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Very New To This And Not Diagnosed


Barb

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Barb Newbie

I am a 54 year old female with a primary immune deficiency. Low IgG, IgA and high IgM. I get infusions of gammaglobulin every 3 weeks. Several months ago I noticed my stool start to change to a soft, many pieces jagged edges. Somewhere near the end of Oct I began to get alot of gas and bloating, even waking up at night to get up and take gas x. Around the 1st of Nov the diahrrea started and I had it over a month, sometimes 10-12 times a day, they tried me on several perscriptions to stop the diahrrea, none worked, they took stool samples for parasites all negative. My one Dr. suggested I try gluten free, and I've been on it over a week and now am having a near normal stool. I can't get any other testing done for awhile (although blood test was taken a couple days ago) as I'm having a major shoulder surgery on Thursday. Does this sound classic Celiac to any of you. My mother and sister have terrible gas and bloating all the time, they burp continually, I'm wondering if they should be tested as well.

Thank you for any help you can give me.

Barb/Canada


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darlindeb25 Collaborator

morning ;) barb--yes yes and yes--if you feel better gluten-free then yes, get checked and i would suggest to them that they get tested too--the doctor must have suspected celiacs if he told you to try gluten-free--going gluten-free cant hurt you--deb

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      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
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