Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Migraines

jeanbean

Recommended Posts

jeanbean Newbie
jeanbean
Posted

Hi there

I am 40 and was just diagnosed with Celiac about 4 weeks ago (positive blood test) and am awaiting my biopsy scheduled in May. I used to get severe migraines weekly for years and now that I'm adjusting to my new diet, I haven't had one single episode. I wonder if there is any connection?

Also, my doctor recommended I take Bentylol (prescription) in case I ingest gluten unknowingly. He says it would help with the abdominal pain - has anyone tried this medication?

Signed,

Cold in Toronto

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

I also haven't had a migraine since I went gluten free, 5 years now. I use good old pepto bismal for the stomach pain if I happen to get CC'd. It helps almost instantly and has no nasty side effects or adverse reactions other than making the stool dark for a day or two. I never even have to take a second dose. One word of caution, the script your doctor gave you needs to be confirmed as gluten free. Get the name and phone number of the maker from the fact sheet the pharmacist will give you and call the maker yourself, many pharmacists will assume something is safe and or be too busy to check.

Guest Jemenii36
Guest Jemenii36
Posted
Hi there

I am 40 and was just diagnosed with Celiac about 4 weeks ago (positive blood test) and am awaiting my biopsy scheduled in May. I used to get severe migraines weekly for years and now that I'm adjusting to my new diet, I haven't had one single episode. I wonder if there is any connection?

Also, my doctor recommended I take Bentylol (prescription) in case I ingest gluten unknowingly. He says it would help with the abdominal pain - has anyone tried this medication?

Signed,

Cold in Toronto

I, also, had migraines before going on the gluten free diet. I was on an anti-seizure medication to helpthe mirgraines subside. However,once i went gluten free they also went away immediately. This was one of thelargest changes i had. I have never taken nor heard of the medication but good look with it! Since you are glong gluten free i don't think you will need it tho :)

jeanbean Newbie
jeanbean
Posted
  • Author

Thanks for your replies. I guess it's just an added perk not to have headaches. And I'll try P.Bismol instead of some pricey medication I've never heard of.

I guess having Celiac physically affects people in different ways. Well I'm still in the learning stages and it's clear that we have to educate others - in my case, my husband thinks I'm going overboard with the utensils and asking him to clean up his crumbs on the counter (he does not have Celiac). I can't seem to persuade him that we have zero tolerance, not even a crumb. I told him he should feel my pain for one day. They just don't get it.

I'm so much happier now and easier to live with. Just feeling good after a meal makes me enjoy food again.

psawyer Proficient
psawyer
Posted

I had severe migraines for years. A couple of years after going gluten-free due to celiac disease, I read something about the connection and realized: Hey, I haven't had one since I went gluten-free. I have been off gluten for seven and a half years, and not one migraine in that time. Yay! :)

tarnalberry Community Regular
tarnalberry
Posted

I'm one of the few unlucky ones on the board who did *not* have his/her migraines go away when he/she went gluten-free, so it doesn't happen for *everyone*. :)

Annie/NM Apprentice
Annie/NM
Posted

Just a thought, if you are having a biopsy in May you should still technically be eating gluten. They want you on it for the biopsy as well. At least my doctor did. In terms of migranes, I had them pre diagnoses a lot more frequent. I still get them but that is usually a sign of getting glutened. Hope that helps.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa16 Collaborator
Lisa16
Posted

My migraines are also a thing of the past-- I am sure you have some relief to look forward to on that front. Thank goodness!

I also took bentyl for the IBS-- over many years I had a standing RX for it because of the IBSD-- I feel it was completely worthless. It did not stop the D or the pain. Instead I take a papaya enzyme chewable tablet that you can get OTC-- I read a study that says this enzyme can zap small amounts of gluten that accidentally get in the system. But the best for me is a warm bath.

Good luck with the biopsy results. I was in your shoes about 8 years ago. The blood results were a high positive, but then they got a negative biopsy. Should this happen to you (and it well might, esecially since it sounds like you are gluten-free now,) I hope you do continue with the gluten-free lifestyle and do still consider yourself a celiac. Please do not believe them if they say a negative biopsy means you do not have the disease. Let the gluten-free diet be your guide. I made the mistake of believing them and my symptoms got exponentially worse until the DH appeared.

Lisa

dksart Apprentice
dksart
Posted

I used to have a serious migraine that lasted for almost three days once a month and then a few others whenever I was stressed or for no apparent reason. It started when I was 14 and lasted until I was 37.

I have been migraine free since going gluten-free.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,885
    • Most Online (within 30 mins)
      7,748
    fabian.bornhorst
    Newest Member
    fabian.bornhorst
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Diagnosed w Celiacs, but reacting to gluten-free Digiorno Pizza AND Kraft Zesty Italian Dressing

      By trents · Posted

      It can be almost anything for the individual but I would suggest getting in the habit of reading labels to see if there are patterns. The form of magnesium is very important. Go for magnesium glycinate. A lot of over the counter stuff puts the emphasis on shelf-life as opposed to bio-availability. Magnesium glycinate is very bioavailable, very absorbable and isn't likely to have a laxative effect like some of the high shelf-life stuff which isn't absorbed well and draws water into the colon. Oats and dairy also cause effects a lot like being glutened for many celiacs. 
    • annamarie6655
      Purposefully Glutening Myself?

      By annamarie6655 · Posted

      Hi everyone,  I don’t mean to use you all as my personal dumping ground, but the support I’ve seen on this forum is unlike anything I’ve ever experienced.    So, my mother and I have always had a rocky relationship, but when I got diagnosed w celiacs, I thought we were now on the same team together. She started off saying things like “ We’re gonna figure this out together” or “I will always make sure you never have to worry about food with me” to telling my siblings that I’m not grateful enough and I don’t have a right to be upset when I get glutened bc I do so “purposefully”…   .. so I’m brand new to celiac and just learned I can’t just trust gluten-free labels unless it’s certified. I’ve been trying my best, and thanking everyone for being accommodating and trying to make things as painless as possible, so I just don’t understand. Should I be bending over backwards for people who accommodate me? Or just general gratefulness?    This whole diagnosis has further ostracized me from my family and friends, and it’s really hard not to feel completely alone. I seriously appreciate any advice you have to share!
    • annamarie6655
      Diagnosed w Celiacs, but reacting to gluten-free Digiorno Pizza AND Kraft Zesty Italian Dressing

      By annamarie6655 · Posted

      @trents i am only taking collagen powder and Vitamin D, but I can definitely look into Magnesium, thank you!    @Scott Adams  thank you so much for your input! I will watch closer to how I’m reacting to xanthan/guar gum from now on. Are there any other common ingredients to be on the look out for?
    • annamarie6655
      Diagnosed w Celiacs, but reacting to gluten-free Digiorno Pizza AND Kraft Zesty Italian Dressing

      By annamarie6655 · Posted

      @trents thank you so much for your response!  When i was diagnosed, I was exhibiting mainly joint pain, hair loss, bloating, and allodynia (painful feeling from non painful stimuli). The muscle spasms only started after diagnosis, and it seems to only happen when I am severely glutened. It’s only happened twice, but it definitely makes me nervous when it happens.    In regard to the pizza, thats what i saw after i got sick from it. I’m still trying to figure out how to switch to ALL certified gluten-free goods.    for the dressing, here is the ingredient list:  WATER, VEGETABLE OIL, VINEGAR, SUGAR, GARLIC, SALT, RED BELL PEPPER, ONION, CONCENTRATED LEMON JUICE, XANTHAN GUM, POTASSIUM SORBATE, HERBS, CALCIUM DISODIUM EDTA, MONOACETIN, SPICES. and the link: https://www.kraftheinz.com/en-CA/kraft/products/00068100903577-zesty-italian-salad-dressing  
    • Scott Adams
      nuts.com -- no longer Celiac safe?

      By Scott Adams · Posted

      This older article makes me wonder about the GFCO and its protocols:  
×
×
  • Create New...