Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Test Results Are In


crittermom

Recommended Posts

crittermom Enthusiast

Hi all

Well all of Michael's test results were negative. The doctor put him on an antibiotic called Flagil for a bacterial overgrowth in the gut (just in case) and put him back on Prevacid 15 mg for 2 months. Michael had pretty bad silent reflux and dairy and soy allergies as an infant until about 22 months, she wants to see if maybe the reflux is acting up again and making him uncomfortable, cranky, and it can also affect bm's. She is also having us go back to the allergist on Tuesday to have him rechecked for allergies. Right now he has only been on the prevacid for a few days, it takes 2 weeks to get to theraputic levels in the system. I haven't seen much change in him as of yet. She wants us to stay on gluten for another 2 months and have him retested and reevaluated to see if the symptoms persist through the prevacid.

Iguess we wait and hope the prevacid helps and if the tests are negative in 2 months and he is still like this we will make our decision where to go then. Hope everyone had a happy Thanksgiving!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ShayBraMom Apprentice

First off all congrats to the results, I guess the only bad thing aobut is that you have to start from scratch and still got no answer or solution! Well, either way with the resuklts, if in two month on the gluten with the meds there is no improvement you should maybestill try him for a longer while on glutenfree again, if he reacts positive to it then you got your answer. Bloodtests and what not are not the answer to everything, having a celiac in the familily just makes him naturally prone to be sensitive. There is such a thing as NCGS which is Non-Celiac-Gluten-Sensitivity, he could be one of them. If after all this he gets better again on glutenfree you have your answer and know what to do! Good luck!

Hi all

Well all of Michael's test results were negative. The doctor put him on an antibiotic called Flagil for a bacterial overgrowth in the gut (just in case) and put him back on Prevacid 15 mg for 2 months. Michael had pretty bad silent reflux and dairy and soy allergies as an infant until about 22 months, she wants to see if maybe the reflux is acting up again and making him uncomfortable, cranky, and it can also affect bm's. She is also having us go back to the allergist on Tuesday to have him rechecked for allergies. Right now he has only been on the prevacid for a few days, it takes 2 weeks to get to theraputic levels in the system. I haven't seen much change in him as of yet. She wants us to stay on gluten for another 2 months and have him retested and reevaluated to see if the symptoms persist through the prevacid.

Iguess we wait and hope the prevacid helps and if the tests are negative in 2 months and he is still like this we will make our decision where to go then. Hope everyone had a happy Thanksgiving!

shayesmom Rookie
Bloodtests and what not are not the answer to everything, having a celiac in the familily just makes him naturally prone to be sensitive. There is such a thing as NCGS which is Non-Celiac-Gluten-Sensitivity, he could be one of them. If after all this he gets better again on glutenfree you have your answer and know what to do! Good luck!

I have to agree with this one. My mother has had reflux/IBS for over a decade (going on 14 years now). She's been tested for celiac and allergies multiple times (both via blood and biopsy), has gone through all sorts of allergy treatments and has been prescribed each and every reflux med on the market. No great luck.

She's been toying with the gluten-free diet for two years now and it helps her immensely. However, she also seems to have problems with beans, dairy and tomatoes...which would require a bit more commitment on her part. I find it sad that she won't commit to the diet completely in light of the improvements she has experienced. But when asked, her response is, "I don't have celiac disease! All of my tests have been negative." Meanwhile, each and every time she overdoes it on her diet and begins to feel awful, she's right back to watching her gluten intake.

The point to this? ALWAYS trust your own instincts and observations. Never rely solely on test results. Test results can be a wonderful guide....but they are not infallible.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,821
    • Most Online (within 30 mins)
      7,748

    Me,Sue
    Newest Member
    Me,Sue
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • sleuth
      @fatjacksonthecat I have been doing some digging about the topic of nicotine and celiac.  I came across many studies that showed that the nicotine patch helped many with long covid and chronic fatigue syndrome.  I have a son who was diagnosed with celiac and his symptoms are severe when he is glutened.  He shows a lot of neurological inflammation and suffered with fatigue, brain fog, depression, anxiety and insomnia. There have been studies revealing that nicotine smoke actually masking celiac symptoms.  I also read that microdosing with a nictoine patch prevents one from addiction.  We are currently trying this out and so far it has lifted the brain fog and helped with anxiety and mood.  One of the studies I have read showed that it's not so much the dose, but the length of time a person is on the patch that showed improvements.  Many showed significant improvement as early as week 3 and continued through week 12.  We are taking 3 day breaks in between to make sure we don't down regulate the nicotine receptors.   How have things been for you?  Are you still chewing nicotine gum?  Perhaps, try the patch?  And how long did it take to ease up on your symptoms when glutened?
    • cristiana
      Hi @KathyR37 and a very warm welcome here.  I am so very sorry that you are going through all of this. I just wanted to check, have you ever been tested for any other gastrointestinal conditions? Cristiana  
    • trents
      @KathyR37, I would suspect that in addition to gluten intolerance, you have other food intolerances/sensitivities. This is very common in the celiac community. The most common offenders are oats, dairy, soy, corn and eggs with dairy and oats being the big two. Have you considered this? Have you tried keeping a food diary to detect patterns?
    • Theresa2407
      thank you for your advice.   I have always taken them and I use Stonehedge because they are in a glass bottle, but don't have to be refrigerated.  I also like they are 3rd party tested and state gluten free. But you never know if something better has come alone over the years.
    • KathyR37
      Thank you for your response. I have already learned about the info you sent but i appreciate your effort. I am the only one in my family cursed by this disease. I have to cook for them too. I make sure that my utensils are free of gluten and clean after using them for other food. I use non-porous pots and pans and  gloves when cooking for them. One huge problem I have is a gag reflex out of this world and if something doesn't taste good it is not going down. Most commercially made breads and such taste like old cardboard.Pastas are about the same. I did find one flour that I like and use it regularly, but it is so expensive! All gluten free food is way more expensive. I only eat twice a day because I cannot afford to buy all that. We live on a very low income so my food purchases are quite limited.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.