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How Long To Feel The Effects Of Gluten Exposure?


Molecular Dude

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Molecular Dude Apprentice

For those of you that have been gluten free for some time:

How long does it usually take for you to feel the effects of gluten exposure?

For me it's generally 3-5 days


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ravenwoodglass Mentor

I have ataxia and neuro issues and for me those hit really fast, the ataxia within an hour of injestion and the depression hits for 24 hours the next day. The GI effects usually don't hit until, like you, three to four days afterwards, although my tummy will start to growl within hours and gas will start to build up but the horrendous D takes time.

darlindeb25 Collaborator

Anyways, it seems, after 7 1/2 yrs, when I get glutened, I have neurological symptoms now, my tummy gets kind of jumpy, but no real diarrhea anymore, which I am very thankful for. This last time though, I think my blood pressure shot very high and that isn't good either, I thought my head was going to explode, and that's never good. I get very shaky, and the floodgates open--like one minute I am fine and the next I am a total disaster--I never see it coming. The reaction was like 36 hours--the glutening happened around 7pm on Monday night and the reaction was 7am Wednesday morning. I was like a zombie the entire day on Wednesday, in a complete fog for probably 12 hours, the worst of the onset of the reaction lasting about 2 hours, in which time I took a Xanax to calm the shaking, crying, etc, reactions. After 7 yrs, this reaction is completely different from my reactions in the beginning! I prefer no reactions!!!!

dbmamaz Explorer

Saturday I went to a party for lunch. I had called to ask if there would be food I could eat and told no (I only had time for a quick salad tho), but when I got there, the cook had kept a portion of the turkey chowder for me before adding the milk. It was delicious and I ate it. I also had a glass of white wine.

I was feeling detached and spacey by the time we left, I had a splitting headache by the end of dinner, and had to go to bed 2 hours early because I was so exhuasted. I havent felt like that since I quit gluten and dairy 2 mo ago. My husband suspected it was the wine, but i think its more likely the soup had cheap broth with wheat and creamed corn with wheat. Does that sound like glutening to you?

I cant tell about the bloating because thats not quite gone yet - looks like I need to quit rice first ;-(

CCM Rookie

Sorry to hear about the dining dilemma. I guess I will be experiencing a few of those myself this coming year. I am just trying to go gluten-free and finding that I am also somewhat sensitive to dairy.

I am curious as to some something in your sign-off: what is the Lame Advertisement test you list? And do you know why there so many folks in this forum complain of dairy intolerance in addition to gluten intolerance? I understand the parts of the intestine that digests both are closely related, but is there more to it than that?

I am learning but the learning curve on this condition is long. I guess I am gluten intolerant but not a full blown celiac yet. My blood test and biopsies were negative but the food challenge is right on.

CCM

dbmamaz Explorer
I am curious as to some something in your sign-off: what is the Lame Advertisement test you list?

CCM

Ok, so funny . . . its a test that, apparently, offended folks on this site long ago with advertising, so if you spell out their name, it gets translated in to 'lame advertising'. I thought i'd put it clearly enuf w the dots, i'll have to fix that . . .

its A L . . and then CAT . . . but all put together. THey have a website, you can mail order a test to be taken at labcorp, and they mail back a report - it took just over a week i think. Its a IgG reaction test, I think, and i had like 175 foods tested. And over 50 were positive reactions and I dont know what to eat!!

The worst part is, when i look at my own posts, its not turned in to lame advertising, so i dindt know it was happening, so i'm glad you told me.

CCM Rookie

Ok, the fact that my email text is being translated into something unintended when published is just not right. Thanks for the replies on the dairy/gluten connection.

CCM


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dbmamaz Explorer

Ok, I'm so glad you folks put this post here, cuz just now, 3 days after being glutened at a party, I finally had the 'on the way out' symptoms lol! I thought the headache was all I'd gotten, so I'm glad to realize (thanks to this post) that this 3-day later intestinal response is still from that same glutening.

Also, about the A l CAT test being altered - yeah, i think it sucks and i wonder if we can ask them to undo that, I think its a good resource which could really help people here

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    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
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    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
    • marion wheaton
      Wondering if anyone knows whether Lindt chocolate balls are gluten free. The Lindt Canadian website says yes but the Lindt USA website says no. The information is a bit confusing.
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