Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Dont Understand


Shotzy1313

Recommended Posts

Shotzy1313 Apprentice

I just came back with a positive blood work and now i am going for my biopsy at the end of the month. Anyway, I have been doing a lot of reading on these forums and educating myself about this disease because most likely I have it with all my symptoms and blood test.

My question I don


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



buffettbride Enthusiast

Celiacs by nature are very food-sensitive. Because the gluten has unthoughtfully chopped the tips of your villi from your small intestine, it is very hard for your body to absorb nutrients, especially in hard to digest foods such as dairy (remember, cow's milk is supposed to be for baby cows!) and soy.

Some Celiacs have no problems with dairy or soy, but some do--especially when sticking to a faithful gluten free diet, but still not feeling their best, many find removing dairy and soy to be helpful to feel "normal" again.

Sure, it makes it a pain to eat, but it just depends on how you want to balance that with quality of life.

jerseyangel Proficient

Dairy is a common problem for newly diagnosed Celiacs especially, because the tip of the villi that secrete lactase are damaged. This makes for a lactose intolerant situation--most times, it's temporary and after the villi have healed the person can resume dairy. My suggestion would be to forgo dairy for 3 months and then, if you want, try some and see how you do with it.

Celiacs can also be intolerant to the protein in dairy (casein) and the protein in soy. These are most likely caused by a leaky gut--and may be permanent, as the body reacts to the protein every time.

This is highly individual, though--I was intolerant to corn and after not consuming it for over a year, I can now tolerate it. I've not been as lucky with some of my other sensitivites.

Good luck with your biopsy :)

mtraezme Newbie

I've eliminated soy because it makes my gut feel almost like I've eaten gluten. If it makes me feel bad, I cut it out of my diet. ;) Everyone is different, you may not have problems with soy or dairy, but a lot of celiacs do.

Shotzy1313 Apprentice

Thanks, I guess I am just worried when trying to go from glutened to gluten free because I don

ladybugs Newbie

:) Hi Kristin..

I am fairly new to this...I haven't officially been diagnosed yet...still waiting on enterolabs..but I am also almost 100 % positive I have at least gluten-intolerance. I looked on the Nutric Lab web page as I was very interested in the supplements you were referring too. However....I found that wheatgrass is one of the ingredients in the one that has 55 fruits and veggies. Isn't this something people with gluten sensitivity or celiacs should stay away from?

jmd3 Contributor
:) Hi Kristin..

I am fairly new to this...I haven't officially been diagnosed yet...still waiting on enterolabs..but I am also almost 100 % positive I have at least gluten-intolerance. I looked on the Nutric Lab web page as I was very interested in the supplements you were referring too. However....I found that wheatgrass is one of the ingredients in the one that has 55 fruits and veggies. Isn't this something people with gluten sensitivity or celiacs should stay away from?

Wheat grass is something that I can not have with my celiac disease.... it is gluten to me

I had to eliminate dairy because my guts were still churning and it hurt so bad. If I am off for a while perhaps I can retry at a later date. I could hardly eat corn for a while....but now I can so far.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,561
    • Most Online (within 30 mins)
      7,748

    lamps
    Newest Member
    lamps
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • petitojou
      Thank you so much for sharing your experience and I found myself giggling with happiness as I read how your body reached such spring! And I hope that your current journey is also successful!! Definitely starting the food diary! So many amazing advices. And it’s very scary. It really hits all our soft spots as well as our confidence system. Most doctors I went thought I was underage despite being in my late 20s. Right now I look like am I twelve, but is also this body that’s taking so much, so I might as well love it too! Going to make the necessary changes and stay in this path. Thank you again! 🫶
    • petitojou
      Thank you so much for the information and kind message! Reading this transformed how I’ve been viewing my efforts and progress. Guess there’s still a lot to celebrate and also heal 😌  Yes, I’ve been taking it! Just recently started taking a multivitamin supplement and separated vitamin D! I also took chewable Iron polymaltose for ferritin deficiency 2 months ago but was unable to absorb any of it.  Thank you again! Hearing such gentle words from the community makes my body and heart more patient and excited for the future. 
    • ckeyser88
      I am looking for a roomie in Chicago, Denver or Nashville! 
    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.