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Tmi Question Sorry :(


Glutenfreefamily

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Glutenfreefamily Enthusiast

I cant call it sciatica since its literally everywhere on my body. Its a horrid feeling. When I have diarrhea from gluten or any other intolerance my arms, legs, back, butt all the way down to my fingers feels like Im having an emg and my nerves are on high alert and being highly stimulated while I am on the pot. It hurts alot. I literally shake because it hurts so much for that few minutes. Does anyone know what this is or have this? I have had this for years and havent mentioned it to my dr but its starting to make me wonder if this is something I should mention.

I have had recent mri's with contrast for another problem and my mri showed no abnormalities.

Thanks :)


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miles2go Contributor

I think doctors have a wonderful way of not getting you to tell them all of your problems, sometimes, perhaps subconsciously. Not mentioning everything with me that isn't going exactly right is one of my pet peeves about myself and I don't even mind when they look at me like I'm crazy. We seem more able to talk about the ears, nose and throat than other parts of our bodies and when you think about it, that's kind of ridiculous, unless you're actually having an upper respiratory ailment. It takes a lot of courage to tell a doc about all your ailments, sometimes, but hella, who's going to benefit from it?

Bestest, Gffamily!

Glutenfreefamily Enthusiast

Thanks I see him in January right after the new year for my regular appt. I do have an appt with my ob/gyn so I may mention it to her. I guess I just hate all these medical issues that just pile up it seems they are popping out everywhere and Im just sick of being diagnosed. I know its not a very smart way of going about it but its my little protest ;).

I tried googling it since I self diagnose usually before I go to the dr. but I couldnt find a thing on the net.

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    • trents
      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    • Ello
      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
    • trents
      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to educate yourself as to how gluten is hidden in the food supply. There's more to it than just avoiding the major sources of gluten like bread and pasta. It is hidden in so many things you would never expect to find it in like canned tomato soup and soy sauce just to name a few. It can be in pills and medications.  Also, your "yellow diarrhea, constipation and bloating" though these are classic signs of a gluten disorder, could also be related to the post surgical shorter length of your small bowel causing incomplete processing/digestion of food.
    • Ello
      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
    • trents
      There are two gluten-related disorders that share many of the same symptoms but differ in nature from each other. One is known as celiac disease or "gluten intolerance". By nature, it is an autoimmune disorder, meaning the ingestion of gluten triggers the body to attack it's own tissues, specifically the lining of the small bowel. This attack causes inflammation and produces antibodies that can be detected in the blood by specific tests like the TTG-IGA test you had. Over time, if gluten is not withheld, this inflammation can cause severe damage to the lining of the small bowel and even result in nutrient deficiency related health issues since the small bowel lining is organ where all the nutrition found in our food is absorbed.  The other is NCGS (Non Celiac Gluten Sensitivity or just "gluten sensitivity") which we know less about and are unsure of the exact mechanism of action. It is not an autoimmune disorder and unlike celiac disease it does not damage the lining of the small bowel, though, like celiac disease, it can cause GI distress and it can also do other kinds of damage to the body. It is thought to be more common than celiac disease. Currently, we cannot test for NCGS. Celiac disease must first be ruled out to arrive at a diagnosis of NCGS. Both disorders require elimination of gluten from the diet.  Either of these disorders can find their onset at any stage of life. We know that celiac disease has a genetic component but the genes are inactive until awakened by some stress event. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% develop active celiac disease. The incidence of NCGS is thought to be considerably higher. I hope this helps.
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