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Brain Fog


lilypad23

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lilypad23 Explorer

In some ways, my brain fog has gotten better. I'm better in social situations and I talk more. Also, thankfully, I've gotten much better at math. However, in some ways it has gotten worse. For instance, I'm a student and I used to be a pretty good writer. Even at my worst, I could still write a decent paper. However, this semester, its like I can't write at all. English is my favorite subject but every time I read something or start writing, its like my brain fog kicks in big time and everything that I just had in my head goes straight out. I don't know if its stress or something else, but its really starting to get on my nerves and its affecting my school work. Is this normal? Should I go to the doctor? I haven't been since July or August, before I got the official diagnosis from Enterolab. Also, how long does it take for brain fog to truly go away?


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darlindeb25 Collaborator

From personal experience, my brain fog has never completely gone away. I keep notes, I write things down that I don't want to forget, then sometimes I forget where I put my notes. I think many of us celiac's also have ADD. I see many of the characteristic's in myself and now, over the years, I can look back and see them. I have 2 son's with ADD and I thought they inherited it from their dad!!! :P OOPS. Don't tell him, ok!

You may have to learn a new way of doing things. In time, you will pull it altogether again.

mftnchn Explorer

Brain fog can have more than one cause. For example, I experience this from lyme disease, and it is mentioned frequently by other patients too. You might want to check the lyme disease thread on this forum as it has a long list of symptoms, just in case.

kbtoyssni Contributor
From personal experience, my brain fog has never completely gone away. I keep notes, I write things down that I don't want to forget, then sometimes I forget where I put my notes. I think many of us celiac's also have ADD. I see many of the characteristic's in myself and now, over the years, I can look back and see them. I have 2 son's with ADD and I thought they inherited it from their dad!!! :P OOPS. Don't tell him, ok!

I don't feel my brain fog ever went away completely, either! It's very frustrating because I just can't remember things that I should know. I wish there was something I could do about it. I'm an engineer, I work with tons of smart people and then there's me who completely blanks on the basics.

mftnchn Explorer

Elevated mercury is another thing that does it.

jerseyangel Proficient

My brain fog never went away completely, either. Actually, it's comforting to see that that's not uncommon (you know what I mean).

My gluten reactions are not as bad as they used to be, after 2+ years, but the brain fog decends and sticks around. I got CC'd a couple weeks ago, and I'm still very foggy and slow. I say I'm still stupid from the gluten :P

Even my husband notices it.... :( drinking something with some caffeine during the day helps me somewhat--temporarily.

lilypad23 Explorer

Thank you guys for the advice. I appreciate it. Its kind of discouraging that it might not go away, but I guess I'll get used to it.


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miles2go Contributor
Thank you guys for the advice. I appreciate it. Its kind of discouraging that it might not go away, but I guess I'll get used to it.

Neil Young has got to be a celiac, seriously...

"One of these days, and it won't be long."

:D

Margaret

Guest lorlyn

My 11 year old daughter just had her first year anniversary being gluten free but she still has brain fog. It is most noticable in her school work. She goes to a private school so it is based on a harder level and is very hard. Her teacher will make comments like did'nt you styudy for your science test? She thinks she did good on it and then it will not be a good grade. She gets depressed because she does study and still will not do well. I thought it would had gone away by now but I guess it will be something she will always have to deal with :(

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    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
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      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
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