a steroid injection (didn’t help). I took myself off of gluten about 3 weeks before seeing an allergist, just to see if it would help (it didn’t in that time period). He thought the rash looked like dermatitis herpetiformis and told me to eat some bread the night before my blood tests, which I did, and the tests came back negative. I’ve since learned from this forum that I needed to be eating gluten daily for at least a month in order to get an accurate test result. I’m grateful to the allergist as he found that 5 mg of doxepin daily will eliminate the rash within about 10 days (previously it lasted for months whether I was eating gluten or not). I have been gluten free for about 25 years as a precaution and recommendation from my doctor, and the pattern of breaking out every 8 years or so remains the same except once I broke out after just one year (was not glutened as far as I know), and now it’s been over 9 years. What’s confusing to me, is that there have been 3 times in the past 2 years when I’ve accidentally eaten gluten, and I haven’t had any reaction at all. Once someone made pancakes (they said they were gluten-free, they were not) and I ate several. I need to decide whether to do a gluten challenge and get another blood test. If I do, are these tests really accurate? I’m also concerned that I could damage my gut in that process if I do have celiac disease. My brother and cousin both had lymphoma so that’s a concern regarding a challenge as well, though there is a lot of cancer in various forms in my family so there may be no gluten connection there. Sorry for the ramble, I’m just doubting the need to remain gluten free if I don’t have any reaction to eating it and haven’t had a positive test (other than testing positive for one of the genes, though it sounds like that’s pretty common). I’d appreciate any thoughts or advice! 
    • Jmartes71
      Medications

      By Jmartes71 · Posted

      Hello, just popped in my head to ask this question about medications and celiac? I have always had refurse reaction to meds since I can remember  of what little meds my body is able to tolerate. I was taking gabapentin 300mg for a week,  in past I believe 150? Any ways it amps me up not able to sleep, though very tired.However I did notice it helped with my bloating sibo belly.I hate that my body is that sensitive and medical doesn't seem to take seriously. Im STILL healing with my skin, eye, and now ms or meningioma ( will know in April  which)and dealing with this limbo nightmare. I did write my name, address ect on the reclamation but im not tech savvy and not sure if went through properly. I called my city representative in Stanislaus County and asked if theres a physical paper i can sign for proclamation for celiac and she had no clue about what I was saying, so I just said I'll go back on website. 
    • Scott Adams
      Blood Test for Celiac wheat type matters?

      By Scott Adams · Posted

      I'm not saying that some celiacs won't need it, but it should be done under a doctor's supervision because it can cause lots of problems in some people.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.