Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Long To Feel The Effects Of Gluten Exposure?


Molecular Dude

Recommended Posts

Molecular Dude Apprentice

For those of you that have been gluten free for some time:

How long does it usually take for you to feel the effects of gluten exposure?

For me it's generally 3-5 days


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

I have ataxia and neuro issues and for me those hit really fast, the ataxia within an hour of injestion and the depression hits for 24 hours the next day. The GI effects usually don't hit until, like you, three to four days afterwards, although my tummy will start to growl within hours and gas will start to build up but the horrendous D takes time.

darlindeb25 Collaborator

Anyways, it seems, after 7 1/2 yrs, when I get glutened, I have neurological symptoms now, my tummy gets kind of jumpy, but no real diarrhea anymore, which I am very thankful for. This last time though, I think my blood pressure shot very high and that isn't good either, I thought my head was going to explode, and that's never good. I get very shaky, and the floodgates open--like one minute I am fine and the next I am a total disaster--I never see it coming. The reaction was like 36 hours--the glutening happened around 7pm on Monday night and the reaction was 7am Wednesday morning. I was like a zombie the entire day on Wednesday, in a complete fog for probably 12 hours, the worst of the onset of the reaction lasting about 2 hours, in which time I took a Xanax to calm the shaking, crying, etc, reactions. After 7 yrs, this reaction is completely different from my reactions in the beginning! I prefer no reactions!!!!

dbmamaz Explorer

Saturday I went to a party for lunch. I had called to ask if there would be food I could eat and told no (I only had time for a quick salad tho), but when I got there, the cook had kept a portion of the turkey chowder for me before adding the milk. It was delicious and I ate it. I also had a glass of white wine.

I was feeling detached and spacey by the time we left, I had a splitting headache by the end of dinner, and had to go to bed 2 hours early because I was so exhuasted. I havent felt like that since I quit gluten and dairy 2 mo ago. My husband suspected it was the wine, but i think its more likely the soup had cheap broth with wheat and creamed corn with wheat. Does that sound like glutening to you?

I cant tell about the bloating because thats not quite gone yet - looks like I need to quit rice first ;-(

CCM Rookie

Sorry to hear about the dining dilemma. I guess I will be experiencing a few of those myself this coming year. I am just trying to go gluten-free and finding that I am also somewhat sensitive to dairy.

I am curious as to some something in your sign-off: what is the Lame Advertisement test you list? And do you know why there so many folks in this forum complain of dairy intolerance in addition to gluten intolerance? I understand the parts of the intestine that digests both are closely related, but is there more to it than that?

I am learning but the learning curve on this condition is long. I guess I am gluten intolerant but not a full blown celiac yet. My blood test and biopsies were negative but the food challenge is right on.

CCM

dbmamaz Explorer
I am curious as to some something in your sign-off: what is the Lame Advertisement test you list?

CCM

Ok, so funny . . . its a test that, apparently, offended folks on this site long ago with advertising, so if you spell out their name, it gets translated in to 'lame advertising'. I thought i'd put it clearly enuf w the dots, i'll have to fix that . . .

its A L . . and then CAT . . . but all put together. THey have a website, you can mail order a test to be taken at labcorp, and they mail back a report - it took just over a week i think. Its a IgG reaction test, I think, and i had like 175 foods tested. And over 50 were positive reactions and I dont know what to eat!!

The worst part is, when i look at my own posts, its not turned in to lame advertising, so i dindt know it was happening, so i'm glad you told me.

CCM Rookie

Ok, the fact that my email text is being translated into something unintended when published is just not right. Thanks for the replies on the dairy/gluten connection.

CCM


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dbmamaz Explorer

Ok, I'm so glad you folks put this post here, cuz just now, 3 days after being glutened at a party, I finally had the 'on the way out' symptoms lol! I thought the headache was all I'd gotten, so I'm glad to realize (thanks to this post) that this 3-day later intestinal response is still from that same glutening.

Also, about the A l CAT test being altered - yeah, i think it sucks and i wonder if we can ask them to undo that, I think its a good resource which could really help people here

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jane02 replied to HectorConvector's topic in Related Issues & Disorders
      314

      Terrible Neurological Symptoms

    2. - Jane02 replied to HectorConvector's topic in Related Issues & Disorders
      314

      Terrible Neurological Symptoms

    3. - knitty kitty replied to HectorConvector's topic in Related Issues & Disorders
      314

      Terrible Neurological Symptoms

    4. - trents commented on Amiah's blog entry in Amiah
      1

      Help!!

    5. - Scott Adams replied to HectorConvector's topic in Related Issues & Disorders
      314

      Terrible Neurological Symptoms

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,581
    • Most Online (within 30 mins)
      7,748

    MaggieSc
    Newest Member
    MaggieSc
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jane02
      Sorry, I just realized how old this thread is and only read the initial post from 2021. I'll have to catch up on the comments in this thread. 
    • Jane02
      Sorry to hear you're going through such a hard time. It would be worth looking into MCAS/histamine issues and also Long Covid. Perhaps there is something occurring in addition to celiac disease. It would be worth ruling out micronutrient deficiencies such as the b vitamins (B12, folate, B1, etc), vit D, and ferritin (iron stores). 
    • knitty kitty
      This sounds very similar to the neuropathic pain I experienced with type two diabetes.  Gloves and boots pattern of neuropathy is common with deficiencies in Cobalamine B12 (especially the pain in the big toe), Niacin B3, and Pyridoxine B6.  These are vitamins frequently found to be low in people with pre-diabetes and diabetes.  Remember that blood tests for vitamin levels is terribly inaccurate.  You can have vitamin deficiencies before there are any changes in blood levels.  You can have "normal" serum levels, but be deficient inside organs and tissues where the vitamins are actually utilized.  The blood is a transportation system, moving vitamins absorbed in the intestines to organs and tissues.  Just because there's trucks on the highway doesn't mean that the warehouses are full.  The body will drain organs and tissues of their stored vitamins and send them via the bloodstream to important organs like the brain and heart.  Meanwhile, the organs and tissues are depleted and function less well.   Eating a diet high in simple carbohydrates can spike blood sugar after meals.  Eating a diet high in carbohydrates consistently over time can cause worsening of symptoms.  Thiamine and other B vitamins like Niacin B3 and Pyridoxine B6, (which I noticed you are not supplementing), are needed to turn carbs, proteins and fats into energy for the body to use.  Alcohol consumption can lower blood sugar levels, and hence, alleviate the neuropathic pain.  Alcohol destroys many B vitamins, especially Pyridoxine, Thiamine and Niacin.  With alcohol consumption, blood glucose is turned into fat, stored in the liver or abdomen, then burned for fuel, thus lowering blood glucose levels.  With the cessation of alcohol and continued high carb diet, the blood glucose levels rise again over time, resulting in worsening neuropathy.   Heavy exercise can also further delete B vitamins.  Thiamine and Niacin work in balance with each other.  Sort of like a teeter-totter, thiamine is used to produce energy and Niacin is then used to reset the cycle for thiamine one used again to produce energy.  If there's no Niacin, then the energy production cycle can't reset.  Niacin is important in regulating electrolytes for nerve impulse conduction.  Electrolyte imbalance can cause neuropathic pain.   Talk to your doctors about testing for Type Two diabetes or pre-diabetes beyond an A1C test since alcohol consumption can lower A1C giving inaccurate results. Talk to your doctors about supplementing with ALL eight B vitamins, and correcting deficiencies in Pyridoxine, Niacin, and B12.  Hope this helps! Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ P. S.  Get checked for Vitamin C deficiency, aka Scurvy.  People with Diabetes and those who consume alcohol are often low in Vitamin C which can contribute to peripheral neuropathy.
    • Scott Adams
      I’m really sorry you’re dealing with this—chronic neuropathic or nociplastic pain can be incredibly frustrating, especially when testing shows no nerve damage. It’s important to clarify for readers that this type of central sensitization pain is not the same thing as ongoing gluten exposure, particularly when labs, biopsy, and nutritional status are normal. A stocking/glove pattern with normal nerve density points toward a pain-processing disorder rather than active celiac-related injury. Alcohol temporarily dampening symptoms likely reflects its central nervous system depressant effects, not treatment of an underlying gluten issue—and high-dose alcohol is dangerous and not a safe or sustainable strategy. Seeing a pain specialist is absolutely the right next step, and we encourage members to work closely with neurology and pain management rather than assuming hidden gluten exposure when objective testing does not support it.
    • Scott Adams
      There is no credible scientific evidence that standard water filters contain gluten or pose a gluten exposure risk. Gluten is a food protein from wheat, barley, or rye—it is not used in activated carbon filtration in any meaningful way, and refrigerator or pitcher filters are not designed with food-based binders that would leach gluten into water. AI-generated search summaries are not authoritative sources, and they often speculate without documentation. Major manufacturers design filters for water purification, not food processing, and gluten contamination from a water filter would be extraordinarily unlikely. For people with celiac disease, properly functioning municipal, bottled, filtered, or distilled water is considered gluten-free.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.