Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Long To Feel The Effects Of Gluten Exposure?

Molecular Dude

Recommended Posts

Molecular Dude Apprentice
Molecular Dude
Posted

For those of you that have been gluten free for some time:

How long does it usually take for you to feel the effects of gluten exposure?

For me it's generally 3-5 days

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

I have ataxia and neuro issues and for me those hit really fast, the ataxia within an hour of injestion and the depression hits for 24 hours the next day. The GI effects usually don't hit until, like you, three to four days afterwards, although my tummy will start to growl within hours and gas will start to build up but the horrendous D takes time.

darlindeb25 Collaborator
darlindeb25
Posted

Anyways, it seems, after 7 1/2 yrs, when I get glutened, I have neurological symptoms now, my tummy gets kind of jumpy, but no real diarrhea anymore, which I am very thankful for. This last time though, I think my blood pressure shot very high and that isn't good either, I thought my head was going to explode, and that's never good. I get very shaky, and the floodgates open--like one minute I am fine and the next I am a total disaster--I never see it coming. The reaction was like 36 hours--the glutening happened around 7pm on Monday night and the reaction was 7am Wednesday morning. I was like a zombie the entire day on Wednesday, in a complete fog for probably 12 hours, the worst of the onset of the reaction lasting about 2 hours, in which time I took a Xanax to calm the shaking, crying, etc, reactions. After 7 yrs, this reaction is completely different from my reactions in the beginning! I prefer no reactions!!!!

dbmamaz Explorer
dbmamaz
Posted

Saturday I went to a party for lunch. I had called to ask if there would be food I could eat and told no (I only had time for a quick salad tho), but when I got there, the cook had kept a portion of the turkey chowder for me before adding the milk. It was delicious and I ate it. I also had a glass of white wine.

I was feeling detached and spacey by the time we left, I had a splitting headache by the end of dinner, and had to go to bed 2 hours early because I was so exhuasted. I havent felt like that since I quit gluten and dairy 2 mo ago. My husband suspected it was the wine, but i think its more likely the soup had cheap broth with wheat and creamed corn with wheat. Does that sound like glutening to you?

I cant tell about the bloating because thats not quite gone yet - looks like I need to quit rice first ;-(

CCM Rookie
CCM
Posted

Sorry to hear about the dining dilemma. I guess I will be experiencing a few of those myself this coming year. I am just trying to go gluten-free and finding that I am also somewhat sensitive to dairy.

I am curious as to some something in your sign-off: what is the Lame Advertisement test you list? And do you know why there so many folks in this forum complain of dairy intolerance in addition to gluten intolerance? I understand the parts of the intestine that digests both are closely related, but is there more to it than that?

I am learning but the learning curve on this condition is long. I guess I am gluten intolerant but not a full blown celiac yet. My blood test and biopsies were negative but the food challenge is right on.

CCM

dbmamaz Explorer
dbmamaz
Posted
I am curious as to some something in your sign-off: what is the Lame Advertisement test you list?

CCM

Ok, so funny . . . its a test that, apparently, offended folks on this site long ago with advertising, so if you spell out their name, it gets translated in to 'lame advertising'. I thought i'd put it clearly enuf w the dots, i'll have to fix that . . .

its A L . . and then CAT . . . but all put together. THey have a website, you can mail order a test to be taken at labcorp, and they mail back a report - it took just over a week i think. Its a IgG reaction test, I think, and i had like 175 foods tested. And over 50 were positive reactions and I dont know what to eat!!

The worst part is, when i look at my own posts, its not turned in to lame advertising, so i dindt know it was happening, so i'm glad you told me.

CCM Rookie
CCM
Posted

Ok, the fact that my email text is being translated into something unintended when published is just not right. Thanks for the replies on the dairy/gluten connection.

CCM

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


dbmamaz Explorer
dbmamaz
Posted

Ok, I'm so glad you folks put this post here, cuz just now, 3 days after being glutened at a party, I finally had the 'on the way out' symptoms lol! I thought the headache was all I'd gotten, so I'm glad to realize (thanks to this post) that this 3-day later intestinal response is still from that same glutening.

Also, about the A l CAT test being altered - yeah, i think it sucks and i wonder if we can ask them to undo that, I think its a good resource which could really help people here

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to Mihai's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      23

      Pain in the right side of abdomen

      Vitamin B9 (Folate): The UL for Folic Acid is set at 1,000 mcg (1 mg) per day for adults. This limit primarily applies to synthetic folic acid found in supplements and fortified foods, not naturally occurring folate in food. High intake of folic acid can mask the symptoms of Vitamin B12 deficiency, which can lead to neurological damage if left untreated....
    2. Heatherisle
      - Heatherisle replied to Mihai's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      23

      Pain in the right side of abdomen

      Hasn’t been given folic acid as GP says vit b and folic acid can’t be given together which I find strange cos any time I did venepunctures B12 and folate were always grouped together? Her folate level was 2.2, just below the normal level
    3. Heatherisle
      - Heatherisle replied to Mihai's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      23

      Pain in the right side of abdomen

      Hi Thanks for your input. Don’t know which exact medication she’s on, keep asking but she keeps forgetting!!! I still think her Vitamin D levels might be low cos she had the back pain and tingling last year( around March /April) and levels were low so she had 3 month course then and it helped. She’s coming home next week (as in to ours) for a long weeke...
    4. knitty kitty
      0

      Dairy and Celiac: studies

    5. Scott Adams
      - Scott Adams replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      how long does it take for the genetic blood test for celiac to come back?

      Genetic testing for celiac disease (the HLA-DQ2 and HLA-DQ8 genes) usually takes about 3–10 days to come back, depending on the lab your doctor uses, though some places may take up to two weeks. The test itself doesn’t diagnose celiac disease—it only shows whether you carry the genes that make celiac possible. About 30–40% of people have one of these genes, ...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,667
    • Most Online (within 30 mins)
      7,748
    S.Aulman
    Newest Member
    S.Aulman
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Scott Adams
      Pain in the right side of abdomen

      By Scott Adams · Posted

      Vitamin B9 (Folate): The UL for Folic Acid is set at 1,000 mcg (1 mg) per day for adults. This limit primarily applies to synthetic folic acid found in supplements and fortified foods, not naturally occurring folate in food. High intake of folic acid can mask the symptoms of Vitamin B12 deficiency, which can lead to neurological damage if left untreated. This is because folic acid supplementation can correct anemia caused by B12 deficiency without addressing the underlying neurological damage. Some studies suggest that excessive folic acid intake might increase the risk of certain cancers, such as colorectal cancer, particularly in individuals who have precancerous lesions.
    • Heatherisle
      Pain in the right side of abdomen

      By Heatherisle · Posted

      Hasn’t been given folic acid as GP says vit b and folic acid can’t be given together which I find strange cos any time I did venepunctures B12 and folate were always grouped together? Her folate level was 2.2, just below the normal level
    • Heatherisle
      Pain in the right side of abdomen

      By Heatherisle · Posted

      Hi Thanks for your input. Don’t know which exact medication she’s on, keep asking but she keeps forgetting!!! I still think her Vitamin D levels might be low cos she had the back pain and tingling last year( around March /April) and levels were low so she had 3 month course then and it helped. She’s coming home next week (as in to ours) for a long weekend so hopefully some TLC from mum and dad will help!!!    
    • Scott Adams
      how long does it take for the genetic blood test for celiac to come back?

      By Scott Adams · Posted

      Genetic testing for celiac disease (the HLA-DQ2 and HLA-DQ8 genes) usually takes about 3–10 days to come back, depending on the lab your doctor uses, though some places may take up to two weeks. The test itself doesn’t diagnose celiac disease—it only shows whether you carry the genes that make celiac possible. About 30–40% of people have one of these genes, but only a small percentage actually develop celiac disease. However, if the test is negative for both genes, celiac disease becomes extremely unlikely, which is why your doctor mentioned possibly canceling the endoscopy if the result is negative. If it’s positive, it just means celiac remains a possibility and further testing, like a gluten challenge followed by endoscopy, helps confirm it. Since you have an identical twin, it’s definitely useful information to share if the genes are present, because twins share the same genetic risk. It sounds like you found a very thorough GI doctor, which is great, especially since she’s also monitoring nutrients and looking at the whole picture.
    • knitty kitty
      Pain in the right side of abdomen

      By knitty kitty · Posted

      @Heatherisle, You're not a bother at all.   What "Vitamin B medication" is she taking?  Is it just B12 and folate?   All eight B vitamins, Vitamin D and other vitamins and minerals need to be supplemented because the malabsorption of Celiac disease affects all the nutrients.  All the B vitamins work together.  Just supplementing one or two can throw the other B vitamins out of balance causing worsening deficiencies in other B vitamins.  Doctors are undereducated about nutrition.  Heavy sigh. This is worrisome.  These are all symptoms of Gastrointestinal Beriberi caused by Thiamine deficiency.   An Erythrocyte Transketolace Activity Assay needs too be done to check her Thiamine level.  But because this test is so expensive and takes so long for the results to come back, it's much simpler to administer 500 mg Thiamine Hydrochloride several times a day for several days and look for health improvement (WHO recommendation).  Doctors can administer Thiamine Hydrochloride by IV along with a "banana bag" with all the B vitamins in it.  (Riboflavin gives it the yellow color.).  I've experienced vitamin deficiencies which my doctors didn't recognize.  When thiamine and B12 deficiencies started affecting my brain function, my doctors wrote me off as a depressed hypochondriac.  I had Gastrointestinal Beriberi myself.  I took over the counter thiamine hydrochloride at home and had health improvement within an hour.  High doses (500 mg) of Thiamine are needed to "jump start" the body into proper functioning.   Apologies if I was curt.  I get very frustrated because the nutritional deficiencies that occur with Celiac disease are not addressed properly.  All I can do is tell people about what I learned on my Celiac journey.  Have you visited my blog?  Tap on my name, look for pull down menu Activities and go to blog.   I do hope your daughter can get the nutritional support she needs.  I'm very worried.  Please keep us updated!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.