Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Im So Lucky


confused

Recommended Posts

confused Community Regular

To have such great parents. Yesterday they came to see me, first time they have left the house since the doggie passed away. Well my dad brought me a couple of articles from the paper and a few glut4en free recipes. I was crying like an baby cause they thought of me, and because i know so many on here dont have families that get this disease at all. And yet my parents are the best. They even talked us into going home for the holidays and they are willing to cook the whole meal gluten free and are going to buy new dishes to cook it all in. Of course i have to tell them what they have to buy and stuff, but i just thought it was so wonderful.

I really dont think i would be coping with all of this if it wasnt for my family and the support i get on here.

Im still nervous about christmas eve, since it will be at hubbys sister. She makes a huge spread of mexican foods, like chicken mole, posole, enchiladas and such. She does have crohns so she might be able to make something that i can eat, if not i can make something that i can eat. Or heck i will just drink til im merry and not worry about food, believe me i will need to drink to be with all of that family lol. Just pray i dont tell them how i really feel after everything they pulled when the brother passed away.

They eve got me a hotel room with an kitchen, just in case i do have to cook some of my own food.

paula


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



blueeyedmanda Community Regular

Oh Paula, they sounds like wonderful parents. I am glad you have the bond with your parents, there are a lot of people I know who are not close with their parents at all. My mom is like my best friend. I know how you feel about being lucky. :)

confused Community Regular

They are the best parents any person can have. My mom is my best friend, she was my maid of honor when i got married, people were kinda shocked i picked her, but it was the best choice. I think they are just so happy that i finally found what was wrong with me, cause for so many years i would always get so sick when we had parties or celebrations and i would get so sick at them. I even left my husband to be on the alter cause i was so sick and had to run to the bathroom. I cant wait to renew our vows for our 10th anniversary ad my parents 35th next year.

paula

woolwhippet Explorer

I am so happy for you. You are lucky to have wonderful parents but they are alo lucky to have a child who appreciates their efforts!

mamaw Community Regular

Glad you have a wonderful ,caring family. It makes life so much easier....enjoy your holidays.........

mamaw

An-Onion Rookie

I'm so jealous. My parents keep trying to get me to reintorduce gluten into my diet "so you will build up a resistance", despite the massive improvements to my health in the two months I've been Gluten-free Casein-free. And even with them seeing what happened when I glutened myself this weekend. :( :(

Hopefully I'll actually stay healty enough to keep a job and can move out soon.

babygirl1234 Rookie

you have great parents, my family well they can pretty much care less if i eat or not, the only one that cookes what i can have is my aunt she has to cook what i can have because i live with her, but my other aunts can give a you know what about me, its always what they want do they ever call me to see what i can have? hell no, i just go to family things just to keep the peace, otherwise i wouldnt be going, dont you just hate when family members ask you "why are you on this diet you dont have to be your fine" in so many words i feel like saying hello stupid im on this diet because i cant have gluten in otherwords NO WEAT OAT BARLY ect and when you tell them for the 100000th time they look at you like you have 2 heads


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - asaT replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      nothing has changed

    2. - nanny marley replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      IBS-D vs Celiac

    3. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      45

      Supplements for those Diagnosed with Celiac Disease

    4. - par18 replied to Woodster991's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Is it gluten?

    5. - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      IBS-D vs Celiac

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,342
    • Most Online (within 30 mins)
      7,748

    Muhammad
    Newest Member
    Muhammad
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • asaT
      Scott, I am mostly asymptomatic. I was diagnosed based on high antibodies, low ferritin (3) and low vitamin D (10). I wasn't able to get in for the biopsy until 3 months after the blood test came back. I was supposed to keep eating gluten during this time. Well why would I continue doing something that I know to be harmful for 3 more months to just get this test? So I did quit gluten and had the biopsy. It was negative for celiacs. I continued gluten free with iron supps and my ferritin came back up to a reasonable, but not great level of around 30-35.  Could there be something else going on? Is there any reason why my antibodies would be high (>80) with a negative biopsy? could me intestines have healed that quickly (3 months)?  I'm having a hard time staying gluten free because I am asymptomatic and i'm wondering about that biopsy. I do have the celiacs gene, and all of the antibody tests have always come back high. I recently had them tested again. Still very high. I am gluten free mostly, but not totally. I will occasionally eat something with gluten, but try to keep to a minimum. It's really hard when the immediate consequences are nil.  with high antibodies, the gene, but a negative biopsy (after 3 months strict gluten-free), do i really have celiacs? please say no. lol. i think i know the answer.  Asa
    • nanny marley
      I have had a long year of testing unfortunately still not diagnosed , although one thing they definitely agree I'm gluten intolerant, the thing for me I have severe back troubles they wouldnt perform the tests and I couldn't have a full MRI because I'm allergic to the solution , we tryed believe me  I tryed lol , another was to have another blood test after consuming gluten but it makes me so bad I tryed it for only a week, and because I have a trapped sciatic nerve when I get bad bowels it sets that off terribly so I just take it on myself now , I eat a gluten free diet , I'm the best I've ever been , and if I slip I know it so for me i have my own diagnosis  and I act accordingly, sometimes it's not so straight forward for some of us , for the first time in years I can plan to go out , and I have been absorbing my food better , running to the toilet has become occasionally now instead of all the time , i hope you find a solution 🤗
    • asaT
      I was undiagnosed for decades. My ferritin when checked in 2003 was 3. It never went above 10 in the next 20 years. I was just told to "take iron". I finally requested the TTgIgA test in 2023 when I was well and truly done with the chronic fatigue and feeling awful. My numbers were off the charts on the whole panel.  they offered me an endoscopic biopsy 3 months later, but that i would need to continue eating gluten for it to be accurate. so i quit eating gluten and my intestine had healed by the time i had the biopsy (i'm guessing??). Why else would my TTgIgA be so high if not celiacs? Anyway, your ferritin will rise as your intestine heals and take HEME iron (brand 4 arrows). I took 20mg of this with vitamin c and lactoferrin and my ferritin went up, now sits around 35.  you will feel dramatically better getting your ferritin up, and you can do it orally with the right supplements. I wouldn't get an infusion, you will get as good or better results taking heme iron/vc/lf.  
    • par18
      Scott, I agree with everything you said except the term "false negative". It should be a "true negative" just plain negative. I actually looked up true/false negative/positive as it pertains to testing. The term "false negative" would be correct if you are positive (have anti-bodies) and the test did not pick them up. That would be a problem with the "test" itself. If you were gluten-free and got tested, you more than likely would test "true" negative or just negative. This means that the gluten-free diet is working and no anti-bodies should be present. I know it sounds confusing and if you don't agree feel free to respond. 
    • SilkieFairy
      I realized it is actually important to get an official diagnosis because then insurance can cover bone density testing and other lab work to see if any further damage has been done because of it. Also, if hospitalized for whatever reason, I have the right to gluten-free food if I am officially celiac. I guess it gives me some legal protections. Plus, I have 4 kids, and I really want to know. If I really do have it then they may have increased risk. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.