Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hello All - New To The Forum & To Celiac


Marianne G

Recommended Posts

Marianne G Newbie

Hello all! I am new to the forum and new to celiac disease. Just diagnosed this past Thursday. My symptoms have been chronic "D" and just an uneasy feeling of nausea. I am feeling a little alone right now because I know absolutely no one that has celiac disease except me. I am trying to go gluten-free -reading, reading, reading...and feeling a bit overwhelmed. Hubby and I made our first visit to Whole Foods yesterday and it was an overwhelming experience for Kroger/Walmart shoppers! Bought a few things to try (so I wouldn't starve) with his encouragment. Have purchased and am reading The Gluten-Free Bible. Overwhelmed at the thought of how to do this and still keep on with real life too! Any help and encouragement would be appreciated.

Thanks!

:)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



psawyer Proficient

Welcome to the board. :)

The gluten-free lifestyle does seem overwhelming at first. The learning process takes time, but this is something almost all of us here have been through either for ourselves, or as part of a journey with a family member.

You will find that there are many mainstream products that you can buy and use safely. Replacements for baked goods and pasta are specialty items, but most are good.

There is a wealth of information here on this discussion board, and our sister site, celiac.com.

If you have a question, somebody here will likely know the answer.

Your life is not over, it is just beginning.

SurreyGirl Rookie

Hi from the UK!!

When I put my son (age 15) on gluten free 2.5 years ago I knew no one in person either, we did it solely to see if his neuro symptom would respond (they did) and with no celiac disease diagnosis.

Still the same now, but we know that he is is DQ1 (gluten sensitive) and I am now also gluten free to make it easier. The more I read, the more glad I am that we have gone on the diet.

One thing I realised quite quickly is that you can't replace one type of stodge with another to the same extent without potentially causing more problems (some people are rice or corn sensitive too), so we are carb- and dairy-lite too. I cried when I found gluten-free sausages in the supermarket!

Now, I mostly cook from scratch to avoid MSG and other chemicals.

This forum is truly awesome, also "The Gluten File" has loads to read.

SG

Lisa Mentor

Welcome Marianne,

Welcome and wer're glad that you have found us. This is a great place to get your feet wet! :)

missy'smom Collaborator

Welcome! :)

imsohungry Collaborator

Hi and Welcome! :)

I know exactly what you are talking about when you first experience Whole Foods or a large farmers market. I had never seen anything like it, but I had a blast sorting through all of their products. (I'm usually a Kroger girl too). ;)

I ate Amy's enchiladas for the first month I was gluten free; they are very good, but around the third week, I thought I would hurl. Hence my name: Imsohungry. I found this site and it helped SOOO much.

My hubby is making hamburgers now (bunless of course) and we'll have french fries and baked beans.

I don't really like meat, but it is a good example of a gluten free dinner!

Again, welcome...ask any questions you need too and vent when necessary. It does get easier! B)

-Julie

happygirl Collaborator

Hi Marianne,

Welcome to the board! Ask questions-I guarantee you'll get an answer for a recipe, ingredient, etc.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dksart Apprentice

Hi,

I am just learning, too that we are not alone. I have been gluten-free for two years and still don't know anyone else w/Celiac.

This is my favorite blogspot for encouraging stories and awesome recipes Open Original Shared Link the author, Shauna James Ahern has a great go-to book as well. Use the internet. Ask manufacturers if their products contain gluten. Look up ingredients of your favorite foods and find local restaurants with Gluten-free menus. P.F. Chang's is one of my fave's.

I learned today that if you are having a bad day...... and you will ........ the lovely people here can help with great tips and suggestions. If you need answers to questions, you may find them here.

Oh, just to save you a bunch of headaches, Tinkyada is the best Gluten-free pasta. You will HATE Gluten-free bread at first, try to make your own (good recipe on that blog site I listed) Fresh fruits and veggies are your friend. Try to stay away from processed foods, there's more chances it came into contact with some form of gluten. And, if you must have fast food, we can eat McDonald's french fries, Wendy's baked potato and chili, and Chick fil A's grilled chicken and waffle fries.

Be Strong,

Debbie

blueeyedmanda Community Regular

Hi and Welcome to the board! I am a neighbor from PA! We don't have Kroger or a Whole Foods, so a trip to Whole Foods (Baltimore) is a treat. I am not sure if you bought them but the Biscuits by Whole Foods gluten free bakehouse are to die for!

psawyer Proficient
My hubby is making hamburgers now (bunless of course).
Try the Glutino hamburger buns. They are awesome. Toast them for best enjoyment. We love them.
blueeyedmanda Community Regular
Try the Glutino hamburger buns. They are awesome. Toast them for best enjoyment. We love them.

Good to know, I will have to look into those :)

silk Contributor

Welcome. You are definitely not alone. And I had actually never ever heard of celiac before my doctor started to put 2 and 2 together in November and mentioned that this might be a cause of the GI issues I was having. However, since that time I or my husband have discovered many 'closet celiacs'. I guess we just don't talk much about it to the general public because people look at you like you're an alien or that you at least ingested one!

It is hard to wrap your brain around this stuff and realize that this is forever...not just until you feel better. But I honestly have to say that I feel healthier right now (aside from the stomach issues that ocassionally persist) than I have in my whole life.

Psawyer is right. The Glutino buns are good. And the bread is definitely better toasted. I did that for the first time in my oven this weekend because I didn't have a dedicated toaster. It was so good, that I went out and bought a personal toaster.

You will get a lot of good information from this board. But the best thing you will get, in my personal opinion, is support and understanding. Hang in there. It's a challenge but it's worth it.

Worriedwife Apprentice

If you're a Walmart shopper, then you should be okay. Their Great Value line of products has an enormous amount if items that are gluten free. They print it clearly on the back label, if it's gluten free.

Also, most unprocessed foods are naturally gluten free. Rice and potatoes are safe to have (unless you can't handle nightshades), and fresh fruits and veggies are safe as well.

Best of luck in your shopping trips and welcome to the board!

imsohungry Collaborator
Try the Glutino hamburger buns. They are awesome. Toast them for best enjoyment. We love them.

Thanks for the tip! I tried another company's hamburger bun...it's been awhile so I have no idea which brand...but it was horrible and I decided if I was going to eat meat, I'd just eat it bunless.

I've never ordered Glutino products; this will be a whole new line of food to try! :)

Thanks for the suggestion. B) -Julie

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    2. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,321
    • Most Online (within 30 mins)
      7,748

    James Minton
    Newest Member
    James Minton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.