Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Bad Reaction - Need Help!


DebNC84

Recommended Posts

DebNC84 Apprentice

I have been gluten free since june of this year - for the most part doing pretty good - until this week - I purchased some gluten free cookie mix - 365 Gluten Free Chocolate Chip Cookie Mix (it's distributed by whole foods) I know I didn't anything else that could have caused this problem - my gut has been killing me for two days - severe gas and bloating something that seems to be more severe now since I've been gluten free - I think that I'm actually more sensitive to gluten products intestinally. I guess my gut was so dead that it didn't matter so much - but that's another topic my question is

HAS ANYONE HAD A PROBLEM WITH THIS PRODUCT? I eat egg and milk products all the time and don't seem to have any problems with either... SUGGESTIONS? Is it possible that there is something in the product that IS NOT gluten free and they screwed up? I'm telling you - this has been really bad. I'm actually a DH person as well and I've started itching and breaking out a little.

thanks for your input.

Debbie


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



NorthernElf Enthusiast

Did you bake your cookies on glutened pans ??? I glutened myself with Gluten Free Pantry's yummy brownie mix after I made then in a mini muffin tin that had gluten in it. Ugh.

I'd also look at what else you are eating since I'm sure you aren't just eating cookies. ;)

jerseyangel Proficient

I know I'm in the minority on this, but I have reacted to every 365 Brand product that I've tried. One of those products was sent to the lab at the U of Nebraska, and tested negative for gluten--but the rep told me that they only tested down to 200 PPM.

This may have changed, so I would suggest you call them and see if the product was made in a facility or on equipment that also processes gluten, and about how/if they check for gluten in the products.

DebNC84 Apprentice
Did you bake your cookies on glutened pans ??? I glutened myself with Gluten Free Pantry's yummy brownie mix after I made then in a mini muffin tin that had gluten in it. Ugh.

I'd also look at what else you are eating since I'm sure you aren't just eating cookies. ;)

nope - brand new cookie sheet. I've learned my lesson on the "used" baking equipment - about 3 weeks ago I made some gluten-free waffles in my old teflon coated waffle iron - BIG MISTAKE - I knew better - I just wanted those waffles so bad!! it was the Kinnikinnick (spelling?) brand and they were great! But this was a mild reaction I had from the waffles... nothing like what I've been going through the last couple days... I'm a little better today and I still have cookies left - I'm almost tempted to wait till I get better and be the martyr and try it again.. just to make sure. sounds dumb huh? They were SO GOOD!

Good idea though... If I hadn't known about using new baking stuff - it could have been the problem...

DebNC84 Apprentice
I know I'm in the minority on this, but I have reacted to every 365 Brand product that I've tried. One of those products was sent to the lab at the U of Nebraska, and tested negative for gluten--but the rep told me that they only tested down to 200 PPM.

This may have changed, so I would suggest you call them and see if the product was made in a facility or on equipment that also processes gluten, and about how/if they check for gluten in the products.

wow - thanks! I don't think i'm going to try that brand again. I made some Bob's Red Mill brownies one time and made a chocolate cake from the back of a tapioca flour box and both were great with no reactions.

it says on the box that it was made in a 100% gluten free facility... but maybe it was the chocolate chips?

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,166
    • Most Online (within 30 mins)
      7,748

    melindakathleen
    Newest Member
    melindakathleen
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • DAR girl
      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
    • Scott Adams
      PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
×
×
  • Create New...