Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help With Family Over Holidays


tgrand

Recommended Posts

tgrand Apprentice

Hey guys,

I have been gluten free for almost two weeks and feeling great. I was wondering if anyone could point me to any info or articles online that I can give to my family. The holidays are coming up and I'm pretty anxious about traveling. I don't think my family really gets the whole cross contamination thing. Does a little gluten really do that much damage? Yes, apparently! So, I thought it would be helpful to me if I could find some sort of hand out to give them, that I did not personally type, which clearly expresses the importance of being strict and preventing CC.

Any other tips, sites, articles would be helpful too. Still have a lot to learn!

Blessings,

T Grand


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



missy'smom Collaborator

I don't know how much it addresses the issue of CC but the Celiac Sprue Association will send out free info. Go to their website and click on About CSA and then Forms and there will be an 800 number or you can download an order form. You can request celiac disease, the Basics or New Patient Packet. I had one set to my sis when I was trying to convince her that she should get tested and she said it was very helpful.

Guest j_mommy

I have handed this list out to my family so they can check ingredients on things!

https://www.celiac.com/articles/182/1/Unsaf...ents/Page1.html

JNBunnie1 Community Regular
Hey guys,

I have been gluten free for almost two weeks and feeling great. I was wondering if anyone could point me to any info or articles online that I can give to my family. The holidays are coming up and I'm pretty anxious about traveling. I don't think my family really gets the whole cross contamination thing. Does a little gluten really do that much damage? Yes, apparently! So, I thought it would be helpful to me if I could find some sort of hand out to give them, that I did not personally type, which clearly expresses the importance of being strict and preventing CC.

Any other tips, sites, articles would be helpful too. Still have a lot to learn!

Blessings,

T Grand

Maybe the Triumph dining cards like you would give to a restaurant would be a good idea.

gfgypsyqueen Enthusiast

Newsweek had an article...I think September. My family told me about it, so it must help coming from a main stream source. I have had Celiacs for almost 5 yrs and this is the first time they told me about an article. I would research other main stream magazines and news papers. FYI be sure to read the article first and only send the ones that give the right message. Some sound a little to lax to me.

Otherwise, I am sorry to say, your family will probably never get it. Or it will take a few years. Find out what the local grocery store carries for you. Just plan to take over some areas to keep yourself safe and healthy. Make a trukey breast the night before for you. Request that certain herbs and seasoning be exchanged for safe ones so you can eat the rest of the meal. Keep a separate container of your meal in the kitchen so you don't have to try to enforce no double dipping and no touching the spoon to your plate... If you don't see a label, don't eat it even when grandma insists...it is just easier at first to do it this way. At least that is what I found.

Good luck

melmak5 Contributor

I am planning on bringing all of my own food. My family "gets it" but they do not have any gluten-free utensils. My mom loves to bake, so I would rather not risk flour getting into/onto my things.

You could bring the NYT article about gluten free pizza/restaurants that ran a month or two ago. It has a basic description of celiac disease and is engaging. You could also use one of the celiac center's websites and print out the guidelines they suggest. (Maybe if it "comes from a doctor" it could be more compelling)

kbtoyssni Contributor

Another thing to consider is even if you give them information, are they really going to be able to cook safe food for you? You might have a very supportive family, but there's a huge learning curve here and gluten is in all sorts of things they might not realize. There are very few people I trust to cook for me even if they are supportive and understand the diet on a high level. I have friends who are good at reading labels and can buy packaged food that I can eat, but might not understand all the pitfalls in their kitchen (wooden spoons, flour stuck to the corners of baking pans, condiments that have been double-dipped etc). So you might want to consider bringing some of your own food anyways.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



JNBunnie1 Community Regular
Another thing to consider is even if you give them information, are they really going to be able to cook safe food for you? You might have a very supportive family, but there's a huge learning curve here and gluten is in all sorts of things they might not realize. There are very few people I trust to cook for me even if they are supportive and understand the diet on a high level. I have friends who are good at reading labels and can buy packaged food that I can eat, but might not understand all the pitfalls in their kitchen (wooden spoons, flour stuck to the corners of baking pans, condiments that have been double-dipped etc). So you might want to consider bringing some of your own food anyways.

I agree, bringing your own food is probably safer and less stressful for both you and your host.

EBsMom Apprentice
You might have a very supportive family, but there's a huge learning curve here and gluten is in all sorts of things they might not realize. There are very few people I trust to cook for me even if they are supportive and understand the diet on a high level.

So true. I have been glutened by well-meaning people. I'm going to cook for myself and my two kids this year....we're gluten-free/cf/sf. My bro-in-law, who owns a restaurant and is a fabulous chef, is going to cook, but I don't think that he *could* adapt his recipes to our needs, even if he wanted to. I don't want my kids to feel deprived (nor do I want to feel deprived) so I'm going to cook it here and transport it there.

As far as family "getting it"....some of them do get it, some of them don't. I've spend a lot of mental anguish worrying about the ones who don't and truthfully, it's a waste. I've decided to stop worrying and just do my (our) thing. If anyone else doesn't get it, it's *their* problem.

Rho

happygirl Collaborator

See this site for some great info:

Open Original Shared Link

www.celiacdiseasecenter.columbia.edu

www.celiaccenter.org

Open Original Shared Link

Open Original Shared Link

and of course, the wonderful parent site to this forum, www.celiac.com

gfpaperdoll Rookie

This may not work for everyone, but I suggest cooking a Thanksgiving dinner a week or two ahead - turkey is really very economical meal. Freeze some meals to take with you. I would just freeze them in a glass pie plate so it can be microwaved. top with saran wrap then wrap the whole thing in foil. Gee, I love foil!! ;) of course when you go to heat it up unwrap & either cover with a clean glass plate or a couple of paper towels.

If you are not going far, maybe volunteer to bring the fruit salad, & put some in a container for yourself. Because if you do not the first thing someone will do is dip the cake server in it or something...

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,953
    • Most Online (within 30 mins)
      7,748

    ramonaja
    Newest Member
    ramonaja
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jacki Espo
      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
    • DebJ14
      Yes, his A1C was 4.9.  Fasting blood sugar and insulin was tested in the hospital in August and he was told it was excellent.  He has never had a problem with blood sugar.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.