Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help!


celiac-mommy

Recommended Posts

celiac-mommy Collaborator

I don't know if I'm overly paranoid or what, but here's the last few weeks:

Norovirus is going around, I work in a hospital with critical care pts and ER, I'm always VERY careful, wash up, change clothes etc... but sometimes you bring stuff home. Anyway, DS (non-celiac...) started having the big D, it's been a week and a half, no solid BM's and a KILLER rash--looks like someone poured acid on his bum. 1x vomit, no fever, no other symptoms. He's been really crabby and throwing LOTS of fits--but he's 2....and he's not like this all the time. I just don't know if he just doesn't feel well. He's eating OK. Friday, DD school calls, she's vomitting and has mild temp. She vomits the rest of friday, no evidence of a glutening. Seems fine but weak sat and sun, yesterday she's in the bathroom every 15 min, horrible cramps, big D, Gave immodium x2, seemed fine all afternoon and PM, OK this morning. Again, I can't trace a glutening and we are VERY careful at home.

Question--If son's D isn't better by Thursday I will take him off gluten for a week and see what happens, DD seems better, will wait and see. Do you think it's a virus or the celiac?? I know I need to call the pediatrician, but I'm going to wait a day or 2 more to see what happens..... If celiac episode, I know DD will be OK, I just don't want to have to go thru the testing with a 2 yo, may just take him off of it and call it good... I don't know what to do :(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dbmamaz Explorer

I know when my kids are different ages, the same virus can give them different kinds of intestinal symptoms, so it could certainly just be a virus - and of course, if its going around, it could have come in your house from anywhere.

But i'm wondering why you dont want to go through testing w a 2 year old, i dont know much about it - i guess the first part is just a blood draw, but can be less reliable in babies?

celiac-mommy Collaborator

He had the blood test in August when he turned 2. We had an appt with our GI, he told us at this point everything was OK, but if anything changed to call and let him know and we would re-test. He said in the results there was a number that came up (I'm not sure what it was)--he said that this particular # doesn't mean he will end up with celiac, but it is some sort of marker that he sees in patients that are diagnosed later. Does that make sense? Anyway, I don't want to have the blood test redone right now if it's not necessary-it was traumatic for both of us... I will talk to the pediatrician today and see what he says, but I'm thinking I will take him off gluten, see if he gets better and then reintroduce and see what happens. I will be home with him Thurs-Mon so I can keep him in a controlled environment, unless he has a solid BM in the next 2 days.... (fingers crossed)

taweavmo3 Enthusiast

Since you daughter has similar symptoms, my bet would be virus. It's always a guessing game though isn't it???? Lol. I work in hospital too, and I'm always worried about what I'm bringing home. I try to change my clothes before they touch me, but sometimes they bombard me as soon as I open the door!

It's Rotavirus season too....that's a nasty one that can last for a while, and really contagious. One of my kids nearly died from it, and last year all four kids had it. The baby took the longest to get over it, and this was the mild form since she actually got sick from the vaccine, then it spread to everyone else. It's a nasty bug!

Hope your little guy is feeling better soon, keep us posted.

celiac-mommy Collaborator

Thanks guys!

I spoke with the pediatrician yesterday, he said too that it's not uncommon for this virus to last 2 weeks and it will be a full 2 weeks tomorrow. I said if he hasn't had a solid BM by tomorrow, I'm going to go ahead with the challange thru the weekend and see what happens. They agreed that that would be a good thing and then they will see him next week. I get so worried about him because he's so tiny. He acts like a normal 2 y/o but he's skin and bones. I gave my DD 2 doses of children's immodium (he's too small for that one-so I've been giving him as many binding foods as possible) on Monday and she's been fine since. I think her immune system is better than his though, she never even gets the sniffles.... I'll let you know what happens after the weekend.

Thanks again,

-Rachelle

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

    2. - knitty kitty replied to Jordan Carlson's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Fruits & Veggies

    3. - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,041
    • Most Online (within 30 mins)
      7,748

    Vfoley422
    Newest Member
    Vfoley422
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed.   Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
    • knitty kitty
      Hello, @Jordan Carlson, So glad you're feeling better.   Tecta is a proton pump inhibitor.  PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12.  Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the production of digestive juices (stomach acids).  This results in foods not being digested thoroughly.  If foods are not digested sufficiently, the vitamins and other nutrients aren't released from the food, and the body cannot absorb them.  This sets up a vicious cycle. Acid reflux and Gerd are actually symptoms of producing too little stomach acid.  Insufficient stomach acid production is seen with Thiamine and Niacin deficiencies.  PPI's like Tecta also block the transporters that pull Thiamine into cells, preventing absorption of thiamine.  Other symptoms of Thiamine deficiency are difficulty swallowing, gagging, problems with food texture, dysphagia. Other symptoms of Thiamine deficiency are symptoms of ADHD and anxiety.  Vyvanse also blocks thiamine transporters contributing further to Thiamine deficiency.  Pristiq has been shown to work better if thiamine is supplemented at the same time because thiamine is needed to make serotonin.  Doctors don't recognize anxiety and depression and adult onset ADHD as early symptoms of Thiamine deficiency. Stomach acid is needed to digest Vitamin C (ascorbic acid) in fruits and vegetables.  Ascorbic acid left undigested can cause intestinal upsets, anxiety, and heart palpitations.   Yes, a child can be born with nutritional deficiencies if the parents were deficient.  Parents who are thiamine deficient have offspring with fewer thiamine transporters on cell surfaces, making thiamine deficiency easier to develop in the children.  A person can struggle along for years with subclinical vitamin deficiencies.  Been here, done this.  Please consider supplementing with Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) which helps immensely with dysphagia and neurological symptoms like anxiety, depression, and ADHD symptoms.  Benfotiamine helps with improving intestinal health.  A B Complex and NeuroMag (a magnesium supplement), and Vitamin D are needed also.
    • knitty kitty
      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1.   There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine.   In Thiamine deficiency, the body burns its stored fat as a source of fuel.  That fat pad between the aorta and digestive system gets used as fuel, too. Ask for an Erythrocyte Transketolace Activity test to look for thiamine deficiency.  Correction of thiamine deficiency can help restore that fat pad.   Best wishes for your recovery!   Interesting Reading: Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pubmed.ncbi.nlm.nih.gov/31089433/#:~:text=Affiliations,tissue and results in SMAS.  
    • trents
      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an attack on the villous lining of the small bowel. This is the section of the intestines where all our nutrition is absorbed. It is made up of billions of tiny finger-like projections that create a tremendous surface area for absorbing nutrients. For the person with celiac disease, unchecked gluten consumption generates inflammation that wears down these fingers and, over time, greatly reduces the nutrient absorbing efficiency of the small bowel lining. This can generate a whole host of other nutrient deficiency related medical problems. We also now know that the autoimmune reaction to gluten is not necessarily limited to the lining of the small bowel such that celiac disease can damage other body systems and organs such as the liver and the joints and cause neurological problems.  It can take around two years for the villous lining to completely heal but most people start feeling better well before then. It's also important to realize that celiac disease can cause intolerance to some other foods whose protein structures are similar to gluten. Chief among them are dairy and oats but also eggs, corn and soy. Just keep that in mind.
    • pothosqueen
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.