Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Endoscopy


jkmunchkin

Recommended Posts

jkmunchkin Rising Star

I wasn't sure where to post this, since it's not really celiac related.

I think I may have H Pylori (again. I had it a few years ago); and I know they will want to do an endoscopy to confirm if I have it.

The only problem is, I had an endoscopy done in December to see how my small intestine is healing from the celiac. Is it ok to have another endoscopy 10 months later? I know they suggest not doing them to often.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dlp252 Apprentice

I had 3 scopes done last year. Two of them were only a week apart, and the third was 3 months after the second one. I don't think there is any time limit on how often...while it's a fairly safe procedure, the only issues would be the issues that you'd have on any procedure whether you have one or many...sedation, risks of injury, etc. I'm pretty sensitive to the sedation, but even that wasn't a problem having them so close together.

happygirl Collaborator

I've unfortunately had one endo, one colonoscopy, and one joint endo/colonoscopy within a 6 month time frame, so as long as it is medically necessarily (which it sounds like it is), I would think it is ok.

Good luck, Jillian, and I hope they definitively figure out the problem.

~alex~ Explorer

I had a second endoscopy about three months after I was diagnosed with an endoscopy/biopsy. Everything went fine and it probably went smoother than the first endoscopy.

It is probably wise to limit the endoscopies since there are some risks to them but if you doctor thinks the benefits outweigh the risks, than it is probably okay to go ahead with it. I'm not sure, but I don't think already having an endoscopy makes a subsequent one more dangerous. Maybe just the more endoscopies you have, the more likely you are to experience the small probability risks.

I hope you get better quickly from the H. Pylori.

jkmunchkin Rising Star

Thanks guys!

I'm not positive it's H Pylori again, because the pain isn't as bad as last time. But last time I also was in constant pain from the undiagnosed celiac, so I think that made it worse.

Now my other concern is the last time I took the medication for it, I had an allergic reaction 1 week in (you're supposed to take it for 2 weeks), but I have to assume there is more than 1 treatment available if it is infact H Pylori.

I left a message for my doctor so we'll see what the outcome is.

Thanks again.

dlp252 Apprentice

Yeah, I had to take the Prevpac and was afraid of reaction, and while I was doing a bit of research I did see that there were some other things that they could prescribe, but that this was the most effective...sorry I don't remember what it was now. I'll check to see if I kept any links. Fortunately for me I was okay with it.

dlp252 Apprentice

Well, it looks like I didn't keep much specific about treatments, but did see this from one of the links I kept:

How is H. pylori treated?

H. pylori is difficult to eradicate from the stomach because it is capable of developing resistance to commonly used antibiotics. Therefore, two or more antibiotics usually are given together with a PPI and/or bismuth containing compounds to eradicate the bacterium. (Bismuth and PPIs have anti-H. pylori effects.) Examples of combinations of medications that are effective are:

a PPI, amoxicillin (Amoxil) and clarithromycin (Biaxin)

a PPI, metronidazole (Flagyl), tetracycline and bismuth subsalicylate

These combinations of medications can be expected to cure 70%-90% of infections. However, studies have shown that resistance of H. pylori (failure of antibiotics to eradicate the bacteria) to clarithromycin is common among patients who have prior exposure to clarithromycin or other chemically similar macrolide antibiotics (such as erythromycin). Similarly, H. pylori resistance to metronidazole is common among patients who have had prior exposure to metronidazole. In these patients, doctors have to find other combinations of antibiotics to treat the H. pylori. Antibiotic resistance is another reason why antibiotics should be used carefully and judiciously for the right reasons, and indiscriminate use of antibiotics for improper reasons should be discouraged.

Some doctors may want to confirm eradication of H. pylori after treatment with a urea breath test or a stool antigen test, particularly if there have been serious complications of the infection such as perforation or bleeding in the stomach or duodenum. Endoscopic biopsies to determine eradication of the bacteria are not necessary, and blood tests are not good for determining eradication since it takes many months for the antibodies to H. pylori to decrease. The best tests for determining eradication are the breath and stool tests discussed previously. Patients who fail to eradicate H. pylori with treatment are retreated, often with a different combination of medications.

Here is the site where that came from:

Open Original Shared Link


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jkmunchkin Rising Star

Thanks so much Donna! Yeah that Prevpac is what I took the first time. The doctor thought I had an allergic reaction to the penicillin, even though I never was allergic to it before. He thinks it could have been the extremely high dose of it. Which makes sense. Then again this was also the GI that noted my small intestine looked "funny" but didn't take a biopsy on it despite my telling him that I am pretty much always sick, hence I went undiagnosed with the celiac for about another year and a half. (but I digress - lol). I now have a much smarter GI. Hehe!

I may be overreacting too, and it could just be a stomach bug. It doesn't necessarily feel like that is what it is, but you never know.

On a seperate note, Donna did you move?

dlp252 Apprentice

Grrrr on the clueless doctors, lol. Glad you've got a good one now.

Move? Not my home, but just moved at my office.

Fiddle-Faddle Community Regular

Is an endoscopy the only way to diagnose h. pylori? I thought there were other, less invasive ways to diagnose it.

jkmunchkin Rising Star
Is an endoscopy the only way to diagnose h. pylori? I thought there were other, less invasive ways to diagnose it.

Well you can have a blood test done, but I think once you have H Pylori it always shows up in blood tests. Not positive about that but pretty sure.

I think they can also do a stool test, but the meds for it are pretty intense and so I think they generally like to do a scope to 100% confirm you have it.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Florence Lillian replied to Jay Heying's topic in Gluten-Free Foods, Products, Shopping & Medications
      5

      Celiac friendly probiotics

    2. - slkrav posted a topic in Introduce Yourself / Share Stuff
      0

      Gluten free beer ?

    3. - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen

    4. - Mari replied to KathyR37's topic in Coping with Celiac Disease
      5

      New here

    5. - Colleen H replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,881
    • Most Online (within 30 mins)
      7,748

    Dan Bryst
    Newest Member
    Dan Bryst
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Florence Lillian
      In response to your questions regarding probiotics.  I have had Celiac for 40 years.  Stomach issues: digestion, IBS to chronic constipation, bloat after eating anything.  I was unable to eat a healthy variety of foods, tried probiotics supplements - some made me worse, others made no difference.  After reading about people with Crones, IBS, etc, who made their own probiotics I started making Milk Kefir: not water Kefir. There are 10 probiotics in milk KEFIR. After 3 weeks I was able to eat more, no gas, no IBS.  If you have a computer just ask for videos on making milk Kefir. I branched out and make my own Kombucha for even more probiotics. I do not make my yogurt because there are only about four probiotics in that. I started this when I was 82 and I still make my own Kefir and Kombucha. My stomach issues were fixed with the Milk Kefir alone. If you decide to try making it, make certain you order MILK GRAINS. The finished product tastes a bit like Buttermilk. I hope this helps in your journey to good health.
    • slkrav
      Help me out here. Lauren Dam gluten-free beer from Spain is listed as gluten free. Yet its made from Barley Malt. I thought barley and any form had gluten. Anybody have any more information about it?
    • cristiana
      Ferritin levels.  And see what your hemoglobin looks like too, that will tell you if you are anemic?  You can have 'low normal' levels that will not be flagged by blood tests.  I had 'low normal' levels, my lab reading was. c12, just over what was considered normal, but I had small benign lesion on my tongue, and sometimes a sore mouth, and a consultant maxillofacial ordered an iron infusion for me as he felt my levels were too low and if he  raised them to 40, it would help.   Because you are not feeling 100% it might be worth looking at your levels, then discussing with your doctor if they are low normal.  But I stress, don't supplement iron without your levels being monitored, too much is dangerous.
    • Mari
      Hi Katht -  I sympathize with your struggles in following a gluten-free diet and lifestyle. I found out that I had Celiac Disease a few months before I turned 70. I just turned 89 and it has taken me almost 20 years to attain a fairly normal intestinal  function. I also lost a lot of weight, down to 100 lb. down from about 140 lb. What Trents wrote you was very true for me. I am still elimination foods from my diet. One person suggested you keep a food diary and that is a good idea but it is probably best just to do an elimination diet. There are several ne and maybe one for celiacs. I used one for a while and started with plain rice and zucchini and then added back other foods to see if I reacted or not. That helped a great deal but what I did not realise that it would only very small amounts of some foods to cause inflammation in my intestine. Within the last few years I have stopped eating any trace amounts of hot peppers, corn and soy(mostly in supplements) and nuts, (the corn in Tylenol was giving me stomach aches and the nuts were causing foot pains). Starting an elimination diet with white rice is better than brown rice that has some natural toxins. In addition it is very important to drink sufficient plain water. You can find out how much to drink for your height and weight online. I do have difficulty drinking 48 ounces of water but just recently have found an electrolyte supplement that helps me stay well hydrated, Adding the water and electrolytes may reduce muscle cramps and gag spams you wrote about. . Also buy some anti-gluten enzyme capsules to take with meals. I use GliadinX advertised here. These are a lot of things to do at one time as they reflect my 20 years of experience. I hope you do what you can manage to do over time. Good luck and take care.
    • Colleen H
      Yes thyroid was tested.. negative  Iron ...I'm. Not sure ... Would that fall under red blood count?  If so I was ok  Thank you for the detailed response..☺️
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.