Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Doctor Prescribed Statins


Lisa

Recommended Posts

Lisa Mentor

Hello Everyone,

My doctor, due to family history and high cholesterol, has put me on a generic statin. I have developed some muscle strain and cramping, that I attributed to increased exercise. Although, this muscle strain and weakness never resolves with rest or continued exercise. I have always felt rather agile and now, after sitting in a chair, I get up and limp across the room until my muscles can acclimate to a new position. Sitting on the floor is no problem, getting up is a near impossible. All of this began a few months ago when I began taking Simvastatin 10mgs.

I have done some looking on the Internet and now I am concerned. Many sites indicate that statins can diminish the absorbing of Co-Q10 which can effect the muscles.

Anyone with similar experience? Advise?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator

Lisa, it has been shown from various studies (I can find you examples if you want) that it is desirable for older women to have a higher level of cholesterol. First of all, our bodies cannot function without cholesterol. And secondly, women with higher cholesterol levels appear to live much longer than women with low levels (that is not true for men, curiously).

Plus, while statins will lower the risk of heart attack very, very slightly, they cause a much higher incidence of stroke.

And you are right about the coenzyme Q10. It is absolutely essential for heart health, and statins will hinder its absorption.

Personally, if it was me with the high cholesterol, I would not take statins but rather ignore that fact for the most part.

On the other hand, if you want to keep taking them, you need to take fairly high doses of CQ10 for your hearts sake.

Lisa Mentor

Thanks Ursa.

I also found it curious that studies show that statins offer no benefit for the prevention of plaque in the heart, which is what my brother is experiencing currently, who is eight years older than I. My father passed away at 62 from his second heart attack.

That and my 250 cholesterol is the reason he put me on statins. I don't think it is settling well with me. Perhaps I can work better on lowering my number through diet and exercise and get off the statins.

Thank you for your input.

Ursa Major Collaborator

Only 250? Anything under 200 is dangerous (contrary to what most doctors think). Putting somebody on statins for a cholesterol value of 250 is ridiculous (in fact, statins are a terrible idea, no matter what, and are of no value to anybody, except for the drug companies).

By the way, cholesterol rich foods will NOT cause high cholesterol. In fact, it has no influence on your cholesterol levels whatsoever (like animal fat, or eggs for instance). On the other hand, refined carbs are the enemy.

Low fat diets cause heart attacks, because saturated fat is essential for life (not hydrogenated fat though, and you can't do well on only vegetable oil, either).

Open Original Shared Link

Ursa Major Collaborator

Oops, double post

ravenwoodglass Mentor

I have to totally agree with Ursa on this and she puts it much better than I could.

One of the best ways I have found to keep cholesterol in check in by copious use of olive oil and garlic in foods. Hummus is one of the tastiest cholesterol lowering foods there is, when I was a chef we had one person I worked with that lowered his just by eating hummus everyday at work. He didn't change his diet otherwise at all and wasn't taking any drugs. It did take a couple of months but boy did he give me an undeserved hug when he got his numbers.

One last note, celiac and the inflammatory processes that we get with it can cause inflammation in the heart tissues. This also can lead to a build up of plaque. My cholestrol has always been extremely low, due to celiac (duh) but when I had testing done not long ago on my heart the results looked like I lived off burgers and milkshakes my whole life. Certainly not the case.

Lisa Mentor

Can you stop statins immediately, or do you have to ween off as in SSI's? I'm ready to do it asap.

I stopped smoking and I stopped drinking in August. I ride a bike 5 miles a day (most days) and walk a mile. All for better health. And to feel so awful on this drug?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jerseyangel Proficient

Lisa,

I have what they refer to as "borderline"--228. I don't plan to do anything drug-wise for it, even though my doctor has suggested it if I don't "get the number down". I notice it's the first thing the doctors tend to jump to. My dad was put on a statin, his cholesterol was always in the 150 range--as soon as it crept up a bit, his doctor put him right on the drug. He has side effects, but is 80, and won't hear of doing anything other than what his doctor says. :(

I also feel that the statins are hard on the liver. I don't know if they can be stopped all at once--I've never heard that they can't be, but you want to be sure about that if you do stop them.

Jestgar Rising Star

I think you actually want to keep drinking....

Moderate amounts of alcohol raise the 'good' cholesterol.

Lisa Mentor
I think you actually want to keep drinking....

Moderate amounts of alcohol raise the 'good' cholesterol.

Yup, red wine is especially good for the cholesterol, but the trade off is that my liver is not a happy camper with alcohol which, in my case, raises my cholesterol to an unhealthy level. Kind of a catch 22, huh? <_<

The statins were prescribed not so much for today, but for years down the road when I may have heart issues.

ravenwoodglass Mentor
Can you stop statins immediately, or do you have to ween off as in SSI's? I'm ready to do it asap.

I stopped smoking and I stopped drinking in August. I ride a bike 5 miles a day (most days) and walk a mile. All for better health. And to feel so awful on this drug?

It does not appear that you need to taper this drug. You may want to check with your pharmacist to be sure. I am enclosing a link you may find interesting, if you haven't seen it already. These folks also want to know about your adverse effects for their study if you care to share with them

Open Original Shared Link

Lisa Mentor

Thank you Ursa, Raven, Patti and Jess. It never fails to amaze me - You ask a question here and it can be answered or an answer found. ;)

mamabear Explorer

Lisa,

I can see your desire to improve and maintain your health ****(4 stars!!), but if you have not given diet,weight loss and exercise a thorough 6 months trial, please do so! It is too easy to jump into Rx (and some patients WANT the pills and no effort on their part) but there are several other Rx and nonRx products that are generally less side effect prone.

Zetia is a product that blocks absorption in the small intestine of cholesterol...the company has NOT studied the effects on celiacs, but my experience shows it is unpredictable about < or > stools. It is changed by the liver, not vice versa as to any liver involvement. There have been muscle aches reported in ~5% of patients on Zetia.(As compared to 5-20% of statin users...although I personally believe it to be closer to 25-30%)

Welchol is 6 Centrum sized pills a day and does NOT go through any other organs except the GI tract....basically acts like a cholesterol "sponge". It is even rated safe during pregnancy. It has a 2% incidence of muscle aches. More likely to cause constipation or indigestion if any side effect occurs.

The serious muscle condition, rhabdomyolsis, is very rare, thank goodness! Muscle tissue lyses and creates organ failure, most notably the kidneys. If creatine phosphokinase(muscle enzyme) rises, it is wise to discontinue ANY med known to cause muscle problems, and figure out if there was another reason, or just to leave that med out of the mix.

Hope this helps some.....I'd rather see you exercising;toning up;following a low cholesterol diet....consider Concord grape juice(same HDL effect as wine :D ) or using one of the other 2 products. And as always........check with your doc!!

HAPPY NEW YEAR !!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

jerseyangel Proficient

mamabear,

Thanks for that info--I will file it away in case the need arises.

So nice to see you --Happy New Year! :)

Lisa Mentor

mamabear,

What great information!

Sometimes, I think that we get a bit intimidated by doctors suggestions (well, most doctors ) for the quick RX, that the common sense decisions get lost, as you stated. I think I will stick with the walking and diet for a while.

Thanks mamabear for your common sense. Much appreciated. :D

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,902
    • Most Online (within 30 mins)
      7,748

    Patty6133
    Newest Member
    Patty6133
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @Judy M! Yes, he definitely needs to continue eating gluten until the day of the endoscopy. Not sure why the GI doc advised otherwise but it was a bum steer.  Celiac disease has a genetic component but also an "epigenetic" component. Let me explain. There are two main genes that have been identified as providing the "potential" to develop "active" celiac disease. We know them as HLA-DQ 2.5 (aka, HLA-DQ 2) and HLA-DQ8. Without one or both of these genes it is highly unlikely that a person will develop celiac disease at some point in their life. About 40% of the general population carry one or both of these two genes but only about 1% of the population develops active celiac disease. Thus, possessing the genetic potential for celiac disease is far less than deterministic. Most who have the potential never develop the disease. In order for the potential to develop celiac disease to turn into active celiac disease, some triggering stress event or events must "turn on" the latent genes. This triggering stress event can be a viral infection, some other medical event, or even prolonged psychological/emotional trauma. This part of the equation is difficult to quantify but this is the epigenetic dimension of the disease. Epigenetics has to do with the influence that environmental factors and things not coded into the DNA itself have to do in "turning on" susceptible genes. And this is why celiac disease can develop at any stage of life. Celiac disease is an autoimmune condition (not a food allergy) that causes inflammation in the lining of the small bowel. The ingestion of gluten causes the body to attack the cells of this lining which, over time, damages and destroys them, impairing the body's ability to absorb nutrients since this is the part of the intestinal track responsible for nutrient absorption and also causing numerous other food sensitivities such as dairy/lactose intolerance. There is another gluten-related disorder known as NCGS (Non Celiac Gluten Sensitivity or just, "gluten sensitivity") that is not autoimmune in nature and which does not damage the small bowel lining. However, NCGS shares many of the same symptoms with celiac disease such as gas, bloating, and diarrhea. It is also much more common than celiac disease. There is no test for NCGS so, because they share common symptoms, celiac disease must first be ruled out through formal testing for celiac disease. This is where your husband is right now. It should also be said that some experts believe NCGS can transition into celiac disease. I hope this helps.
    • Judy M
      My husband has had lactose intolerance for his entire life (he's 68 yo).  So, he's used to gastro issues. But for the past year he's been experiencing bouts of diarrhea that last for hours.  He finally went to his gastroenterologist ... several blood tests ruled out other maladies, but his celiac results are suspect.  He is scheduled for an endoscopy and colonoscopy in 2 weeks.  He was told to eat "gluten free" until the tests!!!  I, and he know nothing about this "diet" much less how to navigate his in daily life!! The more I read, the more my head is spinning.  So I guess I have 2 questions.  First, I read on this website that prior to testing, eat gluten so as not to compromise the testing!  Is that true? His primary care doctor told him to eat gluten free prior to testing!  I'm so confused.  Second, I read that celiac disease is genetic or caused by other ways such as surgery.  No family history but Gall bladder removal 7 years ago, maybe?  But how in God's name does something like this crop up and now is so awful he can't go a day without worrying.  He still works in Manhattan and considers himself lucky if he gets there without incident!  Advice from those who know would be appreciated!!!!!!!!!!!!
    • Scott Adams
      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
    • trents
      Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would need to find a dermatologist who is familiar with doing the biopsy correctly, however. The samples need to be taken next to the pustules, not on them . . . a mistake many dermatologists make when biopsying for dermatitis herpetiformis. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.