Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anxiety?


LynnR

Recommended Posts

LynnR Explorer

I have what I will call a wierd symptom of celiac disease that I haven't seen or heard by anyone else with Celiac Disease. Some people might call it anxiety but my husband refers to it as Nervous Energy.

I am extremely tired all the time. I have no energy or motivation to do anything. But at the same time - when I am doing something, I am always thinking what I have to do next. I rush through many things b/c of the next task that needs to be done.

For example, I eat much too fast b/c I am thinking of everything that I want to get done afterwards such as cleaning or laundry. Maybe I behave this way b/c I know in the afternoons I am useless. I am so tired that I cannot do much except relax, watch TV, or be on the Internet.

Has anyone experienced symptoms similiar to mine?

;)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Deby Apprentice

LOL!!! I do that all of the time. I don't know if it's celiac disease or ADHD. celiac disease has taken the H out of the mix though, I have to say.

Seriously though, I do suffer from anxiety. I am on Paxil and that has toned the anxiety down greatly. I was gluten-free for 3 years and didn't have any relief from anxiety symptoms while my other celiac disease symptoms resolved. So there didn't seem to be any connection for me.

However, my brother is HD and before going gluten-free, his wife was pretty fed up. She says he is totally different now that he is gluten-free. He takes an antidepressent also (still though he is gluten-free)

Maggie1956 Rookie

I also have been diagnosed with anxiety/depression and I'm on meds for it. Although, I can't say that I could discribe myself as rushing from one job to another!!! lol

I just don't have the energy at all. Not even when I first get out of bed in the morning, and like you, LynnR, I have to rest (have a sleep usually) every afternoon for a couple of hours. -_- Maggie

darlindeb25 Collaborator

maggie, deby, and lynn-----i had terrbile panic attacks before going gluten-free--at the time i went gluten-free i was taking 40mg of paxil daily and still having panic :unsure: --after being gluten-free for a few months i decided i was weaning myself off paxil--it was hard, no matter what they tell you, you do get addicted to it :( --you need it--withdrawal was unexplained tears cropping up at anytime--pacing, pacing, pacing--fidgeting--sleeplessness, but all well worth it :D -----believe me, there are days that i could use the paxil still <_< --yesterday was one of those days--i just get this overwhelming fear of ruining anothers day because i cant cope :( --i do everything i can to go on like any other day, i know i cant let the panic run away with me again ;) --these days only happen when i am going through very stressful times or if i have glutened myself in some way--the old tummy anxiety returns :(--the last few weeks have been rough because of probs with soy and stress--i just quit a very stressful job :( i couldnt work for dr jekell/mrs hyde any longer, she was bringing my panic back and no one can do that to me, not anymore :angry: believe me, if paxil helps you, stay with it, its a wonderful drug to have when it works for you, but i think going gluten-free gave me permission to get off of paxil--we are all different and have different needs at different times :) deb

Nadtorious Rookie

One of my biggest clues that I've had a reaction is that I'll get really anxious, out of it, and depressed all at once. Sometimes, if it's a bad enough reaction, I'll throw a temper tantrum and not really be realizing what I'm saying or doing. Kind of scary.

Nadia

McDougall Apprentice

Lynn you descibe exactly how I feel alot of the time. Clearly it is NOT abnormal for us celiac sufferers (well as clear as my foggy head can comprehend). It is a very unique and strange feeling that I am shocked to see someone acuarately describe.

McDougall Apprentice

I was with some friends and we were on vacation in a large van. We were all excited, alot of fun. I'm in the back of the van organizing it, but I'm all over the place. Putting clothes in this bag, cleaning that seat, telling a story, stopping and discovering our lost tickets in a corner, after 5 minutes I look up and my 2 friends are looking at me like I'm a madman, I am all over the place, trying to do 20 things at once. I felt really alone at that moment, I realized something was wrong with me at that moment have alot of simular. Can you relate? I feel like I can identify that feeling in myself right now and it is going away, slowly. 121 hours gluten-free


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



darlindeb25 Collaborator
;) you guys just reminded me of a time when my panic took over my mind--i had a meeting at school for one of my boys--he had learning disabilities and it was a meeting with a school social worker, 2 teachers, the principal, the remedial teacher and me--i was inpatiently waiting for them all to get settled and i felt as i had left my body and was floating around the room--i was doing everything i could to keep my panicked mind in that chair and here i was not hearing a thing and floating around the room---this was when i was taking xanax as needed--i never felt like this while on paxil---it was one of the weirdest feelings i ever had--deb
stef-the-kicking-cuty Enthusiast

Wow, that sounds familiar. There are two possibilities. Either i'm too tired to do anything and just go to bed. Or i'm really everywhere at the same time. Especially now, that christmas is comeing. Reading up, house cleaning, makeing or wraping x-mas presents, sports... The last thing i mostly do before i'm totally exhausted and tired is sitting in front of my computer and surfing in the internet. And then i desperated realize i (once again) didn't really do anything the whole day, but i'm too tired already in the afternoon to do anything but sleeping...

Stef

Maggie1956 Rookie

Yeah, that's all me too. :rolleyes: If I have more than one thing to do at a time, I just can't sort it out in my mind at all.

If I have to talk to anyone (worse if it's a group of people) I get really panicy. Saying more than 'helo, how are you?" is a real problem. Where do I go from there??

I slurr my speech when I'm tired or nervous. That is embarrassing.

Mostly, I take my husband with me to do anything. Thankfully, he's very understanding and helps me get through it. I can't remember what I get told in detail, so I ask people to write it down as well. ;)

I'm no good whatsoever in a crowd. I feel terrible. I just never get myself in that sort of situation without someone who knows my ways, and is there to 'bail me out' if need be.

It is sooooo good to be able to be upfront (honest) with you all, and know I'm not judged as stupid or a fruitcake. To be able to tell someone outside of my husband and very closest friends is unbelievable. My brothers and sister don't even know about these phobias. :ph34r:

Thanks for letting me share. Maggie

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,860
    • Most Online (within 30 mins)
      7,748

    Rena Celiac
    Newest Member
    Rena Celiac
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rogol72
      Some interesting articles regarding the use of Zinc Carnosine to help heal gastric ulcers, gastritis and intestinal permeability. I would consult a medical professional about it's use. https://www.nature.com/articles/ncpgasthep0778 https://www.rupahealth.com/post/clinical-applications-of-zinc-carnosine---evidence-review https://pmc.ncbi.nlm.nih.gov/articles/PMC7146259/ https://www.fallbrookmedicalcenter.com/zinc-l-carnosine-benefits-dosage-and-safety/
    • Jillian83
      He is. Which makes everything even more difficult. I’m not a believer in “staying for the kids” but I have nowhere to go and it’s not just me, it’s me plus my babies. We live in a beautiful place, lots of land in the country and me and the kids love the place we’ve called home for their entire lives. But Im seeing that he’ll never change, that my kids deserve a happy healthy Momma, and that staying in this as is will be the early death of me. Then I look at the scars covering my entire body…this disease and the chronic stress I’ve been enduring for years that tell me I’m no longer beautiful and no one will ever look at me with interest again. I try self care, try to give myself grace so I can just start loving myself enough to gain strength but the slightest sparkle in my eye and skip in my step attracts his wrath and it all comes crashing ten fold. Life is just absolutely railing me from every single direction leaving me wanting to wave that white flag bc I don’t feel like there’s much hope no matter what happens. 
    • trents
    • Jillian83
      Hi, I was recently diagnosed with Celiac and dermatitis herpetiformis after years of suffering without answers. I lost my mind. I lost my job. I lost so much time. I lost Me. Conventional doctors are opulent come near me and the one who did sat across the room, misdiagnosed me, pumped me full of steroids which collapsed my entire hip for 6 months. So without answers I began my holistic journey. Fast forward a couple of years and still struggling with a mysterious whole body itchy, crawling “skin hell”, perfect teeth now deteriorating, thick hair now thinning rapidly and no more than a day or 2 at most relief….An acquaintance opened up a functional medicine practice. Cash only, I found a way. Within a month tests clearly showing my off the charts gluten allergy/sensitivity as well as the depletion of vital nutrients due to leaky gut and intestinal damage. dermatitis herpetiformis was more than likely what I was experiencing with my skin. I was happy. I thought this is easy, eat healthy Whole Foods, follow the diet restrictions and I finally get to heal and feel confident and like myself again very soon! 😔 Supplements are very pricey but I got them and began my healing. Which leads to the other major issue: not working, stay at home Mom of young kids, entirely financially dependent on my man of 7 plus years. He’s never been supportive of anything I’ve ever done or been thru. He controls everything. I’m not given much money ever at a time and when he does leave money it’s only enough to possibly get gas. His excuse is that I’ll spend it on other things. So my “allowance” is inconsistent and has conditions. He withholds money from me as punishment for anything he wants. Since being diagnosed, he’s gained a new control tactic to use as punishment. He now is in control of when I get to eat. He asked for proof of my diagnosis and diet bc he said I made it up just to be able to eat expensive organic foods. Then after I sent him my file from my doctor he then said she wasn’t a real doctor. 😡. I go days upon days starving, sometimes breaking down and eating things I shouldn’t bc I’m so sick then I pay horribly while he gets annoyed and angry bc I’m not keeping up with all the duties I’m supposed to be doing. His abuse turns full on when I’m down and it’s in these desperate times when I need his support and care the most that I’m punished with silence, being starved, ignored, belittled. He will create more of a mess just bc I’m unable to get up and clean so that when I am better, I’m so overwhelmed with chores to catch up that the stress causes me to go right back into a flare from hell and the cycle repeats. I’m punished for being sick. I’m belittled for starving and asking for healthy clean water. I’m purposely left out of his life. He won’t even tell me he’s going to the grocery or to get dinner bc he doesn’t want me to ask him for anything. I have no one. I have nothing. Im not better. My supplements ran out and I desperately need Vitamin D3 and a methylated B complex at the very minimal just to function….he stares at me blankly…no, a slight smirk, no words. He’s happiest when im miserable and I am miserable.  this is so long and im condensing as much as I can but this situation is so complicated and disgusting. And it’s currently my life. The “IT” girl, the healthy, beautiful, perfect skin, perfect teeth, thick and curly locks for days, creative and talented IT girl….now I won’t even leave this house bc Im ashamed of what this has dont to my body, my skin. Im disgusted. The stress is keeping me from healing and I think he knows that and that’s why he continues to keep me in that state. He doesn’t want me confident or successful. He doesn’t want me healed and healthy bc then how would he put the blame of all his problems on me? This journey has been hell and I’ve been in Hell before. I’ve been killed by an ex, I’ve been raped, robbed, held hostage, abused beyond nightmares but the cruelty I’ve experienced from him bc of this disease is the coldest I’ve ever experienced. I’ve wanted to give up. Starving and in tears, desperate…I found a local food pantry in our small town so I reached out just saying I had Celiac and was on hard times. This woman is blessing me daily with prepared gluten free meals, donations, educational info, people who know this disease and how they manage life and the blessings just keep coming. But it’s overwhelming and I feel like I don’t deserve it at all. He just glared and I know he’s going to sabotage it somehow. I don’t even know what to do anymore. I’m so broken and just want peace and healing. 
    • cristiana
      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.