Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Describe Your Worst Glutening! :o


Guest Doll

Recommended Posts

Guest Doll

What was your absolute *worst* glutening? Bonus for a funny story...in my opinion, laughter IS the best medicine. :)

I guess I should add my own:

1.) About 1.5 years ago the FH and I went to Rae and Jerry's Steakhouse in Winnipeg for a meal (do NOT go there!). I called ahead of time and was told that the chef would prepare a meal for me no problem. I stressed my "gluten allergy", no spices, and all that jazz. Practically danced on my head. The waiter seemed to get it, but you never can REALLY tell. After a few bites, I looked at my fiance with THE look. Uh-oh....the FH is trained well and knows *exactly* what that means! ;) I turned down my insulin pump, chugged some Coke, let him have 3 bites more of his steak, and we were out the door. The whole car ride home I remember my fiance saying, "squeeze honey, squeeze!". I was worried about ruining my new pants, and he was worried about ruining his seats! Lol! I was in the bathroom for HOURS sick as a dog. And since my place was small, my fiance (who was just my bf at the time), had to hear every last sound! Basically, I would scream in pain, get sick, and stick my A$$ in the tub. Repeat. 6 times. It was horrible! But funny to look back on now.

2.) The FH and I were staying at a hotel in Saskatoon (The Delta Bessborough if anyone cares). We came out here to check out my soon to be new home and celebrate our anniversary at the same time. We elected to stay at a nice hotel for one night and usually the "better" (Read: the hotels that rape and pillage your wallets) hotels are able to feed me. Unfortunately, a wedding was also going on that night and had completely taken over their Tappinyaki Asian restaurant where I was told I could eat. Private party only. Soooo....the old (young) man and I decided to venture out walking and find a restaurant. We found an Asian restaurant nearby that assured us that they could provide plain rice and veggies glazed with cornstarch. Soon after....you can guess the rest! OMG, after we *ran* back to the hotel, I was in the bathroom for 30 minutes. When I came out, poor FH had to go too. I told him he might want to wait and to NOT go in there! :) A FULL 20 minutes later, he did. He was choking and making all kinds of retching noises inside the bathroom, and I thought he was making fun of me! I started laughing (while curled up in the bed) and told him to stop. Problem was, he wasn't joking! That bathroom was a "Danger Zone" I swear! Lol! My fiance kept saying, "that poor, poor maid". We were sure she walked in to our bathroom and quit! Lol!

3.) My worst ALMOST glutening: I went to Applebees in Winnipeg (Regent). Called and spoke with the manager TWICE, and was assured that gluten-free was a non-issue. He did seem to understand the gluten-free diet. When I came in that night, I stressed all the usual to the waiter, plain potato, plain steak, plain veggies. I was told they we going to make everything in a clean pan just for me. All of their veggies had sauce, so I was told they were steaming some. Well, after all of those pains so I can chow down, the waiter brings out my plain meal with....2 slices of *garlic toast* on top. So ironic I almost fell over laughing right out of the booth. When I pointed out the obvious, the waiter was *so* embarrassed (poor guy). He comp'd me a free glass of wine and my meal was free (the manager came out and had a new one made for me). Yes it did suck to be sitting there hungry watching everyone inhale their nachos, but at least I *didn't* get sick. :) Could be worse, and good for a laugh. Sometimes I wonder about my luck. God must have a sense of humour....

I hope no one thinks I mean to imply that glutening is funny. It's not, and it can be dangerous for some of us (moi included). Just wanted people to be able to share, vent, or have a good laugh!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



NoGluGirl Contributor

Dear Doll,

My worst glutening happened earlier this year. A local candy company said many of their items were gluten-free. Apparently not. I got horribly nauseated like usual, then started shaking all over after breaking out in a sweat, had a sudden need for a bowel movement, and I shook so hard my hands went numb! :o This was horrible, but at least I got a Promethazine down fast enough before I began getting the heaves, like had happened in other glutenings!

Sincerely,

NoGluGirl

Guhlia Rising Star
Dear Doll,

My worst glutening happened earlier this year. A local candy company said many of their items were gluten-free. Apparently not. I got horribly nauseated like usual, then started shaking all over after breaking out in a sweat, had a sudden need for a bowel movement, and I shook so hard my hands went numb! :o This was horrible, but at least I got a Promethazine down fast enough before I began getting the heaves, like had happened in other glutenings!

Sincerely,

NoGluGirl

Do we dare to ask what candy company?

gfgypsyqueen Enthusiast

My worst glutening came after about a year on the gluten-free diet. We were traveling and going to meet some old friends for dinner. Rather than try to find food and explain Celiacs and be a real pain in the ass at an old friends house I thought it would be easier to go out to eat. I picked the restaurant. I called and spoke to the manager. I arranged my meal before I ever arrived in town. That should have been one of the safest meals ever. We met for dinner. I had a great meal. And about an hour after I ate a started to get sick. My poor husband, who at this point still didn't really get the need to be so strict on the diet got a lesson that night. Driving back to the hotel, I nearly passed out, vommitted, shaking chills, he constantly had to stop the car. He was actually scared. So that night, a good year into this gluten-free life style, he finally learned how serious the reactions can be and the whole next week he got little reminders of how awful a reaction really is for me to endure. So in the end, I had my last meal at one of my favorite old restaurants from years ago, and my husband got the reality check of how bad it is for me to get ANY gluten.

hathor Contributor

I'm afraid my worst glutening wasn't funny. It happened too recently for that.

I went to Maggiano's, known for their availability of gluten-free pasta. I tell the waiter I want a gluten-free meal, plus I have other food allergies (not technically, but the word "allergy" gets their attention better :rolleyes: ). I talk to the chef and he later brings out my dish. Yes, I think, he managed to come up with a sauce without dairy or meat!

I'm sitting there in a booth so I can look out over the crowd. After a number of bites of my pasta (mm, mm, good), there is no one interesting walking by so I look at my husband :lol: His pasta looks like mine.

I stop eating and call the waiter over. "Um, are you sure this is gluten-free pasta?" He leaves, he comes back quickly and takes the pasta away. The chef comes & apologizes. Well, he was so fixated on dairy-free it seems, that the gluten-free part was forgotten. I get the right dish. The manager comes & apologizes. He gives us his card, says he will contact his insurance company to take care of any "complications," and gives us our meal for free. (He refused to give us a check, even though my husband wanted to pay for his meal and the wine. We did leave a nice tip for the waiter based on what we thought that bill would have been, because it wasn't his fault.)

I don't want to get into the nasty details of what I went through after that. I feel bad with itty traces of gluten. My dang hair gel was glutening me there for a bit until I read the label and switched to something else. And here I had eaten a cup or so of regular pasta.

Maybe in a few months I will find amusement in the seeming terror in the restaurant staff that they would get sued (or maybe that I would get explosive diarrhea on the spot :rolleyes: ). They asked for our names & address, and my husband had handed them a business card -- and he is a lawyer.

NoGluGirl Contributor

Dear Guhlia,

The company was Stephen Libs. :( I did not find out until later that they made the candy on shared lines. They had no warning about wheat on the label, and had the ingredients listed. The day after becoming ill, I sent an e-mail, and they said they had a Celiac working there and she ate the candies safely. Shared lines is not gluten-free, no matter how small the traces of wheat or other gluten are! :angry:

Sincerely,

NoGluGirl

JNBunnie1 Community Regular

My worst glutening was earlier this year. I had Sam's Club rotisserie chicken that said it was allergen(wheat) free on it. Oh, yeah, sure. I had it two nights in a row and had a lot of it. I still don't remember much of the week after that, but about a day after my brain started to recover, I got lactose intolerant for the first time ever! And it was so painful I was hollering in the bathroom because it felt like my guts were being ripped out. And then, a wekk after that, I got Dermatitis Herpetiformis for the first time ever! And it was this big huge patch on my leg and belly and the only thing I could wear was spandex for two weeks. MY glutenings last for a MONTH!!!!! Should I contact the Guiness book of world records or something? Just damn...............


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Glutenfreefamily Enthusiast

It has been a few years since I have been glutened but the worst one was many years ago at *multiple* truck stops while traveling with my family and my dad not ready to stop for the night on our way to driving home :angry: Yeah really sensitive parent huh!! At the time I had no clue I had celiac disease or what was wrong with me. I have been lucky though the last few years of not being glutened that Im at the point of almost forgetting what it feels like to be glutened including the seizures that come with it.

NoGluGirl Contributor

Dear JNBunnie1,

I know that guts being ripped out feeling! :( I have gotten it from other things. When I had my gallbladder in, I had it really bad. If I eat too much fat, or creamed corn I get that way. One day, I accidentally had too much garlic, but those can be avoided.

Dear Glutenfreefamily,

My parents are the same way. Some people should never have had children. :angry: I am so tired of living here. If I were well, I could be out of here! My energy level is so low, and I feel like passing out a lot of the time. Lyme could be the cause. My blood pressure is often low.

Sincerely,

NoGluGirl

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,677
    • Most Online (within 30 mins)
      7,748

    Nancy Magil
    Newest Member
    Nancy Magil
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rejoicephd
      That and my nutritionist also said that drinking cider is one of the worst drink choices for me, given that I have candida overgrowth.  She said the combination of the alcohol and sugar would be very likely to worsen my candida problem.  She suggested that if I drink, I go for clear vodka, either neat or with a splash of cranberry.   So in summary, I am giving ciders a rest.  Whether it's a gluten risk or sugars and yeast overgrowth, its just not worth it.
    • Inkie
      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
    • Scott Adams
      Welcome to the community! Generally, for a gluten challenge before celiac disease blood tests, Tylenol (acetaminophen) is considered safe and should not interfere with your antibody results. The medications you typically need to avoid are those like ibuprofen (Advil, Motrin) or naproxen (Aleve) that can cause intestinal irritation, which could potentially complicate the interpretation of an endoscopy if you were to have one. However, it is absolutely crucial that you confirm this with either your gastroenterologist or your surgeon before your procedure. They know the specifics of your case and can give you the definitive green light, ensuring your surgery is comfortable and your celiac testing remains accurate. Best of luck with your surgery tomorrow
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.