Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ceoliacs And Hashimotos


chenal52000

Recommended Posts

chenal52000 Rookie

hi my 8 yr old daughter is just starting meds for hashimotos and she is being tested for ceoliacs disease which i have does this mean she is at a greater risk of developing ceoliacs disease and my mum has diabeties type 1


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nutralady2001 Newbie

I have Hashi's and Coeliac, my grandmother had Type 1 diabetes so did 3 of my aunts and my son has it too. My daughter has lichen planus an a/i skin disease very similar to psoriasis

Rheumatoid arthritis is the other big auto-immune disease in our family, going back to my great grandmother that I know of I'm the only one I know with Hashi's and Coeliac

I think it's a matter of auto-immune diseases in general tending to run in families/ be genetic .......different members can have different diseases not necessarily the same ones it's a matter of being aware

Others may have a different perspective/understanding

Fiddle-Faddle Community Regular

There have been many, many reports on this board of various autoimmune disorders (including Hashimoto's, diabetes, and rheumatoid arthritis) greatly improving or even completely disappearing upon going strictly gluten-free.

This would suggest that it is more than a concurrence or cluster of related disorders, and that celiac might trigger the others.

Good luck convincing the pharmaceutical-industry-run medical system of that, though--they don't make any $ from a gluten-free diet, they make all their money from drugs and expensive tests.

mommida Enthusiast

There is a 10% correlation between Celiac and auto-immune thyroid disease.

Considering the other auto-immune family history, your daughter should be screened. You should also get familiar with the symptoms, in case she does not come back positive but develops them in the future.

Fiddle-Faddle Community Regular
There is a 10% correlation between Celiac and auto-immune thyroid disease.

I would guess that it is much, much higher than that. University of Chicago's 2006 study, indicating a confirmed diagnosis of celiac in 1/133 people (with an average of ELEVEN YEARS before being diagnosed) strongly suggests that far more people actually have celiac than the "experts" know.

My endocrinologist is now screening all thyroid patients and all diabetic patients for celiac.

trents Grand Master

If you have Celiac disease there is somewhere between a 1 in 20 and a 1 in 10 chance that a close relative will have it as well. Depends on who you read.

chenal52000 Rookie

thankyous all for your help my daughter is getting blood work done in Febuary for ceoliacs im hoping she doesnt get any having ceoliacs is the pits i have a 2nd cousin that has ceoliacs and diabeties type1 my mum and sister both have graves disease but as far as i know my daughter is the only 1 with hashimotos


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mommida Enthusiast
I would guess that it is much, much higher than that. University of Chicago's 2006 study, indicating a confirmed diagnosis of celiac in 1/133 people (with an average of ELEVEN YEARS before being diagnosed) strongly suggests that far more people actually have celiac than the "experts" know.

My endocrinologist is now screening all thyroid patients and all diabetic patients for celiac.

I totally agree. I think they should screen all auto-immune thyroid disease and diabetic patients.

All the statistics are changing daily, and the rates and incidences keep going up.

Laura

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here

    2. - trents replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here

    3. - Theresa2407 replied to Theresa2407's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Probiotics

    4. - KathyR37 replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,818
    • Most Online (within 30 mins)
      7,748

    STy
    Newest Member
    STy
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      Hi @KathyR37 and a very warm welcome here.  I am so very sorry that you are going through all of this. I just wanted to check, have you ever been tested for any other gastrointestinal conditions? Cristiana  
    • trents
      @KathyR37, I would suspect that in addition to gluten intolerance, you have other food intolerances/sensitivities. This is very common in the celiac community. The most common offenders are oats, dairy, soy, corn and eggs with dairy and oats being the big two. Have you considered this? Have you tried keeping a food diary to detect patterns?
    • Theresa2407
      thank you for your advice.   I have always taken them and I use Stonehedge because they are in a glass bottle, but don't have to be refrigerated.  I also like they are 3rd party tested and state gluten free. But you never know if something better has come alone over the years.
    • KathyR37
      Thank you for your response. I have already learned about the info you sent but i appreciate your effort. I am the only one in my family cursed by this disease. I have to cook for them too. I make sure that my utensils are free of gluten and clean after using them for other food. I use non-porous pots and pans and  gloves when cooking for them. One huge problem I have is a gag reflex out of this world and if something doesn't taste good it is not going down. Most commercially made breads and such taste like old cardboard.Pastas are about the same. I did find one flour that I like and use it regularly, but it is so expensive! All gluten free food is way more expensive. I only eat twice a day because I cannot afford to buy all that. We live on a very low income so my food purchases are quite limited.
    • Scott Adams
      What you've described—the severe weight loss, the cycle of medications making things worse, and the profound fear of eating before leaving the house—is a heavy burden to carry for 15 years. It is absolutely not your fault. While everyone's journey with celiac is different, the struggles with the learning curve, social isolation, and dietary grief are feelings many in the community know all too well. Your question about whether you should just eat what you want and manage the symptoms is a heartbreaking one, born from years of frustration. It's crucial to know that the diarrhea is a sign of ongoing damage to your small intestine from gluten, and simply managing the symptom with Imodium doesn't stop that internal harm or the risk of other complications. The fact that you are still getting sick within an hour of eating, even while trying to be gluten-free, is a huge red flag that something isn't right. This could be due to cross-contamination in your kitchen (e.g., using a shared toaster, colander, or condiment jars), hidden gluten in foods, or the possibility of another concurrent condition like refractory celiac disease. Don't give up!  This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.