Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Glutened Myself On Purpose


chgomom

Recommended Posts

chgomom Enthusiast

Hi everyone,

It's been awhile since I have been on. For a while I was doing really well, then in December my mother passed away. The 9th to be exact and her funeral was the 12th. If you don't remember, my father died in 2005 two days after Christmas. I am also working out a marital issue. So there is lots of stress and thats something I am addressing separate to what I just did yesterday.

Yesterday, after a night of long conversation with my husband, and on my way home from work, I stopped at Wendy's got a frosty (which is gluten-free) but then I added fries, and a baconater without the bread but their mayo and ketchup (this was abotu 3 pm)

Last night at about 8, I started having a panic attack where I felt like something was going to happen to me. Then it subsided and I was burping. Then last night I woke up, heart pounding, with a sick stomach and burping. Then this morning the D is coming, I had another one of those doom and gloom panicky things like something bad was going to happen to me, and I feel like I've been beaten with a bat and I know I am going to have D. Because last night it was normal, this morning it was softer and now I can feel another one coming (sorry for being gross). I am even getting these little pings of pain in different spots all over.

I feel like such a loser, I've been gluten free since June 06. Has anyone ever done this, or am I the lone ranger on this. How stupid could I be!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



darlindeb25 Collaborator

Feel better and start over! Don't beat yourself up. It happened, it's over, tomorrow is a new day! Yes, we have all made mistakes. I usually do not make mistakes with food, sometimes I say things I want to take back, which can hurt someone else worse and I wish I had glutened me instead of hurting them.

If you would like to talk, feel free to email me, my door is always open--ok.

Deb

Tim-n-VA Contributor

I read this originally in the context of weight loss but...

Think about those navigation systems you have in your car. If you miss a turn it doesn't tell you to drive through people's yards and it doesn't say "You missed your turn, drive off of a bridge". It figures a way to get you back on track.

We all make mistakes, some intentional, some not. The key is to get back on track.

ravenwoodglass Mentor

I am so sorry about your Mom and Dad. It sounds like you are under a lot of stress right now. Please don't beat yourself up over this, your body is doing that enough for you. I haven't done this with gluten but I have with my casein issue. Sometimes I just get into this mindset, usually when depressed, that it just isn't fair. So much has been taken away from me and why does this have to go too. Then I get angry and will at times just say 'screw it' and grab some cream cheese or a chocolate bar with milk. As much as I hate to admit it I have been doing just that the last couple of days. And yes I do pay for it also, I woke at 3 am this morning feeling like someone was twisting my intestines and then knifing them. Am I sorry I did it? Yes of course I am. Do I understand why I did it? Yea, I have been under extreme stress lately, nothing compared to what you are going through, but still lots of stress. Will I do it again? I don't know, I will try not to, the cost is too dear. But I also realize I am human, and you are to. You can't change what you did yesterday. Don't punish yourself for it. Please be sure to keep in mind that the intense emotions you are feeling are being intensified by the gluten reaction. Try to pamper yourself if you can and keep in your mind that those intense feelings will fade to a more tolerable level once the gluten effects have passed. Hang in there and big

(((((((((((((HUGS)))))))))))))

chgomom Enthusiast

Yeah...this reaction has me feeling like I am losing my mind.

I never thought it would be that intense.

Is that normal? Like paranoid, achy...holy cow.

jerseyangel Proficient

I'm so sorry about your dad and now your mom :( You're under so much stress right now, so please don't be upset with yourself for this one lapse. It really sounds to me like you went right to the point of glutening yourself, but from the choices you made--stopped short. Of course, the CC got you, but you did show restraint ;)

None of us are perfect--I've not ever cheated with gluten--but I do push my other intolerances from time to time. I had some stress last year--major surgery and a move. I can't say that I felt in control at all times, but I did my best. That's really all we can expect of ourselves.

You questioned the panic--I get this, too when accidently glutened. It's like a heightened sense of anxiety. I think, no--I know, I hate that more than the physical symptoms.

It will pass, and you will feel well again :)

Best of luck with everything, you're not alone--come back and post anytime!

ravenwoodglass Mentor
Yeah...this reaction has me feeling like I am losing my mind.

I never thought it would be that intense.

Is that normal? Like paranoid, achy...holy cow.

Yes this is normal. It will go away but it may make some situations difficult when it is present. I feel so hopeless and scared when this happens, but telling myself it is the gluten not the world around me helps me to cope. I hope it goes away quickly for you.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Aves Newbie

I just went gluten free in May of 2007. I first knew something was wrong because I became terribly depressed, and then when I began to stop eating gluten (it was a process since I didn't know where it was hidden) the first sign that I had gluten was feeling free floating anxiety and mild paranoia. Sometimes it took me awhile to find where it was hidden, but Voila! it would always be something-- blue cheese, those nice little potato chips, whatever...

The best thing out of all of this is that when I am gluten free I'm so calm! That constant anxiety in my life was definitely a sign of a gluten reaction.

Yeah...this reaction has me feeling like I am losing my mind.

I never thought it would be that intense.

Is that normal? Like paranoid, achy...holy cow.

chgomom Enthusiast

Yep....like anxiety but to the next level.

And it reminded me of when I went gluten free. Those first couple of months where you go up and down, and realized just how sick I was then. I guess thats why I am so disappointed with myself.

Each day is a new day, and a new opportunity to start again though.

jerseyangel Proficient
Each day is a new day, and a new opportunity to start again though.

Exactly! :D

chgomom Enthusiast

OMG...still today I feel like I am going to throw up.

I have yellow BM's, and I am nauseaus.

What the heck did I do to myself.

JNBunnie1 Community Regular
OMG...still today I feel like I am going to throw up.

I have yellow BM's, and I am nauseaus.

What the heck did I do to myself.

Hey, when I get bad glutened, it lasts for a month. Don't put any limits on yourself for when you think you're 'supposed' to feel better by. Just pamper yourself for now with mint tea and gentle foods. If your poo continues to be funkified colors, I would consider that there was some other kind of food contamination, as in food-borne illness, and don't allow yourself to get dehydrated. I always had bad nausea with glutening but never threw up, too.

I have some good stress-time treats you can get anywhere. I actually do milkshake therapy sometimes. After my father died, from leukemia, I had lots of sex with my boyfriend. I know that sounds strange, but the whatever chemicals orgasm releases kept me from getting too depressed. (well, you can't get that anywhere) And chocolate. And baking keeps me calm, for some reason. Even when it doesn't come out good, I love baking. I've got a bunch of cakes and cookies in the freezer, even a pie.

loco-ladi Contributor
What the heck did I do to myself.

I believe we shall call this proof positive you are not losing yoru mind ;)

You just got the best (if not most comfortable) proof you need to stay gluten-free

been there done that myself, and if I am not mistaken not a single one of us here can say they havent done the same thing so heck welcome to the club we are a large but friendly group :D

Keep your chin up it will end eventually.

dksart Apprentice

Hi,

I hope you are feeling better.

I got cc'd at Chick fil A right before Christmas and it turned into an ear infection that lasted two weeks and screwed up my equilibrium. That turned into a hell of a sinus infection for another week until I got the flu. That totally kicked my butt until New Years when I got a relapse that was even worse. Not to mention all of the belly issues, headaches and arthritis/swollen joint problems that lingered for weeks after that.

I have been sick for over a month straight, just feeling better as of yesterday. Still struggling with brain fog and a slight depression.

If I ever eat at a fast food restaurant again, it won't be through a drive-thru window. I will go in and speak with a manager and explain the necessity of clean work surfaces, new gloves and no condiments etc. that could have been cc'd. I am still kicking myself for being in too much of a rush to eat good food.

Good Luck,

Debbie

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Larzipan's topic in Related Issues & Disorders
      38

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    2. - Scott Adams replied to Larzipan's topic in Related Issues & Disorders
      38

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    3. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      10

      My only proof

    4. - NanceK replied to Jmartes71's topic in Related Issues & Disorders
      10

      My only proof

    5. - knitty kitty replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Is this celiac?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,361
    • Most Online (within 30 mins)
      7,748

    Julie Mitchell
    Newest Member
    Julie Mitchell
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Wheatwacked, what exactly did you intend when you stated that wheat is incorporated into the milk of cows fed wheat? Obviously, the gluten would be broken down by digestion and is too large a molecule anyway to cross the intestinal membrane and get into the bloodstream of the cow. What is it from the wheat that you are saying becomes incorporated into the milk protein?
    • Scott Adams
      Wheat in cow feed would not equal gluten in the milk, @Wheatwacked, please back up extraordinary claims like this with some scientific backing, as I've never heard that cow's milk could contain gluten due to what the cow eats.
    • knitty kitty
      Hello, @NanceK, I'm glad you're willing to give Benfotiamine with B Complex another go!  I'm certain you'll feel much better.   Yes, supplementation is a good idea even if you're healing and gluten free.  The gluten free diet can be low in B vitamins and other nutrients. A nutritionist can help guide you to a nutrient dense diet, but food sensitivities and food preferences can limit choices.  I can't consume fish and shellfish due to the sulfa hypersensitivity and iodine content, and dairy is out as well.  I react to casein, the protein in dairy, as well as the iodine in dairy.  My Dermatitis Herpetiformis is aggravated by iodine.   Blood tests for B vitamin levels are notoriously inaccurate.  You can have deficiency symptoms before blood levels change to show a deficiency.  I had subclinical vitamin deficiencies for years which affected my health, leading to a slow downward spiral.  Because the B vitamins are water soluble, they are easily excreted in urine if not needed.  It's better to have it and not need it than need it and not have it.   Wheat and other gluten containing grain products have vitamins and minerals added to them to replace those nutrients lost in processing.  Manufacturers add cheap vitamins that our bodies don't absorb or utilize well.  Even normal people can suffer from vitamin deficiencies.  The rise in obesity can be caused by High Calorie Malnutrition, where people eat more carbohydrate calories but don't get sufficient thiamine and B vitamins to turn the calories into energy.  The calories are stored as fat in an effort to ration out diminishing thiamine  stores.    It's time to buy your own vitamins in forms like Benfotiamine that our bodies can use well.   Not sleeping well and fatigue are symptoms of Thiamine deficiency.   I'm certain Benfotiamine with a B Complex will help you immensely.  Just don't take them at night since B vitamins provide lots of energy, you can become too energetic to sleep.  Better to take them earlier in your day.   Do keep me posted on your progress!
    • NanceK
      Oh wow! Thanks for this information! I’m going to try the Benfotiamine again and will also add a B-complex to my supplements. Presently, I just take sublingual B12 (methylcobalomin). Is supplementation for celiacs always necessary even though you remain gluten-free and you’re healing as shown on endoscopy? I also take D3, mag glycinate, and try to get calcium through diet. I am trying to bump up my energy level because I don’t sleep very well and feel fatigued quite often. I’m now hopeful that adding the Benfotiamine and B-complex will help. I really appreciate your explanation and advice! Thanks again Knitty Kitty!
    • knitty kitty
      @Hmart, The reason why your intestinal damage was so severe, yet your tTg IgA was so minimal can be due to cutting back on gluten (and food in general) due to worsening symptoms.  The tTg IgA antibodies are made in the intestines.  While three grams of gluten per day for several weeks are enough to cause gastrointestinal symptoms, ten grams of gluten per day for for several weeks are required to provoke sufficient antibody production so that the antibodies move out of the intestines and into the blood stream where they can be measured in blood tests.  Since you reduced your gluten consumption before testing, the antibody production went down and did not leave the intestines, hence lower than expected tTg IgA.   Still having abdominal pain and other symptoms this far out is indicative of nutritional deficiencies.  With such a severely damaged small intestine, you are not absorbing sufficient nutrients, especially Thiamine Vitamin B 1, so your body us burning stored fat and even breaking down muscle to fuel your body.   Yes, it is a very good idea to supplement with vitamins and minerals during healing.  The eight essential B vitamins are water soluble and easily lost with diarrhea.  The B vitamins all work together interconnectedly, and should be supplemented together.  Taking vitamin supplements provides your body with greater opportunity to absorb them.  Thiamine and the other B vitamins cannot be stored for long, so they must be replenished every day.  Thiamine tends to become depleted first which leads to Gastrointestinal Beriberi, a condition that doctors frequently fail to recognize.  Symptoms of Gastrointestinal Beriberi are abdominal pain and nausea, but neuropathy can also occur, as well as body and joint pain, headaches and more.  Heart rhythm disruptions including tachycardia are classic symptoms of thiamine deficiency.  Heart attack patients are routinely administered thiamine now.   Blood tests for vitamins are notoriously inaccurate.  You can have "normal" blood levels, while tissues and organs are depleted.  Such is the case with Gastrointestinal Beriberi, a thiamine deficiency in the digestive tract.  Eating a diet high in carbohydrates, like rice, starches, and sugar, can further deplete thiamine.  The more carbohydrates one eats, the more thiamine is required per calorie to turn carbs into energy.  Burning stored fats require less thiamine, so in times of thiamine shortage, the body burns fat and muscles instead.  Muscle wasting is a classic symptoms of thiamine deficiency.  A high carbohydrate diet may also promote SIBO and/or Candida infection which can also add to symptoms.  Thiamine is required to keep SIBO and Candida in check.   Thiamine works with Pyridoxine B 6, so if Thiamine is low and can't interact with Pyridoxine, the unused B 6 accumulates and shows up as high.   Look into the Autoimmune Protocol diet.  Dr. Sarah Ballantyne is a Celiac herself.  Her book "The Paleo Approach" has been most helpful to me.  Following the AIP diet made a huge improvement in my symptoms.  Between the AIP diet and correcting nutritional deficiencies, I felt much better after a long struggle with not feeling well.   Do talk to your doctor about Gastrointestinal Beriberi.  Share the article linked below. Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Keep us posted on your progress!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.