Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

The View From The Other Side


Molecular Dude

Recommended Posts

Molecular Dude Apprentice

I find that whenever I attend anything involving food, my dietary requirements quickly become the center of conversation. This is the case even when I don't bring it up because someone else will mention it, and it just takes off from there. Sometimes I wish that everyone would just give it a rest, forget about it, and just let me deal with it on my own. It can make me feel as though there is essentially no other aspect to my being!

But then, I wonder, how I would react if I were the one who could eat whatever, and someone else was in my shoes. I would probably do what everyone else does: ask lots of questions and try to be helpful, while not realizing that I'm probably driving that poor soul crazy. I guess there really is no way to win. I can't keep it a secret, and they just want to help.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dbmamaz Explorer

Yeah, i'm starting to get afraid of that - the neighbors ask how i'm doing, and i am thinking about if my stomach hurts or my head hurts, what i ate, what i can eat. So far, i have an easy answer in food situations, i just say i'm off wheat and milk because they made me sick as an infant and i thought i might feel better, and i do. They kinda leave it at that - most people really dont seem to want to know.

Mom23boys Contributor

There is a level of curiosity and a level of panic.

We get a bunch of question from parents whose kids live on only mac/cheese, pb sandwiches and chicken nuggets. They see their kid having some of the same symptoms that brought us to where we are and panic. With so many dietary issues going undiagnosed, I try to direct them to info which may be of help to them. I assume there is a level of that among only adults too. They relate to tummy issues, brain fog or ___ and are curious. Sure you still have those who just want to be a pain but I think the majority is truly looking for info.

salamander Newbie

I'm new to this (not yet 100% medically diagnosed, but pretty much 100% self diagnosed) and I feel that people think I'm trying to inconvenience them! I can't eat at pizza hut/this restaurant/that pub/order a chinese take away etc. So what I get is " well what can you eat?" or "so is a little bit of bread or batter going to kill you?" so I go ahead with it, and get stomach pain, wind and many toilet trips the next day! I'm tired all the time (wake up several times a night because it feels like I have a brick in my stomach) and grumpy for days afterwards.

I don't want to put people out, but don't want to have to eat salad for the rest of my life everytime I go to a restaurant. Then there's eating out at friends houses. Holidays. It's scary.

cruelshoes Enthusiast

I absolutely hate it when the diet becomes the center of attention at dinner. I think if I were on the other side, I would ask some questions, but I would try to make sure not to ask too many.

One thing I definitly wouldn't ask is "so what happens when you eat it?" I always hate that one. It's not generally considered polite during dinner to say "well, I get explosive diarrhea that lasts for 3 days. How's the veal?" :lol:

aikiducky Apprentice
One thing I definitly wouldn't ask is "so what happens when you eat it?" I always hate that one. It's not generally considered polite during dinner to say "well, I get explosive diarrhea that lasts for 3 days. How's the veal?" :lol:
I often say "You really don't want me to tell you during dinner" or something like that. :DIf they really do even after that, well they asked for it. :P

I think a lot of it is a personality thing, not everybody likes being the center of attention of course. I don't mind so I also don't mind the questions. Hey, anything to get to talk about me, right? :D:P:lol:

I can also say that after three years on the diet most of my friends are so used to the way I eat that we don't need to discuss it that much anymore. In the beginning it did get a bit tiresome sometimes. But then again, they had to wrap their heads around it just like I had to, so all the discussions were useful in the end.

Pauliina

Jodi Mills Apprentice

I hate when people ask questions. I hate when people feel pity for me because I cannot join in on the morning doughnuts at work. It makes me crazy, Lets all sit here and eat the doughnuts, and then tell Jodi how bad we feel for her.

Okay so for people without the disease, I AM FINE NOT EATING THE DOUGHNUTS, what makes me upset is when you sit there and rub it in my face that I cannot eat the stuff....

I know they are just trying to show their concern or whatever, but it gets old. I have a friend that i work with who does understand, which is nice, she will take over if she sees its getting to much for me, she used to babysit a celiac, and understands more than most normal eaters.

sorry i think i started to rant a little.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Kirita posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Recovery from gluten challenge

    2. - annamarie6655 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Airborne Gluten?

    3. - trents replied to Mell2's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Rectal pain

    4. - Celiac and Salty replied to Mell2's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Rectal pain

    5. - Rogol72 replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,235
    • Most Online (within 30 mins)
      7,748

    kssynlson37
    Newest Member
    kssynlson37
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Kirita
      I’m wondering if anyone has had any experience with the gluten challenge. My teenager completed a gluten challenge over the summer, it ended up being 10 weeks although she stopped being consistent eating gluten after 6. Her previous endoscopy was negative but this past August it was positive after the gluten challenge. If you have done the gluten challenge, how long did it take you to feel back to normal? It took about two months before she got “glutened” again but now she’s having difficult coming back from that and has a lot of fatigue. I’m hoping someone has some advice! 
    • annamarie6655
      Hello everyone, I was on here a few months ago trying to figure out if I was reacting to something other than gluten, to which a very helpful response was that it could be xanthin or guar gum.    Since then, I have eaten items with both of those ingredients in it and I have not reacted to it, so my mystery reaction to the Digiorno pizza remains.    HOWEVER, I realized something recently- the last time I got glutened and the most recent time I got glutened, I truly never ate anything with gluten in it. But i did breathe it in.    The first time was a feed barrel for my uncle’s chickens- all of the dust came right up, and most of what was in there was wheat/grains. The second time was after opening a pet food bag and accidentally getting a huge whiff of it.    When this happens, I tend to have more neurological symptoms- specifically involuntary muscle spasms/jerks everywhere. It also seems to cause migraines and anxiety as well. Sometimes, with more airborne exposure, I get GI symptoms, but not every time.    My doctor says he’s never heard of it being an airborne problem, but also said he isn’t well versed in celiac specifics. I don’t have the money for a personal dietician, so I’m doing the best I can.    is there anyone else who has experienced this, or gets similar neurological symptoms? 
    • trents
      I was suffering from PF just previous to being dx with celiac disease about 25 yr. ago but have not been troubled with it since. Not sure what the connection between the two is of if there is one. But I do know it is a very painful condition that takes your breath away when it strikes.
    • Celiac and Salty
      I have dealt with proctalgia fugax on and off for a year now. It feels almost paralyzing during an episode and they have started lasting longer and longer, sometimes 20+ minutes. I was recently diagnosed with celiac disease and wonder if the 2 are related. I did request a prescription for topical nitroglycerin for my PF episodes and that has helped tremendously!
    • Rogol72
      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.