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Prayer Request

blueeyedmanda

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Guhlia Rising Star
Guhlia
Posted

Being sick is hard enough without running into insensitive and closed minded doctors. I hope Carrie can figure things out before her insurance coverage ends.

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ravenwoodglass Mentor
ravenwoodglass
Posted
Carrie went to a GI dr today, she has insurance coverage until Jan. 1st. So up until now the family dr was treating her, but said it would be a good idea to see a GI dr.

Carrie called me tonight in tears, she said the DR did not listen to her at all and just kept saying IBS IBS IBS.....well yea that could be an option but lets look at them all. She said he didnt seem to care about what she was describing. In part of the exam he did a rectal exam and she was very uncomfortable with that....I think that really upset her.

I suggested a new dr. She needs to see someone who will listen, she is young and the sooner we figure out the problem the better....

Celiac panel still pending....

Will she be willing to just try the diet? I had many degrading and depressing doctor appointments and just wish I knew that the diet response was the truest test there is. Please encourage her to just get on it if she has already had her blood draw.

blueeyedmanda Community Regular
blueeyedmanda
Posted
  • Author

I am going to talk to her about that when I go visit tomorrow night. It would probably be easier to explain in person and with some examples to show her.

jerseyangel Proficient
jerseyangel
Posted
I am going to talk to her about that when I go visit tomorrow night. It would probably be easier to explain in person and with some examples to show her.

That sounds like a very good idea, Amanda. I hope she will be open to at least trying the diet--she has nothing to lose by doing that, since she's already had her blood drawn for the panel.

I'll keep her in my prayers :)

blueeyedmanda Community Regular
blueeyedmanda
Posted
  • Author

Celiac Panel is negative.

They are leaning towards Crohn's and she needs a colonoscopy ASAP....she is seeing a different dr on Friday.

confused Community Regular
confused
Posted

Keep us updated, i will continue to keep her in my thoughts and prayers, hopefully they can do the oclonscopy as soon as possible, or maybe she will get a good dr that will do both scopes at once, just to make sure.

Enjoy your time with your sister this weekend.

paula

Joni63 Collaborator
Joni63
Posted

I just wanted to tell you that my thoughts and prayers are with your sister. I hope she gets some answers very soon.

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blueeyedmanda Community Regular
blueeyedmanda
Posted
  • Author

Thanks everyone we appreciate it. At least I know you guys understand the whole GI scare issues, we have all been there!

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    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
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      High DGP-A with normal IGA

      By knitty kitty · Posted

      Food and environmental allergies involve IgE antibodies.  IgE antibodies provoke histamine release from mast cells.   Celiac disease is not always visible to the naked eye during endoscopy.  Much of the damage is microscopic and patchy or out of reach of the scope.  Did they take any biopsies of your small intestine for a pathologist to examine?  Were you given a Marsh score? Why do you say you "don't have intestinal damage to correlate with lifelong undiagnosed celiac disease"?   Just curious.  
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

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