Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ladies, Celiac & Menstrual Cycles?

dbuhl79

Recommended Posts

dbuhl79 Contributor
dbuhl79
Posted

I've seen other people mention that there menstrual cycle changed when they were struck with Celiac Disease or as part of their symptoms.

Along wth the onset of these odd digestive symptoms, mine has also changed.

I'm curious, what have doctors told you about this connection? Is it simply that your body is so thrown off by this disease that it effects EVERYTHING? My doctors didn't seem to care or have much concern that my cycle has altered along with this.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Nadtorious Rookie
Nadtorious
Posted

My period disappeared for almost 4 years while I was really sick, and came back as soon as I went gluten free (within a week!). My doctor actually used this to diagnose me first (before blood tests, endoscopy, and diet challenge). Now that I've been gluten free for close to 2 years, my period has finally kind of normalized-I can somewhat predict it and my cramps aren't as bad as they were pre-celiac days.

Nadia :)

Racheleona Apprentice
Racheleona
Posted

Hi dbuhl79,

Being that I haven't had my period for almost 2 years now (which happened after I lost 30 pounds in 2 months, and had at first started losing weight intentionally due to only eating 500 cals/day, and then continued to lose without trying). After doing labs my doctor said that my hormones are now out of wack and are very low. This could be due to my dramatic weight loss, or due to malnutrition. I have been gluten-free for 2 months now, and still no period though.

Rachel

LynnR Explorer
LynnR
Posted

My periods has always been very irregular. I also have Endometrosis. So when they completely stopped, I wasn't too concerned at first. I just thought it was due to Hormonal Imbalance.

When I went to see a new doctor this week, one of his questions was if I was getting my period. At the same time he was checking me for Anemia. He told me that when someone is really Anemic their periods will stop also because you don't have enough iron in your system to produce them.

Guest ~wAvE WeT sAnD~
Guest ~wAvE WeT sAnD~
Posted

Hi, Ladies!!

Before I went on the gluten-free diet, my periods were irregular, even in high school. After a month on the diet, I was consistent (this was before I started taking birth control pills).

--Stay healthy!!

ps. Lynn, how long have you been gluten-free?

LynnR Explorer
LynnR
Posted

Jill,

I haven't been gluten-free for too long. Only about 2 weeks.

stef-the-kicking-cuty Enthusiast
stef-the-kicking-cuty
Posted

Hi there,

before i went glutenfree i had really painful periods. Sometimes i couldn't do anything but lay in bed. And they were irregular too, but only sometimes. I'm glutenfree since July this year now and as soon as i started the next period in August was so nice. Oh, it was like heaven. No pain at all. I almost didn't even recognize it already started. The only thing that bugs me a little, is, that it's a little bit late each month. But at least it's late regualar now pretty much. Always around day 33 or 34.

Lots of greetings, Stef

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


stef-the-kicking-cuty Enthusiast
stef-the-kicking-cuty
Posted

Oh and i forgot to tell. All periods since then were without pain at all.

Lots of greetings, Stef

Guest ~wAvE WeT sAnD~
Guest ~wAvE WeT sAnD~
Posted

Lynn--

Ok. ;) Maybe in a couple of weeks, or whenever you normally start, you may notice a difference. I'm not an expert, I just speak from personal experience.

Keep everyone updated on your progress--this disease can be tough at times, but I know you'll make it!!! This board is extremely supportive :D

Sincerely,

dbuhl79 Contributor
dbuhl79
Posted
  • Author

Thanks ladies! Ever since my symptoms have arose, I've noticed a change in cycle. Its a relief to discover others have too. Particularly since my doctors could care less! :)

Guest Lindam
Guest Lindam
Posted

:( Ever since I was diagnosed, my periods have been very weird. They were always 2-3 days tops, and some discomfort, but nothing Tylenol wouldn't handle. Now they can last up to 10 days, the cramping starts at least a week before it starts, all the PMS symptoms are there also for a week prior. My gyne is concerned that everything is changing. It has something to do with celiac disease being an autoimmune disease and our periods throw everything off. I would suggest talking to your gyne about it.

Good Luck!

Linda

darlindeb25 Collaborator
darlindeb25
Posted
<_< now when i think back--i am wondering if celiacs had anything to do with my cycles---i was quite regular, but had very heavy periods--i was afraid to leave home the 1st 3 days----but, as is true of many celiac women, i went through menopause early--i am 49 now and havent had a cycle now for 3 years and that's ok :P --my were bad enough--i deserve a break :D deb
Rikki Tikki Explorer
Rikki Tikki
Posted

As I look back I can't help but wonder if the celiac was causing a lot of gynecological problems. I was always very irregular, couldn't get pregnant and took fertility drugs for over two years in order to get pregnant with my first two children. My periods were also very irregular and heavy and I had awful cramps since I was a teenager. It does make me wonder.........

By the way does anybody know how to spell check before I post??

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      0

      Celiac Diner Sues Olive Garden After Gluten Mix-Up Leads to Medical Emergency (+Video)

    2. knitty kitty
      - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed. Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
    3. knitty kitty
      - knitty kitty replied to Jordan Carlson's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Fruits & Veggies

      Hello, @Jordan Carlson, So glad you're feeling better. Tecta is a proton pump inhibitor. PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12. Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the...
    4. knitty kitty
      - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1. There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine. In Thiamine deficiency, the body...
    5. Scott Adams
      0

      Inmate with Celiac Disease Wins $630,000 After Jail Denies Gluten-Free Food

  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,033
    • Most Online (within 30 mins)
      7,748
    DeeDeeS
    Newest Member
    DeeDeeS
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Positive biopsy

      By knitty kitty · Posted

      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed.   Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
    • knitty kitty
      Fruits & Veggies

      By knitty kitty · Posted

      Hello, @Jordan Carlson, So glad you're feeling better.   Tecta is a proton pump inhibitor.  PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12.  Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the production of digestive juices (stomach acids).  This results in foods not being digested thoroughly.  If foods are not digested sufficiently, the vitamins and other nutrients aren't released from the food, and the body cannot absorb them.  This sets up a vicious cycle. Acid reflux and Gerd are actually symptoms of producing too little stomach acid.  Insufficient stomach acid production is seen with Thiamine and Niacin deficiencies.  PPI's like Tecta also block the transporters that pull Thiamine into cells, preventing absorption of thiamine.  Other symptoms of Thiamine deficiency are difficulty swallowing, gagging, problems with food texture, dysphagia. Other symptoms of Thiamine deficiency are symptoms of ADHD and anxiety.  Vyvanse also blocks thiamine transporters contributing further to Thiamine deficiency.  Pristiq has been shown to work better if thiamine is supplemented at the same time because thiamine is needed to make serotonin.  Doctors don't recognize anxiety and depression and adult onset ADHD as early symptoms of Thiamine deficiency. Stomach acid is needed to digest Vitamin C (ascorbic acid) in fruits and vegetables.  Ascorbic acid left undigested can cause intestinal upsets, anxiety, and heart palpitations.   Yes, a child can be born with nutritional deficiencies if the parents were deficient.  Parents who are thiamine deficient have offspring with fewer thiamine transporters on cell surfaces, making thiamine deficiency easier to develop in the children.  A person can struggle along for years with subclinical vitamin deficiencies.  Been here, done this.  Please consider supplementing with Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) which helps immensely with dysphagia and neurological symptoms like anxiety, depression, and ADHD symptoms.  Benfotiamine helps with improving intestinal health.  A B Complex and NeuroMag (a magnesium supplement), and Vitamin D are needed also.
    • knitty kitty
      Positive biopsy

      By knitty kitty · Posted

      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1.   There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine.   In Thiamine deficiency, the body burns its stored fat as a source of fuel.  That fat pad between the aorta and digestive system gets used as fuel, too. Ask for an Erythrocyte Transketolace Activity test to look for thiamine deficiency.  Correction of thiamine deficiency can help restore that fat pad.   Best wishes for your recovery!   Interesting Reading: Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pubmed.ncbi.nlm.nih.gov/31089433/#:~:text=Affiliations,tissue and results in SMAS.  
    • trents
      Positive biopsy

      By trents · Posted

      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an attack on the villous lining of the small bowel. This is the section of the intestines where all our nutrition is absorbed. It is made up of billions of tiny finger-like projections that create a tremendous surface area for absorbing nutrients. For the person with celiac disease, unchecked gluten consumption generates inflammation that wears down these fingers and, over time, greatly reduces the nutrient absorbing efficiency of the small bowel lining. This can generate a whole host of other nutrient deficiency related medical problems. We also now know that the autoimmune reaction to gluten is not necessarily limited to the lining of the small bowel such that celiac disease can damage other body systems and organs such as the liver and the joints and cause neurological problems.  It can take around two years for the villous lining to completely heal but most people start feeling better well before then. It's also important to realize that celiac disease can cause intolerance to some other foods whose protein structures are similar to gluten. Chief among them are dairy and oats but also eggs, corn and soy. Just keep that in mind.
    • pothosqueen
      Positive biopsy

      By pothosqueen · Posted

      26F!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.