Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Low Positive?

bbopper

Recommended Posts

bbopper Newbie
bbopper
Posted

Hi, My 21 one year old son just had a blood test for celiac and it came back as "low positive". Does this mean he has celiac or possibly not? For a couple years now he's had problems with diahrea and stomach cramping but suffers from anxiety so the drs and us always attributed it to that. Recently his bouts with diahrea/cramping have gotten worse and more frequent thus having the dr. test for celiac.

Thanks for any help/advice you can offer!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


confused Community Regular
confused
Posted

A low postive is still postive, its like being pg, either you are or you not lol. Do you know the test that they ran and which one was the low postive, that would help to know.

paula

TrillumHunter Enthusiast
TrillumHunter
Posted

Second that. It's a yes or no test. Folks who have low positive numbers are no less celiac than folks with high numbers.

I actually took my high negative daughter off gluten and she's doing FANTASTIC!

Lisa Mentor
Lisa
Posted

Welcome to this wonderful site for information.

I just wanted to add the his anxiety may be caused by celiac. Anxiety is is one of the common symptoms as well as depression and fatigue.

bbopper Newbie
bbopper
Posted
  • Author

Oh my gosh. He has suffered from depression also for several years and is ALWAYS so tired, more so lately. He also has developed cold sweats at night. Is that another symptom?

We couldn't get him an appointment with a GI dr. until the 22nd. I wonder if we should stop all wheat or wait until then so the dr. can see or do further tests while he's eating it.

Can anyone recommend somewhere that has a list or a book of specific foods that can be purchased in regular food stores? We did a quick trip to the food store last night for New Years Eve and I was directed to the natural foods aisle.

This is a wonderful site!

Thank you!

Lisa Mentor
Lisa
Posted

Beth,

If you are going to pursue testing, do not have him begin the gluten free diet. Your GI should suggest and endoscopy exam, that will look into the small intestines (area effected by Celiac Disease) to see if there is any damage and take multiple biopsies. A biopsy can confirm Celiac, but it is not 100% reliable as the biopsy can be hit or miss.

After testing, a simple diet is best in the beginning. Meats, Seafood, Rice, Potatoes, Fresh Veggie and Fruit. Once familiar with what to look for (wheat, malt, rye, barley) you can add additional foods. Don't rush out and buy expensive processed gluten free foods. He won't like them in the beginning, although GREAT inroads have been made in taste and texture in the recent years.

There are listings of gluten free products, but ingredients change frequently and their gluten free status may be in jeopardy. Those lists are great in the beginning, but should not be relied upon for any extent of time.

Here is a list of Companies who are wonderful about listing gluten by name and easily read on their ingredient listing, as in (wheat, malt, barley, rye):

Open Original Shared Link

georgie Enthusiast
georgie
Posted

OMG - I was tested 18 months ago and came back as a high negative result. Dr said I was only Gluten Intolerant and I did the gluten-free diet and know I can never eat Gluten again. Small trace amounts gluten me terribly. But I have never had a 'scope or biopsy. So now .... I will never know - will I ? Does this mean I was probably Celiac all along and my GP should have known that and referred me to a Gastro Dr ?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted
OMG - I was tested 18 months ago and came back as a high negative result. Dr said I was only Gluten Intolerant and I did the gluten-free diet and know I can never eat Gluten again. Small trace amounts gluten me terribly. But I have never had a 'scope or biopsy. So now .... I will never know - will I ? Does this mean I was probably Celiac all along and my GP should have known that and referred me to a Gastro Dr ?

You actually have a real smart doctor. There are many who think that GI is simply celiac that has not totally destroyed your digestive system yet. If you have had a positive response to the diet that is diagnostic in itself. Your doctor went with the most valuable test there is, your response to the diet. You have your answer and don't need to look furthur. A GI doctor would want you back on a full gluten diet for at least a couple of months to check for villi damage. If that thought sends shudders through you listen to your gut and just stay gluten-free and keep healing.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,903
    • Most Online (within 30 mins)
      7,748
    LamFam
    Newest Member
    LamFam
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Xravith
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Xravith · Posted

      Yes, you are right. Indeed, I’ve been feeling anemic since the beginning of this week, and today I felt horrible during a lecture at the university, I was trembling a lot and felt all my body incredibly heavy, so I had to come back home. I’ll do a blood test tomorrow, but I’m just worried about the possibility of it coming back negative. I’ve been eating two cookies in the morning as my only source of gluten over the past two weeks—could that affect the final result?
    • trents
      New (possible) celiac diagnosis

      By trents · Posted

      Welcome to the forum, @Judy M! Yes, he definitely needs to continue eating gluten until the day of the endoscopy. Not sure why the GI doc advised otherwise but it was a bum steer.  Celiac disease has a genetic component but also an "epigenetic" component. Let me explain. There are two main genes that have been identified as providing the "potential" to develop "active" celiac disease. We know them as HLA-DQ 2.5 (aka, HLA-DQ 2) and HLA-DQ8. Without one or both of these genes it is highly unlikely that a person will develop celiac disease at some point in their life. About 40% of the general population carry one or both of these two genes but only about 1% of the population develops active celiac disease. Thus, possessing the genetic potential for celiac disease is far less than deterministic. Most who have the potential never develop the disease. In order for the potential to develop celiac disease to turn into active celiac disease, some triggering stress event or events must "turn on" the latent genes. This triggering stress event can be a viral infection, some other medical event, or even prolonged psychological/emotional trauma. This part of the equation is difficult to quantify but this is the epigenetic dimension of the disease. Epigenetics has to do with the influence that environmental factors and things not coded into the DNA itself have to do in "turning on" susceptible genes. And this is why celiac disease can develop at any stage of life. Celiac disease is an autoimmune condition (not a food allergy) that causes inflammation in the lining of the small bowel. The ingestion of gluten causes the body to attack the cells of this lining which, over time, damages and destroys them, impairing the body's ability to absorb nutrients since this is the part of the intestinal track responsible for nutrient absorption and also causing numerous other food sensitivities such as dairy/lactose intolerance. There is another gluten-related disorder known as NCGS (Non Celiac Gluten Sensitivity or just, "gluten sensitivity") that is not autoimmune in nature and which does not damage the small bowel lining. However, NCGS shares many of the same symptoms with celiac disease such as gas, bloating, and diarrhea. It is also much more common than celiac disease. There is no test for NCGS so, because they share common symptoms, celiac disease must first be ruled out through formal testing for celiac disease. This is where your husband is right now. It should also be said that some experts believe NCGS can transition into celiac disease. I hope this helps.
    • Judy M
      New (possible) celiac diagnosis

      By Judy M · Posted

      My husband has had lactose intolerance for his entire life (he's 68 yo).  So, he's used to gastro issues. But for the past year he's been experiencing bouts of diarrhea that last for hours.  He finally went to his gastroenterologist ... several blood tests ruled out other maladies, but his celiac results are suspect.  He is scheduled for an endoscopy and colonoscopy in 2 weeks.  He was told to eat "gluten free" until the tests!!!  I, and he know nothing about this "diet" much less how to navigate his in daily life!! The more I read, the more my head is spinning.  So I guess I have 2 questions.  First, I read on this website that prior to testing, eat gluten so as not to compromise the testing!  Is that true? His primary care doctor told him to eat gluten free prior to testing!  I'm so confused.  Second, I read that celiac disease is genetic or caused by other ways such as surgery.  No family history but Gall bladder removal 7 years ago, maybe?  But how in God's name does something like this crop up and now is so awful he can't go a day without worrying.  He still works in Manhattan and considers himself lucky if he gets there without incident!  Advice from those who know would be appreciated!!!!!!!!!!!!
    • Scott Adams
      Patiently Waiting to See Results

      By Scott Adams · Posted

      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      Gluten free beer ?

      By Scott Adams · Posted

      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.