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I Dont Understand


Shotzy1313

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Shotzy1313 Apprentice

I just came back with a positive blood work and now i am going for my biopsy at the end of the month. Anyway, I have been doing a lot of reading on these forums and educating myself about this disease because most likely I have it with all my symptoms and blood test.

My question I don


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buffettbride Enthusiast

Celiacs by nature are very food-sensitive. Because the gluten has unthoughtfully chopped the tips of your villi from your small intestine, it is very hard for your body to absorb nutrients, especially in hard to digest foods such as dairy (remember, cow's milk is supposed to be for baby cows!) and soy.

Some Celiacs have no problems with dairy or soy, but some do--especially when sticking to a faithful gluten free diet, but still not feeling their best, many find removing dairy and soy to be helpful to feel "normal" again.

Sure, it makes it a pain to eat, but it just depends on how you want to balance that with quality of life.

jerseyangel Proficient

Dairy is a common problem for newly diagnosed Celiacs especially, because the tip of the villi that secrete lactase are damaged. This makes for a lactose intolerant situation--most times, it's temporary and after the villi have healed the person can resume dairy. My suggestion would be to forgo dairy for 3 months and then, if you want, try some and see how you do with it.

Celiacs can also be intolerant to the protein in dairy (casein) and the protein in soy. These are most likely caused by a leaky gut--and may be permanent, as the body reacts to the protein every time.

This is highly individual, though--I was intolerant to corn and after not consuming it for over a year, I can now tolerate it. I've not been as lucky with some of my other sensitivites.

Good luck with your biopsy :)

mtraezme Newbie

I've eliminated soy because it makes my gut feel almost like I've eaten gluten. If it makes me feel bad, I cut it out of my diet. ;) Everyone is different, you may not have problems with soy or dairy, but a lot of celiacs do.

Shotzy1313 Apprentice

Thanks, I guess I am just worried when trying to go from glutened to gluten free because I don

ladybugs Newbie

:) Hi Kristin..

I am fairly new to this...I haven't officially been diagnosed yet...still waiting on enterolabs..but I am also almost 100 % positive I have at least gluten-intolerance. I looked on the Nutric Lab web page as I was very interested in the supplements you were referring too. However....I found that wheatgrass is one of the ingredients in the one that has 55 fruits and veggies. Isn't this something people with gluten sensitivity or celiacs should stay away from?

jmd3 Contributor
:) Hi Kristin..

I am fairly new to this...I haven't officially been diagnosed yet...still waiting on enterolabs..but I am also almost 100 % positive I have at least gluten-intolerance. I looked on the Nutric Lab web page as I was very interested in the supplements you were referring too. However....I found that wheatgrass is one of the ingredients in the one that has 55 fruits and veggies. Isn't this something people with gluten sensitivity or celiacs should stay away from?

Wheat grass is something that I can not have with my celiac disease.... it is gluten to me

I had to eliminate dairy because my guts were still churning and it hurt so bad. If I am off for a while perhaps I can retry at a later date. I could hardly eat corn for a while....but now I can so far.


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    • Rogol72
      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
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