Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Low Vitamin D Levels


horsegirl

Recommended Posts

horsegirl Enthusiast

I recently asked my doctor to test my vitamin B12 and vitamin D levels since I'm "free" of several

different major food groups now. My B12 was in the "normal" range, but the D was quite low

("optimum functioning" is 35, & I was 18). The doctor recommended bumping up my intake to 1200 units daily. But how do I do that? Supplements? Certain foods?

Any suggestions?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dlp252 Apprentice

Mine was also just tested and found to be below optimal. They're having me take a vitamin D3 supplement with 50,000 IU of Vitamin D3...I'm taking one of those a day for a month...don't know what happens after that though, I need to ask tomorrow. She said the idea behind the megadose is to "flood the receptors" whatever that means. I don't think I could get that much with just food alone. You might call your doctor and ask about the best way to get it.

hathor Contributor

I believe someone recently posted a link to an article about how D3 supplements are better than the usual D2 ones.

A number of foods are supplemented with D. I see my hemp milk has D2 and my orange juice has D3.

I wouldn't recommend taking more than what your doctor personally prescribes. You don't want to overdose.

Do you get much sunlight? This is the way humans have traditionally gotten their Vitamin D. Here's an article I recently read:

Open Original Shared Link

Nancym Enthusiast

This site has some good information: Open Original Shared Link

This cardiac doctor blogs about the importance of D3 and has specific recommendations on which sort to take in this posting: Open Original Shared Link

JNBunnie1 Community Regular

I'd try an hour outside in the sun every day. Of course, some of us don't have the time for that (ha ha) but it's a noble idea.

Ursa Major Collaborator

Unless you live quite near the equator, you won't get enough vitamin D through sun in the winter, no matter how long you stay in the sun.

The best and healthiest source of vitamin D is still good old cod liver oil. And there is a good tasting one now that even tastes good, not fishy. I am taking Carlson cod liver oil, and went from 24 to 150 within a year, and had to cut back, as it was getting too high. Optimal is about 120.

Cod liver oil gives you also high doses of omega 3 fatty acids, which are essential to health, as well as vitamin A and E.

elye Community Regular
Unless you live quite near the equator, you won't get enough vitamin D through sun in the winter, no matter how long you stay in the sun.

The best and healthiest source of vitamin D is still good old cod liver oil. And there is a good tasting one now that even tastes good, not fishy. I am taking Carlson cod liver oil, and went from 24 to 150 within a year, and had to cut back, as it was getting too high. Optimal is about 120.

Cod liver oil gives you also high doses of omega 3 fatty acids, which are essential to health, as well as vitamin A and E.

I'm with Ursula...it's cheap, too!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



JNBunnie1 Community Regular
I'm with Ursula...it's cheap, too!

Oh yeah, that! I forgot about the whole winter thing...

I got glutened this past weekend, my IQ still hasn't recovered. I take Dr Ron's cod liver oil, but it's pretty expensive, Carlson is the next best. And you said it doesn't taste bad?

dlp252 Apprentice

I've tried taking a few different brands of EFAs (essential fatty acids) and fish oils and haven't tolerated any of them (also tried Flax seed oil and meal and hemp for some Omega 3s with no luck in the tolerance department)...I'm wondering if the cod liver would do any better for me? :unsure: Just thinking in cyberspace. :P

Ursa Major Collaborator
I got glutened this past weekend, my IQ still hasn't recovered. I take Dr Ron's cod liver oil, but it's pretty expensive, Carlson is the next best. And you said it doesn't taste bad?

Carlson cod liver oil is lemon flavoured, and really doesn't taste bad. My husband claims it tastes great, I wouldn't go that far myself. But I am one of those people who will absolutely not take anything that tastes bad (I just can't make myself stick with something I hate). So, if I've taken it for two years now, you better believe it tastes okay!

Gentleheart Enthusiast

Before I found out I was intensely intolerant of dairy, I enjoyed adding a tablespoon of Carlson's lemon cod liver oil to 8 oz. of plain yogurt, along with a packet of Stevia Plus (or some other acceptable sweetener). It tasted like a wonderful lemon pudding! Honestly. It may sound bad, but it's actually really good! I miss it.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

    2. - par18 replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

    3. - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

    4. - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,339
    • Most Online (within 30 mins)
      7,748

    Teresa King
    Newest Member
    Teresa King
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • SilkieFairy
      I realized it is actually important to get an official diagnosis because then insurance can cover bone density testing and other lab work to see if any further damage has been done because of it. Also, if hospitalized for whatever reason, I have the right to gluten-free food if I am officially celiac. I guess it gives me some legal protections. Plus, I have 4 kids, and I really want to know. If I really do have it then they may have increased risk. 
    • par18
      Been off this forum for years. Is it that important that you get an official diagnosis of something? It appears like you had a trigger (wheat, gluten, whatever) and removing it has resolved your symptom. I can't speak for you, but I had known what my trigger was (gluten) years before my diagnosis I would just stay gluten-free and get on with my symptom free condition. I was diagnosed over 20 years ago and have been symptom free only excluding wheat, rye and barley. I tolerate all naturally gluten free whole foods including things like beans which actually helps to form the stools. 
    • trents
      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    • SilkieFairy
      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a coincidence, but the brain fog is back and I feel very tired.   
    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.