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Tmi Question Sorry :(


Glutenfreefamily

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Glutenfreefamily Enthusiast

I cant call it sciatica since its literally everywhere on my body. Its a horrid feeling. When I have diarrhea from gluten or any other intolerance my arms, legs, back, butt all the way down to my fingers feels like Im having an emg and my nerves are on high alert and being highly stimulated while I am on the pot. It hurts alot. I literally shake because it hurts so much for that few minutes. Does anyone know what this is or have this? I have had this for years and havent mentioned it to my dr but its starting to make me wonder if this is something I should mention.

I have had recent mri's with contrast for another problem and my mri showed no abnormalities.

Thanks :)


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miles2go Contributor

I think doctors have a wonderful way of not getting you to tell them all of your problems, sometimes, perhaps subconsciously. Not mentioning everything with me that isn't going exactly right is one of my pet peeves about myself and I don't even mind when they look at me like I'm crazy. We seem more able to talk about the ears, nose and throat than other parts of our bodies and when you think about it, that's kind of ridiculous, unless you're actually having an upper respiratory ailment. It takes a lot of courage to tell a doc about all your ailments, sometimes, but hella, who's going to benefit from it?

Bestest, Gffamily!

Glutenfreefamily Enthusiast

Thanks I see him in January right after the new year for my regular appt. I do have an appt with my ob/gyn so I may mention it to her. I guess I just hate all these medical issues that just pile up it seems they are popping out everywhere and Im just sick of being diagnosed. I know its not a very smart way of going about it but its my little protest ;).

I tried googling it since I self diagnose usually before I go to the dr. but I couldnt find a thing on the net.

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    • trents
      @cristiana, I'm thinking the intensity of our response to the same amount of gluten can vary from time to time. Our bodies are a dynamic entity. 
    • Scott Adams
      I'm going to try Jersey Mike's soon--we have one nearby. Thanks for sharing!
    • cristiana
      Hi @trents Two things can happen:  1/ For a very small gluten hit, I will get a slightly sore stomach for a few days, maybe a day or two following the glutening, and (TMI warning) maybe slightly loose BMs with mucus  for a couple of days.  2/ For a substantial glutening, and thankfully it's only happened once in recent years,  I get bad chills, followed by vomiting, and my heartbeat is all over the place and I can hardly stand.  It's pretty extreme.  That happens within about 2 hours of eating the gluten.  I might feel slightly dizzy for a couple of days after the glutening episode. Interestingly I've just been out to a cafe which hitherto has made a big thing about how their french fries are cooked in a separate fryer.  I shared some with a friend and they were served with chilli sauce, jalapenos, cheddar cheese and fried onions.  Definitely not health food!  Anyway,  I'd eaten half when I realised I'd not checked the menu to ensure that this dish is still gluten-free - and it turns out it isn't!!!  They've changed the ingredients and the fried onions are now cooked with wheat.   I came home expecting to feel dreadful as I had no idea how much gluten I have consumed but so far if anything I feel just little queasy.  I think I'd have thrown up by now had there been a lot of gluten in the onions.  
    • trents
      It might be wise to start him on small amounts and work up to 10g. Monitor how he reacts. Some people simply cannot complete the gluten challenge because it makes them too ill. By the way, you can buy powdered gluten in health food stores, at least here in the states you can. With a food scale, it would be easy to measure the amount being consumed in a day. I'm not sure what the intensity of reaction to gluten tells you about what's actually going on with regard to celiac disease. I mean there are some celiacs like me who don't seem to react to minor exposure amounts but who get violently ill with larger exposures. Then there are celiacs who get some kind of reaction to even the tiniest amount of exposure but don't necessarily get violently ill. And how the reaction manifests itself is very different for different people. Some, like me, experience emesis and diarrhea. Others just get brain fog. Others get joint pain. It's all over the map.
    • melthebell
      That's interesting - that's a lot of gluten! I'll be very curious to see how my son responds to the gluten. In some ways, I guess having a strong reaction would tell us something? It's tough navigating this as a parent and having it be not so clear cut ;\
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