Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Worry Too Much.


dandelionmom

Recommended Posts

dandelionmom Enthusiast

I couldn't sleep last night because I was worried about how Julia would keep healthy when she goes off to college. That is 15 years away! What is wrong with me?!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



buffettbride Enthusiast

Oh my gosh! So do I! Especially about college since I know my daughter wants to live out of state to go to college.

She's only 10, :o so that's only 8 MORE YEARS!!! :rolleyes:

Thankfully, she'd like to go to college in NY so I feel better about that being a gluten-free-friendly place than just about anywhere from what I've heard.

shan Contributor

You know what my fears are? That her social life will be a nothing, and that no one will like her (she is not yet 3!) but then i think that everyone has to worry about something! I also worry about who will want to marry or date someone who cant even be in a house where there is flour!

hathor Contributor

Rest assured, whatever you are worried about when your kids are little turns out not to be what the problems are when they actually DO go off to college :lol:

There is growing awareness of celiac. Even now, college students can go to the food service and work with them to get acceptable food. The latter have been dealing with allergies, diabetes, etc., for years. This is just one more thing. I think when gluten intolerant college students run into trouble it is when they don't talk to food service and just guess what might be safe.

Any child avoiding gluten for years will learn how to do so, what to look for, how to talk to restaurants, etc.

If someone is shallow enough that s/he wouldn't want to be with someone who can't eat a particular food, I say good riddance!

buffettbride Enthusiast
If someone is shallow enough that s/he wouldn't want to be with someone who can't eat a particular food, I say good riddance!

We assure our daughter of this CONSTANTLY and are trying to set a good example of what someone who cares for her would be like.

-Her home gets to be gluten free and a complete "safe" zone

-Her daddy even only drinks gluten-free beer now so he can smooch our daughter with no worries

We tell her that any boy who is worth anything won't hesitate to make those concessions to keep her safe.

Even at age 10, a boy in class who digs her is always showing off his gluten-free snack bar (his family is very organic and health conscious) to try and impress her. :D It is absolutely adorable.

kbtoyssni Contributor

If it makes you feel any better, I'm 25 and my social life is much better now that I'm gluten-free than it was before. By the time your children reach college, they'll be pros at the diet. They'll take everything you're teaching them now about the diet and how to deal with it with them when they go to college. You've got years to prepare them so I'm sure they'll be just fine.

buffettbride Enthusiast
If it makes you feel any better, I'm 25 and my social life is much better now that I'm gluten-free than it was before. By the time your children reach college, they'll be pros at the diet. They'll take everything you're teaching them now about the diet and how to deal with it with them when they go to college. You've got years to prepare them so I'm sure they'll be just fine.

If I could bottle your outlook and attitude and sell it to the masses, I'd be a very wealthy woman.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



debmom Newbie

I can relate. My daughter was 15 when diagnosed and is 16 now. So college is just two years away. But she is SOOO good about her diet and has found so many things to eat that she enjoys. Occasionally she has a mini-meltdown, but overall she feels so much better that the diet isn't an issue.

I will still send her to school/ college with homemade goodies for all occasions. I make cakes and brownies and freeze them for parties and places she will encounter non-gluten free food that she used to enjoy. So far the kids seem to like my gluten free brownies better than the regular, so the only problem is that I'm baking them all the time.

Her girlfriends had a surprise party for her birthday last week and they were so cute. they shopped for all sorts of gluten free food and even worried about latex in balloons (which I assured them were OK) They seem so relieved to know why she was so sick and seem to cherish her friendship even more now that she is able to be back at school with them. So stop worrying. You will all adjust. I spent almost a year with sleepless nights, but rarely so anymore.

Kids are resilient. And if their friends are really friends, they will hlep your daughter cope with being gluten free.

dandelionmom Enthusiast

Thanks everyone! It is nice to know that I'm not the only one with these worries and the encouraging stories are so good to hear! My husband is fabulous and so supportive but he tends to laugh at me a little when I get going with my crazy worries. :)

darlindeb25 Collaborator

I had to laugh at this thread, not because you worry, but because just last week I told someone that "worry" is my middle name. I worry that my kids have celiac and aren't in the frame of mind to do anything about it for now! I worry that my grandkids will have it and their parents won't realize it! I worry that I recognize the symptoms in friends and can't make them realize the seriousness of the disease. I also worry about the weather, my family, my friends--you name it, I worry.

I do not know how to change. Yet, the way I am is who I am and if I change, then who will I be. Now I will worry about that. :o

kbtoyssni Contributor
If I could bottle your outlook and attitude and sell it to the masses, I'd be a very wealthy woman.

Can I get a percentage of the profits? :P I do have a very positive attitude. Life's too short to spend it being negative and bitter about things I have no control over.

laurelfla Enthusiast

I can so relate to this thread! I am a big worrier, too, and I worry about that and try to change it all the time! ;) No luck yet...

I worry about when to introduce cereals to my baby and how to do that, and I am not planning to have children for at least three more years! I think developing Celiac or taking care of someone who has opens up an entire world of potential worry we couldn't even have imagined beforehand!

But to throw in my two cents, after diagnosis a little over two years ago, I met the man of my dreams who, once he found out what I had, investigated on his own to learn about the disease, still won't eat pizza in front of me, and readily accepted living in a completely gluten free house in December after we get married and eating gluten free at home for the rest of his life! He's more supportive than I ever would have dared ask for. So not to worry! These guys are out there! :D

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,084
    • Most Online (within 30 mins)
      7,748

    bigwave
    Newest Member
    bigwave
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • AlwaysLearning
      Get tested for vitamin deficiencies.  Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
    • Colleen H
      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.