Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Medication-gluten Digesting Enzymes

Candy

Recommended Posts

Candy Contributor
Candy
Posted
:( Has anyone been able to get the pills that are supposed to digest gluten ? I know about it from an article on this celiac.com website that I read about a year ago. Some medical place in the state Maryland was the one that mentioned it , and I'm sure it exists , but no one seems to want us to have it, or else it would have been offered to us all. I think it was brand new when it was mentioned last year. Maybe they have to test it or something. I wouldn't use it all the time like people think -I would use it occasionally when I eat pizza,pretzels,doughnuts,and Christmas bread stuffing,which isn't every every day,more like every two months. AND I wouldn't have to worry abouting eroding my small intestine and such.
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


tom Contributor
tom
Posted

I believe you're talking about AT-1001, from a company (Alba Therapeutics) started by a U of Md Dr.

It's in testing now.

I was surprised to find that they're measuring its effectiveness with a test for the extent of permeability in leaky-gut.

From what I've read, it's more a treatment for leaky-gut - both repair & prevention I believe - than something more directly related to celiac or gluten, tho I do think leaky-gut is directly related to celiac. Uh-oh, that doesn't make as much sense as I'd hoped it would.

Anyway, it may turn out to be a very helpful drug in recovery from celiac damage, but is probably at least a couple yrs away. I've seen mention of it as a potential "cure", but to me, that's highly misguided.

Silly Yak Pete Rookie
Silly Yak Pete
Posted

A pill to toterate gluten would be a miracle pill. I hope it would be more effective then the lactose enzyme pills that we lactose suffers have to take.

JennyC Enthusiast
JennyC
Posted

I don't think that any pill that breaks down gluten is a practical solution to celiac disease. Celiac disease is not like lactose intolerance! If Lactaid does not digest 100% of lactose consumed the worst that will happen is stomach cramps and diarrhea. If the gluten digesting pill does not digest 100% of the gluten, then it will set off an autoimmune response in the body. I very much doubt that any drug company will guarantee you that any enzyme supplement is 100% effective. With all the complications that can arise when a person with celiac disease continues to eat gluten, there's no way I would ever consider giving it to my son, unless he accidentally ate some gluten. (We usually don't even know he's had gluten until the next day, so the pill would still be of little value.)

I just needed to vent! :rolleyes:

ravenwoodglass Mentor
ravenwoodglass
Posted
A pill to toterate gluten would be a miracle pill. I hope it would be more effective then the lactose enzyme pills that we lactose suffers have to take.

You may be sensitive to casein and not to lactose, in which case the lactose enzyme pills are not going to help at all. You may need to eliminate casein and not lactose, not easy I know cause I am there right now. There are lots of replacements for cheese and stuff that are lactose free but even a lot of stuff that says dairy free has casien.

As to the enzyme pill, my health food store has a product called something like glutenese digestive enzymes. It states clearly on the bottle that it is not for celaic. I don't take them but my DH does. He eats breakfast out almost every day and while he is knowledgeable about CC issues he does not like to mention the need for seperate cooking etc and just orders his eggs off the grill. He was getting CC constantly which effects him more neurologically than GI wise. He does not take it to be able to eat gluten but he does seem to be much less 'twitchy' from CC lately. He is on his second bottle and normally has to be really pushed to even take a vitamin so he must be noticing some difference himself.

Gemini Experienced
Gemini
Posted

Jenny.....couldn't agree with you more! I highly doubt a pill will ever come about for celiac disease because it would have to stop the autoimmune reaction and doctor's just haven't even come close to conquering that monster. Look at the treatment and vaccines for AIDS....they have made strides but the bottom line is the immune system can adapt to meds they try and they are never completely effective.

I sometimes cannot understand why, aside from the money aspect of it, people have such a hard time with going and staying gluten-free. There is just so much good food out there that can replace whatever you crave. I don't know about anyone else but even if there was a complete cure, the thought of eating fast food or a donut makes me want to barf. I was way too sick to ever want to eat that crappy food again! I can't even stand the smell of fast food.

  • 3 weeks later...
threeringfilly Apprentice
threeringfilly
Posted

I know this is an older thread, but I thought I might add my 2 cents...

I used to work with a little girl who was autistic, and her parents had her on a gluten-free casein-free diet, and I could definately see the difference in her when she was completely gluten-casein-free as opposed to when she ate anything with gluten or casein.

Her mom would buy an enzyme from Open Original Shared Link that she would have before having any gluten or casein - such as when they ordered pizza and or went out to eat. She would keep as much gluten or casein out of her diet as possible, but these enzymes helped.

They didn't cure her, but I remember it helping.

I also found this site Open Original Shared Link

Which seemed to have some pretty interesting information about studies and stuff.

Then this site: Open Original Shared Link

Which described the enzymes and probiotics.

I remember writing down the name of the exact enzyme she used, it's just a matter of finding that little piece of paper...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted
:( Has anyone been able to get the pills that are supposed to digest gluten ? I know about it from an article on this celiac.com website that I read about a year ago. Some medical place in the state Maryland was the one that mentioned it , and I'm sure it exists , but no one seems to want us to have it, or else it would have been offered to us all. I think it was brand new when it was mentioned last year. Maybe they have to test it or something. I wouldn't use it all the time like people think -I would use it occasionally when I eat pizza,pretzels,doughnuts,and Christmas bread stuffing,which isn't every every day,more like every two months. AND I wouldn't have to worry abouting eroding my small intestine and such.

Candy, from what I've read, it seems as though that pill is supposed to avoid reactions to cross-contamination; it's not a license to eat poison, not even every two months!

Unfortunately for us, there are studies that show that even eating a crumb a month is enough to cause visible villi damage in celiacs. :( That means that every time you cheat, you are triggering your immune system to destroy part of your body.

You can MAKE gluten-free pizza, doughnuts, and Christmas bread stuffing EASILY, and if you use the right recipes, it really does taste as good as the gluteny stuff. And Kinninkinnick makes gluten-free pretzels that taste exactly like--pretzels, and I have to fight my gluten-eating husband for them. Come to think of it, Kinnikinnick also makes really good chocolate doughnuts, too. :)

debmidge Rising Star
debmidge
Posted

From what I know and read about these new discovery, Zonulin, which is still in Human Clinicial Trials, is that it's going to work on the molecular level; it won't work like lactose pills. It's supposed to stop a "t" cell response (or something like that).

https://www.celiac.com/articles/64/1/Protei...ease/Page1.html

Open Original Shared Link

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,549
    • Most Online (within 30 mins)
      7,748
    Blough
    Newest Member
    Blough
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Taken Seriously

      By Scott Adams · Posted

      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      Looking for a gluten-free roomie in Denver CO

      By Scott Adams · Posted

      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Allergy medication: cetirizine by the HealthA2Z is it gluten free?

      By Scott Adams · Posted

      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      Protein or fat?

      By Scott Adams · Posted

      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      Diagnosed celiac for 1-2 months ago and everything makes me bloated.

      By Beverage · Posted

      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.