Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Fear Maltodextrin, Modified Food Starch And Caramel Color No More


dsaltzm

Recommended Posts

dsaltzm Newbie

My nutritionist at the Celiac Disease Center at Columbia let me know from her recent conversations with the FDA they are now saying that Modified Food Starch, MaltoDextrin, and Carmel Color are all safe unless it is in a protein. I.E If it is managed by the FDA it is safe. If it is managed by the USDA it to be questioned and avoided. I hope this helps some people. It has allowed me to put alot of foods back into my diet.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator

How do you know the difference between food approved by the FDA and the USDA?

hayley3 Contributor

I have to disagree with that. These are the same institutions that said it was okay to eat trans fats many years ago. And not to eat eggs, and so on.

larry mac Enthusiast
I have to disagree with that. These are the same institutions that said it was okay to eat trans fats many years ago. And not to eat eggs, and so on.

Scientific and medical thinking changes as knowledge improves.

However, in addition to that, these agencies primary goal is insuring businesses are unencumbered with as little oversight as possible. Wouldn't want to cut into they're profits with too many regulations, fines, or penalties. Ditto for the EPA, which has been seriously weakened in recent years. We can thank the Bush administration for that. You know, free market and all (free to rip us off)!

I don't worry about Modified Food Starch, MaltoDextrin, and Carmel Color anyway. If it doesn't have the word "wheat", or "malt extract" in it, I'm good to go. Haven't had a problem so far.

best regards, lm

Guest CD_Surviver

I just trusted the carmel color thing and drank a cup of coke today and now i am apying for it. that it the only thing that i had today that i could figure had gluten. anyone else want to tell my why this would happen if it were not the carmel color?

Lauren

ravenwoodglass Mentor
My nutritionist at the Celiac Disease Center at Columbia let me know from her recent conversations with the FDA they are now saying that Modified Food Starch, MaltoDextrin, and Carmel Color are all safe unless it is in a protein. I.E If it is managed by the FDA it is safe. If it is managed by the USDA it to be questioned and avoided. I hope this helps some people. It has allowed me to put alot of foods back into my diet.

Isn't it nice of the officials to tell me how much poison my body will tolerate. Of course these are the same folks who don't consider you to be celiac unless you have 2 specific genes and totally destroyed villi. I would take this info sit a grain of salt, from a cracker free shaker.

hathor Contributor
How do you know the difference between food approved by the FDA and the USDA?

I just posted this yesterday on another thread about USDA jurisdiction (important because the allergen labeling reg's currently only apply to FDA food):

Meat, poultry and egg products. Technically, something could have just a little meat in it and that would be USDA jurisdiction, not FDA. How the jurisdiction is divided up in practice is rather confusing. Researching yesterday, I found a public hearing for a rulemaking where the agencies were trying to rationalize things. From what I could tell, no action has been taken. Anyway, this is an explanation:

Open Original Shared Link

I found another explanation that 2 to 3 percent meat is enough for USDA jurisdiction. But I think for some items they have deferred to the FDA. It looks like the USDA decides what it wants jurisdiction for; what it doesn't want the FDA gets. I couldn't find a good and simple explanation at all. But finally I stopped because, heck, I'm a vegan so I'm not going to be eating USDA food anyway. Anyone else can research this for themselves if interested ...

It really makes no sense. Meat pizzas are regulated by the USDA. Cheese pizza by the FDA.

I also found that the USDA has said that they are going to issue allergen labelling rules like the FDA has. If I'm reading this correctly, the timetable calls for the Notice of Proposed Rulemaking to go out in March of 2008: Open Original Shared Link


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lovegrov Collaborator

Coke is gluten-free. Wasn't the caramel color.

ravenwoodglass Mentor
I just trusted the carmel color thing and drank a cup of coke today and now i am apying for it. that it the only thing that i had today that i could figure had gluten. anyone else want to tell my why this would happen if it were not the carmel color?

Lauren

Just wanted to let you know your not alone. My DS and I are both very sensitive and many carmel colored sodas gluten us also. Repeatedly. So many have no problem with it that we kept trying figuring it must be something else. Nope it's the coke. Trust your body and your reactions, for me and my DS the DH blisters from these products make it really obvious it is a gluten reaction.

dsaltzm Newbie

The way that my nutritionist explained it to me any carbohydrate with Maltodextrin, Modified Food Starch or Carmel Color is safe.If it is a protein you should be wary of these items and avoid them. Vegetable starch should be avoided as well. (There should be a USDA or FDA logo on all US manufactured products) I was told that the same rules apply for imported products, but I believe is slightly less reliable.

I know that many people have posted that they find that it makes them sick or not to trust institutions. I can only hope that the Celiac disease center is giving me the most accurate information possible. If I continue to get sick then I will re-evaluate. I think this is a decision we all have to make for ourselves. But only emphasizes the need to have yearly check ups to make sure that you are removing all gluten and not causing any more damage. :lol:

ravenwoodglass Mentor

The one thing we can count on with this diet is that it is confusing and different 'experts' will tell us different things. The key for each of us is whether we react or not. Some of us have been misdiagnosed for so long that our damage and sensitivity can be extreme. The only way we have to know for sure if stuff is safe when it is questionable, like carmel coloring, is to try the product when we are feeling well, use the product for at least 3 days with no other questionable items and watch for a reaction. This can be hard with a multiple ingredient item, especially if we have more than one intolerance. This can be really confusing if we happen to have an intolerance that we don't know about. Below I have posted another checklist that seems to differ from the one your nutritionist gave you. Not critizing your nutritionist just pointing out that on the issue of gluten there are many different levels of what the experts consider to be safe and what they feel needs to be checked before consumption. From what yours told you wheat germ oil would be safe, and it most definately is not. We sometimes need to research different views from different sources and blend together what the final expert, our own bodies, is telling us and listen to it.

Open Original Shared Link

Checklist for the Patient: Take this list with you when you shop. Look for products with "gluten-free" written on the label. It may not be clear what products contain gluten. This list contains items to look for when reading food and drink labels. Avoid buying products that have one or more of these ingredients:

__ Caramel flavoring, or non-United States manufactured caramel coloring.

__ Cereal extract or additive.

__ Cereal protein.

__ Edible starch or wheat starch.

__ Emulsifiers.

__ Flour.

__ Fillers

__ Hydrolyzed, hydrogenated, or texturized vegetable or plant protein (HVP or HPP).

__ Dextrin.

__ Malt, malt flavoring, or malt extract.

__ Mono-glycerides or di-glycerides

__ Stabilizers, such as gluten stabilizers.

__ Thickeners, such as modified food starch

__ Vegetable gum or protein, such as oat gum.

blueeyedmanda Community Regular

Thats very good advice Raven. :)

lovegrov Collaborator

I'm sorry you seem to react to a product like Coke, but are you saying that Coke is lying and is using a caramel color from overseas? Caramel color made in the U.S. is definitely gluten-free and they say the product is gluten-free.

I'm not sure what country the website you gave is geared toward, but while much of it is good information, there are definitely some things on their list that do NOT have to be avoided. New folks follwing this would definitely be avoiding things they can have.

ravenwoodglass Mentor
I'm sorry you seem to react to a product like Coke, but are you saying that Coke is lying and is using a caramel color from overseas? Caramel color made in the U.S. is definitely gluten-free and they say the product is gluten-free.

I'm not sure what country the website you gave is geared toward, but while much of it is good information, there are definitely some things on their list that do NOT have to be avoided. New folks follwing this would definitely be avoiding things they can have.

It is an US site. You check what you feel needs to be checked, you can avoid what you choose to avoid, I shall choose to listen to my body and check products. My reactions are severe and obvious. I am not saying that coke is 'lying' with the labeling laws they have in effect now they can legally say that this is gluten free if it tests below a certain amount. We saw this in Rice Dream when they started labeling their milk gluten-free and hid the barley under flavoring. Didn't change the formula but it now tests under the limit and barley is not required by law to be listed. It is a small amount and not all will react but many do. For me any amount of gluten is too much. I am not alone in my reactions, you are not alone in that you do not react. Each of us need to determine how much poison we can take and remain healthy. That level differs and what is 'safe' for one may have another remaining symptomatic and lead to a false diagnosis of refractory sprue or to people thinking the diet is not working. You are entitled to your opinions.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,917
    • Most Online (within 30 mins)
      7,748

    tiffanygosci
    Newest Member
    tiffanygosci
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • tiffanygosci
      Hi! I had my first episode of AFib last May when I was 30 (I have had some heart stuff my whole life but nothing this extreme). I was not diagnosed with celiac until the beginning of this month in October of 2025. I was in the early stages of celiac, so I'm not sure if they were related (maybe!) All of my heart tests came back normal except for my electrolytes (potassium and magnesium) that were low when the AFib occurred. I also became pregnant with our third and last baby a couple weeks after I came back from that hospital stay. I had no heart complications after that whole thing. And I still haven't over a year later. It was definitely scary and I hope it doesn't happen again. I drink an electrolyte drink mix about every day, and I'm sure being on a gluten-free diet will help my body even more! I will pray for you in this. Taking care of our bodies is so challenging but Jesus is with us every step of the way. He cares and He sees you!
    • knitty kitty
      I followed the Autoimmune Protocol Diet which is really strict for a while, but later other foods can be added back into your diet.  Following the AIP diet strictly allows you digestive system to heal and the inflammation to calm down.  Sort of like feeding a sick baby easy to digest food instead of spicy pizza.   It's important to get the inflammation down because chronic inflammation leads to other health problems.  Histamine is released as part of the autoimmune response to gluten.  High histamine levels make you feel bad and can cause breathing problems (worsening asthma), cardiovascular problems (tachycardia), and other autoimmune diseases (Hashimoto's thyroiditis, diabetes) and even mental health problems. Following the low histamine version of the AIP diet allows the body to clear the histamine from our bodies.  Some foods are high in histamine.  Avoiding these makes it easier for our bodies to clear the histamine released after a gluten exposure.   Vitamin D helps regulate the immune system and calm it down.  Vitamin D is frequently low in Celiacs.  The B Complex vitamins and Vitamin C are needed to clear histamine.   Supplementing with essential vitamins and minerals boosts your intestines' ability to absorb them while healing.   Keep in mind that gluten-free facsimile foods, like gluten-free bread, are not enriched with added vitamins like their gluten containing counterparts are.   They are empty calories, no nutritional value, which use up your B vitamins in order to turn the calories into fuel for the body to function.   Talk to your doctor or nutritionist about supplementing while healing.  Take a good B Complex and extra Thiamine in the form Benfotiamine (shown to promote gut health).  Most B Complex vitamins contain thiamine mononitrate which the body cannot utilize.  Meats and liver are good sources of B vitamins.   Dr. Sarah Ballantyne wrote the book, the Paleo Approach.  She's a Celiac herself.  Her book explains a lot.   I'm so glad you're feeling better and finding your balance!
    • klmgarland
      So I should not eat my gluten free bread?  I will try the vitamins.  Thank you all so very much for your ideas and understanding.  I'm feeling better today and have gathered back my composure!
    • knitty kitty
      Some people prefer eating gluten before bed, then sleeping through the worst symptoms at night.  You might want to try that and see if that makes any difference.   Several slices of toast for breakfast sounds okay.  Just try to work up to the Ten grams of gluten.  Cookies might only have a half of a gram of gluten.  The weight of the whole cookie is not the same as the amount of gluten in it.  So do try to eat bread things with big bubbles, like cinnamon rolls.   Yeah, I'm familiar with the "death warmed over" feeling.  I hope you get the genetic test results quickly.  I despise how we have to make ourselves sick to get a diagnosis.  Hang in there, sweetie, the tribe is supporting you.  
    • Clear2me
      Thank you, a little expensive but glad to have this source. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.