Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Does Anyone Get The Night Sweats?


Janeti

Recommended Posts

Janeti Apprentice

The more I find out about Celiacs, the more scared I get. The past couple of days, I haven't been feeling well. Every once in a while I wake up sweating. Does this happen to anyone? And also can this be from a fungal overgrowth? Janet


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nmw Newbie

Night sweats are common in those w/ gluten issues. Mine lessened considerably since going gluten-free. They can also be hormone-related.

mtraezme Newbie

I used to get them all the time, but now that I've cut out the gluten, I haven't had any.

VioletBlue Contributor

I only get them now if I've been accidentally glutened. And oddly enough, since someone mentioned hormones, all the other signs of menopause have lessened significantly since going gluten free.

Janeti Apprentice

I ate those darned mini reeses peanut butter cups that oddly enough have gluten in it. I have been sick for 3 days. I can't believe what 2 little mouthfuls have done to me. The nightsweats also happened the first night that I was glutened with the candy, and a little bit the next night too. Now I have muscle pain. It seems that everytime I accidently get glutened, the reactions get worse and worse. Is it the same with anyone? Janet

~alex~ Explorer

Low blood sugar can cause night sweats. If you're sick with vomiting and/or diarrhea from a glutening or not eating much because you don't feel well, that could lower your blood sugar and cause the night sweats.

Vykt0r Rookie

....

I hate night sweats....

Yes, I get them every time I consume something with gluten. Wow, I didn't know other people got that too...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Joni63 Collaborator

I got them frequently before being diagnosed, but none since going gluten free. My Dr. and I both thought it was perimenopause, but it was definately from gluten.

JNBunnie1 Community Regular
I ate those darned mini reeses peanut butter cups that oddly enough have gluten in it. I have been sick for 3 days. I can't believe what 2 little mouthfuls have done to me. The nightsweats also happened the first night that I was glutened with the candy, and a little bit the next night too. Now I have muscle pain. It seems that everytime I accidently get glutened, the reactions get worse and worse. Is it the same with anyone? Janet

I used to get night sweats too. Also, even just a year ago I would get glutened and it would only last a few days, maybe a headache and some D. Now, it lasts a whole month! And I get symptoms I never had when I was sick, like I become lactose intolerant for a little while when I've been glutened, and that never happened before, usually dairy is soothing to me. So yeah, it definitely gets worse the longer you go.

wowzer Community Regular

I got the night sweats before going gluten free. They were one of the symptoms that went away when I went gluten free. I've been having them for the last 3 or 4 weeks. I'm not sure if it could be menopause now. I quit taking estradiol last March when they couldn't guarantee the generic form was gluten free. I didn't have any symptoms when I went off of them. I'm half wondering if I was even absorbing the pills. I did go to the doctor on Saturday and have a sinus and upper respitory infection. So it could be that too I suppose.

Centa Newbie

My problems with wheat and milk showed up during the time in which I was perimenopausal, so it has been impossible to know which was setting off night sweats.

I had a very definite correlation between night sweats and being fatigued, however. That could trace back either to celiac or to menopause issues, or to both at the same time.

When I got rest I wouldn't have sweats, when I was fatigued (I have a job that keeps me near that) I would tend to have them.

One thing that definitely helped me get deeper sleep, and so reduce the sweating was getting exercise, especially in the morning. There were some news articles about the correlation between better sleep and exercise in the first half of the day, I tried it, and it did have an effect for me.

But the sweats could have been due to menopausal issues, not the celiac. I've been as strictly off wheat as I can be and am a year and a half into menopause, and don't have sweats....occasionally a "warmth surge" at night, where I have to kick all the covers off, and know that I'm hot, when I'm overtired, but that's it.

I had the same correlation between fatigue and hot flashes as well, during the time I was going through the change. I especially "flashed" and had night sweats when I was coming down with something, like a cold or the flu.

hathor Contributor

I've gone through menopause (had the 1 year anniversary of my last period in September). I'm still getting bad night sweats and some hot flashes during the day. I was hopeful it was a function of inflammatory responses to food intolerances. I'd read that estrogen acts as an antiinflammatory; once it goes away, the body relies on a difference chemical which isn't as strong and whose levels are at their lowest in the middle of the night.

So, I wonder if I'm still reacting to assorted glutenings I've had since going gluten-free at the beginning of the year. Or if I'm intolerant to something else that is still in my diet. (Yes, I've tried a food diary. Doesn't seem to make any difference what I eat. I get the night sweats all the time now).

Can gluten mess up your hormones for a long period?

I had hoped going off the soy would help, and at first it seemed to. But now I'm back where I was.

Any ideas as to the most logical thing to take out of my diet now to see if that does it?

UR Groovy Explorer

Hmmmm...

I started waking up in the early morning (like 4am) totally sweating maybe a month ago. How weird. I'm only 40. I wonder if I'm perimenopausal - my cycle has been really off lately.

I'll be watching this thread - night sweats are totally new for me.

I've been gluten-free for 10 months, so it can't be gluten.

Sorry to be "all about me" on this post. It's just very strange.

sickchick Community Regular

yes...

nmw Newbie
I'm only 40. I wonder if I'm perimenopausal - my cycle has been really off lately.

I'll be watching this thread - night sweats are totally new for me.

I've been gluten-free for 10 months, so it can't be gluten.

40 can be a very normal time to start menopause. Menopause can take up to 10 years to fully manifest, and periods stop. You are considered post-menopausal when your periods have completely ceased for one year.

All of my gluten issues and menopausal symptoms hit hard right when I turned 40. Because it all started at once, my doctor and I assumed it was all menopause-related. Over a year later I identified that gluten was a major problem, got rid of it, and my meno symptoms calmed down significantly.

If you haven't seen your gyno lately, now would be a good time to go. Weird periods and night sweats are worth mentioning.

Renee864 Newbie

Yes!

Since I've been gluten free when I accidently eat something with gluten in it my reactions are pretty severe. I know it's frustrating sometimes. You have to be so careful and sometimes its so hard! I mostly buy products that say "gluten free"

I ate those darned mini reeses peanut butter cups that oddly enough have gluten in it. I have been sick for 3 days. I can't believe what 2 little mouthfuls have done to me. The nightsweats also happened the first night that I was glutened with the candy, and a little bit the next night too. Now I have muscle pain. It seems that everytime I accidently get glutened, the reactions get worse and worse. Is it the same with anyone? Janet
tmk Explorer
I ate those darned mini reeses peanut butter cups that oddly enough have gluten in it.

sorry to be off subject here -- these have gluten in it? i thought reeses pb cups were gluten-free? so the ones in moose track ice cream have gluten in too??!

to be more on subject -- i get night sweats ALL the time -- not sure what that's about.

Anyways -- thanks for the info on the reeses!! :)

Calle Rookie
Hmmmm...

I started waking up in the early morning (like 4am) totally sweating maybe a month ago. How weird. I'm only 40. I wonder if I'm perimenopausal - my cycle has been really off lately.

I'll be watching this thread - night sweats are totally new for me.

I've been gluten-free for 10 months, so it can't be gluten.

Sorry to be "all about me" on this post. It's just very strange.

I'm 45 and I'm in perimenopause. My cycle is all over the place too. I know this is getting into a whole other topic, but for the past 1 1/2 years I have been using bioidentical hormones (natural) to help with menopause. When your in menopause most of the symptoms you get are because of progesterone deficencies. It's all about balancing the hormones and it can be tricky. I'm constantly tweaking the creams I use. I too get warm at night and have to throw the covers off. I used to get night sweats years ago, but I don't any longer.

Janeti Apprentice

Hello TMK,

I called Hersheys, and they said that the normal sized ones are gluten free, but not the minis. That afternoon when I ate only 2, a couple of hours later I had the nausea, that night I woke up sweating, and the next day in the bathroom with the big D....hardly worth it over a little bite of chocolate. That was last Wednesday, just last night I started to feel a little better. Crazy, right? :o

tmk Explorer
I called Hersheys, and they said that the normal sized ones are gluten free, but not the minis.

wow -- thanks for that info -- i would've just assumed b/c the large ones were gluten-free, so were the small ones -- that's so weird that one would have it and not the other! hope you're feeling better soon!

thanks again! :)

UR Groovy Explorer
40 can be a very normal time to start menopause.

...

If you haven't seen your gyno lately, now would be a good time to go. Weird periods and night sweats are worth mentioning.

I'm 45 and I'm in perimenopause.

...

Thanks.

I'm thinking now that this is probable. I'll check it out with my doc, but I've also decided to make an appointment with a holistic practitioner in the next couple months about other stuff too. We'll see what they come up with.

Thanks again.

grommet Newbie

I too had terrible night sweats and itching. Used to make myself bleed sometimes in the night with scratching my legs in my sleep.

I too thought it was perimenopause along with other things that were happening. All gone now I'm gluten-free.

(undiagnosed)

A tiny tiny bit of cross contamination means its like taking a tranquiliser at night but any more than that and the sweats return. Twitchy legs at bed time first (used to think it was caffeine) then the night sweats. Not too bad sometimes but a nightmare when you've put the fake tan on!

mftnchn Explorer

I'm intrigued that night sweats can be celiac related. I get them too, but not too often now. I thought it was/is hormone related. I am starting the menopause track, am now irregular.

Just another possibility: lyme disease. Night sweats are very much a part of the symptom spectrum, especially with babesia. Check out the lyme disease thread which has a good symptom list, as you might want to eliminate this possibility. I had a period of time early on during lyme treatment where I had a lot of night sweats.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Mark Conway's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Have I got coeliac disease

    2. - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Seeking advice on potential gluten challenge

    3. - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Seeking advice on potential gluten challenge

    4. - Wheatwacked replied to Mark Conway's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Have I got coeliac disease

    5. - Jmartes71 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Gluten tester

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,152
    • Most Online (within 30 mins)
      7,748

    SinnamonToasty
    Newest Member
    SinnamonToasty
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      @Mark Conway, here is an article outlining the various tests that can be used to diagnose celiac disease. By far, the most popular one ordered by physicians is the tTG-IGA. But almost all of these tests are known by different names so the terminology will vary from place to place and lab to lab. The article gives common variant names for each test.  In addition to IGA tests there are IGG tests which are particularly useful in the case of IGA deficiency.  
    • JudyLou
      Thank you so much @knitty kitty! My feet aren’t dry or ashy and I don’t have a rash that gets scaly. It’s like very itchy/burning vesicles that are symmetrical - on both arms, both legs, etc. They actually feel better in direct sunlight as long as it isn’t really hot or I’m not exercising outside, but gets worse if I sweat (especially if the area is covered up). It’s not usually on the outside of my elbows and knees which seems more typical of dermatitis herpetiformis (unless it spreads there). It tends to first hit the inside of those areas. Interestingly, twice the rash broke out soon after eating an unhealthy meal and having an alcoholic drink (I only drink a few times a year, no more alcohol content than a glass of wine).  So I wonder if there is a connection. I’m halfway considering doing a gluten challenge for a few months to see what happens, knowing I can stop if I have any symptoms, and asking for a full celiac disease panel at the end. I really appreciate your thoughts! 
    • knitty kitty
      Welcome, @JudyLou, Your rash sounds very similar to the one I experienced.  Mine was due to a deficiency in Niacin B3, although I had deficiencies in other nutrients as well.  Celiac disease causes malabsorption of all the essential nutrients, but eating a poor diet, taking certain medications, or drinking alcohol can result in deficiency diseases outside of Celiac, too.  Symptoms can wax and wane depending on dietary intake.  I knew an alcoholic who had the "boots" of Pellagra, which would get worse when he was drinking more heavily, and improve when he was drinking less.   Niacin deficiency is called Pellagra.  Symptoms consist of dermatitis, diarrhea, dementia, and death (the four D's).  A scaly rash on the feet and hands and arms are called the "boots" and "gloves" of Pellagra.  Darkened skin around the neck exposed to the sun is Casal's necklace.  Poor farmers with niacin deficient diets were called "red necks" because of this.    Does your rash get worse if you're in the sun?  Mine did.  Any skin exposed to the sun got blistered and scaly.  Arms, legs, neck, head.  Do you have dry, ashy skin on your feet?  The itchiness was not only from the rash, but neuropathy.   My doctors were clueless.  They didn't put all my symptoms together into the three D's.  But I did.  I'd learned about Pellagra at university.  But there weren't supposed to be deficiency diseases anymore in the developed world.  Doubtful it could be that simple, I started supplementing with Niacin and other essential nutrients.  I got better.   One of Niacinamide functions is to help stop mast cells from releasing histamine.  Your allergist gave you doxepin, an antihistamine which stops mast cells from releasing histamine.   Since you do have a Celiac gene, staying on the gluten free diet can prevent Celiac disease from being triggered again.   Interesting Reading: These case studies have pictures... Pellgra revisited.  https://pmc.ncbi.nlm.nih.gov/articles/PMC4228662/ Steroid-Resistant Rash With Neuropsychiatric Deterioration and Weight Loss: A Modern-Day Case of Pellagra https://pmc.ncbi.nlm.nih.gov/articles/PMC12532421/#:~:text=Figure 2.,(right panel) upper limbs.&text=The distribution of the rash,patient's substantial response to treatment.   Cutaneous signs of nutritional disorders https://pmc.ncbi.nlm.nih.gov/articles/PMC8721081/#:~:text=Additional causes of yellow skin,the clinical features of Kwashiorkor.   Hello, @Staticgypsy, I would not recommend cutting so many nutritious foods out of ones diet.  Oxalates can cause problems like kidney stones, but our bodies can process oxalates out of our systems with certain vitamins like Vitamins A and D and Pyridoxine B 6.   People with Celiac disease are often low in fat soluble vitamins A and D, as well as the water soluble B vitamins like Pyridoxine B 6.  Focus on serving your granddaughter nutrient dense meals to ensure she gets essential vitamins and minerals that will help her grow. Micronutrient inadequacy and urinary stone disease: an analysis of the National Health and Nutrition Examination Survey 2007-2018 https://pubmed.ncbi.nlm.nih.gov/36976348/ Multivitamins co-intake can reduce the prevalence of kidney stones: a large-scale cross-sectional study https://pubmed.ncbi.nlm.nih.gov/38564076/
    • Wheatwacked
      This doctor is obviously under educated about Celiac Disease. Deficiencies that can cause oral thrush (Candidiasis) mouth ulcers: Thiamine B1 B12 Folate Zinc Vitamin C B2 B6 Iron Malabsorption Syndrome is often co-morbid with Celiac Disease causing multiple deficiencies of the essential vitamins and minerals.  Low or deficient  Vitamin D is almost always found in undiagnosed Celiac Disease. "Over 900 genes have been reported as regulated by vitamin D"  Possible Role of Vitamin D in Celiac Disease Onset  "The overall prevalence rate of vitamin D deficiency was 41.6%, with the highest rate seen in blacks (82.1%), followed by Hispanics (69.2%)."    Prevalence and correlates of vitamin D deficiency in US adults
    • Jmartes71
      I saw the thing for testing for gluten when at public places.I absolutely love but I wonder if they would come up with a bracelet or necklace that can detect gluten in the air.I would LOVE that, i know i get debilitating migraine from smelling gluten wheat what have you, all I know is when I go into places like Chevron- gluten Subway, migraine, Costco that food smell of nasty gluten- migraine and same with Walmart subway.I absolutely HATE im that sensitive, my body reacts.Sadly medical hasn't taken core issue of celiac being an issue considering glutenfree ever since 1994 and in their eyes not because they didn't diagnose me. I am and wish I wasn't. If there was a detector of gluten in the air it would make a world of difference. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.