Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Coffee/caffeine

ricardo29

Recommended Posts

ricardo29 Newbie
ricardo29
Posted

I was wondering, if anybody out there has issues with coffee and/or caffeine. I struggle a lot with my energy and sometimes it seems to make things better and sometimes (coffee) it seems to make things worse. Any ideas?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Joni63 Collaborator
Joni63
Posted

Yes, I have terrible issues with caffeine. I cut out regular coffee and only drink decaf and still am having problems. I had a full strength cup about a week ago and I felt like I was going 10 times faster than I should. I was shaky and had butterflies in my stomach. It was awful. Also, it makes me have highs and lows with energy just like you.

I notice even chocolate affects me if I have to much. I'm still working on eliminating that one though, it's one of my saving graces since the gluten free diet.

lizard00 Enthusiast
lizard00
Posted

I can't really handle caffeine much either. It hurts my stomach ALOT! Very sad though, since I love coffee. But I gave it up a few weeks ago. How long have you been gluten-free? My two biggest symptoms were headache and exhaustion. It took me a few weeks (or maybe even a little longer) to not wake up exhausted and get worse through the day. But since being gluten-free I truly feel better, like I don't have to have caffeine to get me through the day.

Ursa Major Collaborator
Ursa Major
Posted

Coffee will give me a stomach ache (and I haven't had gluten in two and a quarter years), and it makes me really tired. So, obviously, I don't drink it. Most people have it to wake them up! I wished there was something that would wake me up when I need it.

ricardo29 Newbie
ricardo29
Posted
  • Author
I can't really handle caffeine much either. It hurts my stomach ALOT! Very sad though, since I love coffee. But I gave it up a few weeks ago. How long have you been gluten-free? My two biggest symptoms were headache and exhaustion. It took me a few weeks (or maybe even a little longer) to not wake up exhausted and get worse through the day. But since being gluten-free I truly feel better, like I don't have to have caffeine to get me through the day.

have been gluten free for 7 months, it's made a big difference, it's just sometimes i get in these low energy holes and it takes a superhuman effort to pull me out, then i 'll drink coffee and get energy but i will feel so much worse later, i am just looking for something to help me, i am already on a supplements protocol, i think it is the natural course of healing of a celiac, but thank u

VioletBlue Contributor
VioletBlue
Posted

I can only handle moderate amounts of caffeine. Before I was diagnosed I drank the fully leaded coffee without problem. Once I went gluten free the caffeine started to really bother me. It was no longer an energy boost so much as a manic moment. I drank mostly decaf for about nine months after that. Now days I can drink moderate amounts of caffeine and it is pleasantly stimulating. But if I go overboard it zaps my energy and causes concentration issues. If I remember right, caffeine also interferes with iron absorption and that can further impact your energy levels. For me the key is moderation. Well, that and a good espresso machine. Espresso is the only way I can tolerate the taste of decaf.

Violet

I was wondering, if anybody out there has issues with coffee and/or caffeine. I struggle a lot with my energy and sometimes it seems to make things better and sometimes (coffee) it seems to make things worse. Any ideas?
Cynbd Contributor
Cynbd
Posted

I never thought in a million years that I would give up caffeine, and this past summer I did. (If I have to give up my wine, there will be nothing left :P (I didn't even go decaf when I was pregnant (I did cut back).)

I was having a lot of stomach trouble and truly believed it was the caffeine. It didn't always hit me right away, but I was finding I couldn't eat for several hours after my coffee. So in the interest of my gut, I went decaf. And it has helped A LOT.

The withdrawals were not fun, that was bad, but it was totally worth it, and I am glad I did it.

The decaf does bother my stomach sometimes, but I find I don't drink as much decaf in the morning, and if I feel like I might have a bad morning, then I just have my one cup. I am not driven to have more because of the caffeine.

If you suspect it's giving you problems, you should try to give it up. It's made a huge difference for me.

Now if I I can just give up Smarties :o

Good luck!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,602
    • Most Online (within 30 mins)
      7,748
    Victor bowden
    Newest Member
    Victor bowden
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Wheatwacked
      Potential celiac need advice

      By Wheatwacked · Posted

      Yes.  Now, if you hit your finger with a hammer once, wouldn't you do your best not to do it again?  You have identified a direct connection between gluten and pain.  Gluten is your hammer.  Now you have to decide if you need a medical diagnosis.  Some countries have aid benefits tgat you can get if you have the diagnosis, but you must continue eating a gluten-normal diet while pursuing the diagnosis. Otherwise the only reason to continue eating gluten is social. There are over 200 symptoms that could be a result of celiac disease.. Celiac Disease and Non Celiac Gluten Sensitivity  both cause multiple vitamin and mineral deficiency.  Dealing with that should help your recovery, even while eating gluten.  Phosphatidyl Choline supplements can help your gut if digesting fats is a problem,  Consider that any medications you take could be causing some of the symptoms, aside from gluten.        
    • trents
      Potential celiac need advice

      By trents · Posted

      Welcome to the forum, @Ben98! If you have been consciously or unconsciously avoiding gluten because of the discomfort it produces then it is likely that your blood antibody testing for celiac disease has been rendered invalid. Valid testing requires regular consumption of generous amounts of gluten. The other strong possibility is that you have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms with celiac disease but does not have the autoimmune component and thus does not damage the small bowel lining. It is 10x mor common than celiac disease. There is currently no test for NCGS. Celiac disease must first be ruled out. Some experts in the field believe it can be a precursor to the development of celiac disease. Having one or both of the primary genes for developing celiac disease does not imply that you will develop active celiac disease. It simply establishes the potential for it. About 40% of the population has the genetic potential but only about 1% develop active celiac disease. 
    • Ben98
      Potential celiac need advice

      By Ben98 · Posted

      TTG blood test and total IGA tested on many occasions which have always remained normal, upper GI pain under my ribs since 2022. I had an endoscopy in 2023 which showed moderate gastritis. no biopsy’s were taken unfortunately. genetic test was positive for HLADQ2. extreme bloating after eating gluten, it’ll feel like I’ve got bricks in my stomach so uncomfortably full. the pain is like a dull ache under the upper left almost like a stitch feeling after a long walk. I am just wanting some advice has anyone here experienced gastritis with a gluten issue before? thank you  
    • Wheatwacked
      Unusual bright yellow but odourless discharge

      By Wheatwacked · Posted

      "Conclusions: The urinary iodine level was significantly lower in women with postmenopausal osteoporosis, and iodine replacement may be important in preventing osteoporosis"  Body iodine status in women with postmenopausal osteoporosis Low iodine can cause thyroid problems, but Iodine deficiency will not show up in thyroid tests.  Iodine is important for healing, its job is to kill off defective and aging cells (Apoptosis). Skin, brain fog, nails, muscle tone all inproved when I started taking 600 mcg (RDA 150 - 1000 mcg) of Liquid Iodine drops. Some with dermatitis herpetiformis, Iodine exacerbates the rash.  I started at 1 drop (50 mcg) and worked up to 12 drops, but I don't have dermatitis herpetiformis.
    • cristiana
      How long does it take to gain weight?

      By cristiana · Posted

      That's great news, you can do this.  Let us know how things go and don't hesitate to ask if you have any more questions. Cristiana 😊
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.