Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Brain Fog

lilypad23

By lilypad23
in Coping with Celiac Disease

Recommended Posts

lilypad23 Explorer
lilypad23
Posted

In some ways, my brain fog has gotten better. I'm better in social situations and I talk more. Also, thankfully, I've gotten much better at math. However, in some ways it has gotten worse. For instance, I'm a student and I used to be a pretty good writer. Even at my worst, I could still write a decent paper. However, this semester, its like I can't write at all. English is my favorite subject but every time I read something or start writing, its like my brain fog kicks in big time and everything that I just had in my head goes straight out. I don't know if its stress or something else, but its really starting to get on my nerves and its affecting my school work. Is this normal? Should I go to the doctor? I haven't been since July or August, before I got the official diagnosis from Enterolab. Also, how long does it take for brain fog to truly go away?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


darlindeb25 Collaborator
darlindeb25
Posted

From personal experience, my brain fog has never completely gone away. I keep notes, I write things down that I don't want to forget, then sometimes I forget where I put my notes. I think many of us celiac's also have ADD. I see many of the characteristic's in myself and now, over the years, I can look back and see them. I have 2 son's with ADD and I thought they inherited it from their dad!!! :P OOPS. Don't tell him, ok!

You may have to learn a new way of doing things. In time, you will pull it altogether again.

mftnchn Explorer
mftnchn
Posted

Brain fog can have more than one cause. For example, I experience this from lyme disease, and it is mentioned frequently by other patients too. You might want to check the lyme disease thread on this forum as it has a long list of symptoms, just in case.

kbtoyssni Contributor
kbtoyssni
Posted
From personal experience, my brain fog has never completely gone away. I keep notes, I write things down that I don't want to forget, then sometimes I forget where I put my notes. I think many of us celiac's also have ADD. I see many of the characteristic's in myself and now, over the years, I can look back and see them. I have 2 son's with ADD and I thought they inherited it from their dad!!! :P OOPS. Don't tell him, ok!

I don't feel my brain fog ever went away completely, either! It's very frustrating because I just can't remember things that I should know. I wish there was something I could do about it. I'm an engineer, I work with tons of smart people and then there's me who completely blanks on the basics.

mftnchn Explorer
mftnchn
Posted

Elevated mercury is another thing that does it.

jerseyangel Proficient
jerseyangel
Posted

My brain fog never went away completely, either. Actually, it's comforting to see that that's not uncommon (you know what I mean).

My gluten reactions are not as bad as they used to be, after 2+ years, but the brain fog decends and sticks around. I got CC'd a couple weeks ago, and I'm still very foggy and slow. I say I'm still stupid from the gluten :P

Even my husband notices it.... :( drinking something with some caffeine during the day helps me somewhat--temporarily.

lilypad23 Explorer
lilypad23
Posted
  • Author

Thank you guys for the advice. I appreciate it. Its kind of discouraging that it might not go away, but I guess I'll get used to it.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


miles2go Contributor
miles2go
Posted
Thank you guys for the advice. I appreciate it. Its kind of discouraging that it might not go away, but I guess I'll get used to it.

Neil Young has got to be a celiac, seriously...

"One of these days, and it won't be long."

:D

Margaret

Guest lorlyn
Guest lorlyn
Posted

My 11 year old daughter just had her first year anniversary being gluten free but she still has brain fog. It is most noticable in her school work. She goes to a private school so it is based on a harder level and is very hard. Her teacher will make comments like did'nt you styudy for your science test? She thinks she did good on it and then it will not be a good grade. She gets depressed because she does study and still will not do well. I thought it would had gone away by now but I guess it will be something she will always have to deal with :(

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,895
    • Most Online (within 30 mins)
      7,748
    MLB1970
    Newest Member
    MLB1970
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Patiently Waiting to See Results

      By Scott Adams · Posted

      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      Gluten free beer ?

      By Scott Adams · Posted

      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
    • trents
      Patiently Waiting to See Results

      By trents · Posted

      Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would need to find a dermatologist who is familiar with doing the biopsy correctly, however. The samples need to be taken next to the pustules, not on them . . . a mistake many dermatologists make when biopsying for dermatitis herpetiformis. 
    • trents
      How Come Gluten Didnt Bother Me In Italy

      By trents · Posted

      You state in an earlier post that you don't have celiac disease. Here in this post you state you will "be doing another test". What will this test be looking for? What kind of celiac disease testing have you had done? If you have used a Entero Labs it sounds like you have had stool testing done for celiac disease which is not widely accepted as a valid celiac disease diagnostic testing method. Have you had blood antibody testing for celiac disease done and do you realize that for antibody testing to be valid you must have been eating generous amounts of gluten for a period of weeks/months? 
    • Gigi2025
      How Come Gluten Didnt Bother Me In Italy

      By Gigi2025 · Posted

      No, I've not been diagnosed as celiac.  Despite Entero Labs being relocated to Switzerland/Greece, I'll be doing another test. After eating wheat products in Greece for 4 weeks, there wasn't any reaction.  However, avoiding it here in the states.   Thanks everyone for your responses.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.