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Just One Bite

Nyxie63

By Nyxie63
in Coping with Celiac Disease

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Nyxie63 Apprentice
Nyxie63
Posted

You know how if sometimes you have an owie, you just have to poke it from time to time to see if it still hurts? Well, that's what its like right now.

I'm self dx'd due to my reaction to the wheat challenge a little over a week ago . Other than that, I've been gluten-free for a month. There's a part of me that really doesn't want to accept this and thinks "just one bite couldn't hurt". Sometimes its almost overwhelming. Its like I want to poke the owie to see if it still hurts. Logic tells me it'll still hurt, but I still want to poke it. Does that make any sense?

Now before you yell at me... No, I'm not going to do this. There's no way I want a repeat of the wheat challenge reaction.

But the urge is there.

Did anyone else go through this? Feeling the need to test yourself just one more time more before fully accepting the reality of this new dx?

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hathor Contributor
hathor
Posted

I frequently feel that way, particularly when I'm feeling well. Unfortunately, I have been accidentally glutened enough times ... and seen the result ... so my better judgement comes into play.

I did try to test casein recently. Although Enterolab says it is a permanent intolerance, I read here about someone who reached the point after some months of being able to tolerate it. I didn't eat much, just a trace in something I ordered at a restaurant.

Ah, stupidity. I won't be doing that again :(

I also tested soy the same way. Same result.

Ridgewalker Contributor
Ridgewalker
Posted
You know how if sometimes you have an owie, you just have to poke it from time to time to see if it still hurts? Well, that's what its like right now.

I'm self dx'd due to my reaction to the wheat challenge a little over a week ago . Other than that, I've been gluten-free for a month. There's a part of me that really doesn't want to accept this and thinks "just one bite couldn't hurt". Sometimes its almost overwhelming. Its like I want to poke the owie to see if it still hurts. Logic tells me it'll still hurt, but I still want to poke it. Does that make any sense?

Now before you yell at me... No, I'm not going to do this. There's no way I want a repeat of the wheat challenge reaction.

But the urge is there.

Did anyone else go through this? Feeling the need to test yourself just one more time more before fully accepting the reality of this new dx?

YES!!!! Omg, I completely agree, this is one drawback of being self dx'd (I am too.) I've been gluten-free for a few months now, and while I haven't really had any gluten withdrawal symptoms... I constantly am having to restrain myself from re-checking, and re-testing myself. I'm so used to thinking my symptoms are psychological!

I've gotten accidentally glutened a couple times, and that seriously should have been enough to get it through my head. Never the less, I have poked the owie a couple times... :angry: and it hurts worse every time I do it.

JNBunnie1 Community Regular
JNBunnie1
Posted
I've gotten accidentally glutened a couple times, and that seriously should have been enough to get it through my head. Never the less, I have poked the owie a couple times... :angry: and it hurts worse every time I do it.

HAHAHAHAHAHA!!!!!! We don't have small children, really..............

It's ok, me and my boyfriend say potty and we don't even have kids.

Nyxie63 Apprentice
Nyxie63
Posted
  • Author

Thank you!

Its nice to know I'm not the only one who feels the need to poke the owie. :D

-------------------

LOL JNB! Hubby and I don't have kids either but we use terms like potty and owie too. Then again, we both still love crayons and coloring books and playing with bubbles too!

Thank goodness maturity is optional. ;)

blueeyedmanda Community Regular
blueeyedmanda
Posted

It is a very common feeling. I admit that I get that feeling still very frequently, if we are at the County Fair and you smell funnel cakes or you are walking through the mall and smell Auntie Ann's.

I always try my hardest to tell myself, remember what you went through and how far you have came.

JNBunnie1 Community Regular
JNBunnie1
Posted
Thank you!

Its nice to know I'm not the only one who feels the need to poke the owie. :D

-------------------

LOL JNB! Hubby and I don't have kids either but we use terms like potty and owie too. Then again, we both still love crayons and coloring books and playing with bubbles too!

Thank goodness maturity is optional. ;)

I know! we still play Uno and paint with watercolors, whenever my boyfriend plays with his legos (we're 23, by the way) I sing the Toys'r'us theme at him.

I do that 'poke the owie' thing too, but have not ever felt tempted with gluten. I'm self diagnosed too, but a glutening takes too much away from me. I think you may find that this feeling fades with time. Try to keep some Whole Foods cookies (gluten-free Bakehouse choc chip are UNBELIEVABLE, my uncle fights me for em) and something crunchy around to fight the urge!

Oh, I wanted to mention, don't go too crazy with the low-cal mentality for a few months. You need those calories to repair your body, you need the nutrients. Like we were talking about though, try to get them from raw dairy and goods veggie fats and organic meats. You're right about the bread, it won't really provide any nutrients.

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Nyxie63 Apprentice
Nyxie63
Posted
  • Author

Manda,

I guess its not so much a matter of wanting a forbidden food as much as wondering if I'm really GI or not and wanting to test it (again) for my own satisfaction. My dx was made by a single measly challenge with cream of wheat. My dr has taken my word regarding the reaction and has no interest in pursuing testing as confirmation. I should be thankful for that, but a huge question mark still hangs over my head like a little black cloud. A couple of accidental glutenings will probably help to clear all that up.

------------------------

JNB,

LOL! Hubby and I are in our 40s and still do that! Like I said, thank goodness maturity is optional. ;)

I've recently discovered Pamela's Pecan Sandies. Oooooh! A little greasy for my taste, but ITS A COOKIE!!!! :P Those things are dangerous.

I guess I worry more than I should about the calorie content of food. I've lost quite a bit of weight (started at 185 and am now down to 167) and don't want to go back up again. In spite of the occasional commercially-processed gluten-free goodie, I'm still sticking with a good basic diet. The great news is that I haven't had to take the Omeprazole (for reflux) in almost 2 weeks! The combination of the gluten-free diet, digestive enzymes, and probiotics must be working. And no stomach cramps since switching over to white rice. Yay! And thank you! :)

JNBunnie1 Community Regular
JNBunnie1
Posted

Your body probably had the starvation: save everything! reaction. Some people, when not absorbing nutrients, will save every calorie, valuable or not. Some people will lose all their weight, the stereotypical celiac (me). Even though you're getting more calories, you're getting the nutrients you need now, so your body won't hold on to all those unnecessary calories now.

I still think you should wait a while longer and have a bit of barley soup or something. Just to see if it's Celiac or wheat. Although that was quite humorous, that a couple of accidental glutenings should clear things right up for you!

Nyxie63 Apprentice
Nyxie63
Posted
  • Author
I still think you should wait a while longer and have a bit of barley soup or something. Just to see if it's Celiac or wheat. Although that was quite humorous, that a couple of accidental glutenings should clear things right up for you!

Yeah, I think you're right. To be honest, I'd rather be wheat-intolerant than gluten-intolerant. At least that way I wouldn't be quite so limited. I'm also hoping once the deficiencies and dysbiosis are cleared up, my reaction won't be quite as severe either. I really don't want to have to carry around an epi pen the rest of my life. <_<

confusedks Enthusiast
confusedks
Posted

I jsut wanted to say. There is someone on this board who had a Gluten Intolerance (NOT celiac) and it was a product of another health problem. Now that she has "fixed" the other problem, she is able to eat gluten. She told me that it is NOT as good as she remembers...at all!

I thought this might help. Personally, I think I get more bummed about the other intolerances than I do gluten. I also think most of the time we miss the convenience of eating gluten. Before we could go anywhere and not bring food, now we have to bring food wherever we go or call ahead, etc.

Hang in there! It is totally normal to feel what you are feeling.

Kassandra

babygirl1234 Rookie
babygirl1234
Posted

if i have anything with gutlen in it im done for because i feel like i want to tose mt cookies after that, so i try to stay away from anything with gulten in it. But its hard sometimes you do it with reallizeing it

dandelionmom Enthusiast
dandelionmom
Posted

I've been tempted but I think that if I actually tried to eat gluten I wouldn't be able to actually go through with it.

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