Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

4 Months Off Gluten...and Still Feel Like Blegh!


i-miss-cookie-dough

Recommended Posts

i-miss-cookie-dough Contributor

i basically eat the same things every day.

yogurt

trail mix

fruit

chicken salad

gluten-free crackers

chicken or fish

rice

veggies

and

gluten free rice or energy bars...

i went off dairy for a week of so about a month

ago and didnt feel any different or better

so i got back on.

was feeling a BIT better, i think until this last week.

and for the past 2 days,

the nausea and that foggy/drugged feeling

and exhaustion have come back on strong...

my makeup is gluten free.

my dial soap is safe

i am getting super frustrated.

WHEN will i FEEL BETTER!!!?????

: (


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



sickchick Community Regular

I went Daiiry & Soy free the beginning of December and I am staying off at least 3-4 months before I re-add any back just in case.

Maybe you should go back off Dairy for a longer period of time Doll...

be well! B)

sickchick

AliB Enthusiast

Don't eat the same things every day - it's the worst thing you can do. You should be rotating the foods you eat, having different things and only eating the same things several days or a week or more apart. The more varied the diet, the better we are for it.

the reason why gluten/wheat becomes such a problem in the first place is that because it is in so many foods we have an over-exposure to it. whilst we may start with a gluten-intolerance, over a period of time and continued exposure, if we have the genetic vulnerability, we will end up with full-blown Celiac.

If you continue to ingest the same foods all the time, because of the over-exposure to these foods the same thing may happen and you will end up with intolerances to these foods as well.

Many who are celiac also find that they are very intolerant or even allergic to foods or factors other than gluten and dairy. The triggers can be anything. I have only recently started gluten-free and I am still working through other intolerances. So far I have found Dairy, Yeast, Tannins (no tea or wine) and possibly Salicylates (I can't tolerate too much veg).

It could be that you are still eating or using something else that is causing the problem. I know its boring, but it might be worth trying the Elimination diet so that you can get a handle on what is causing it.

Sorry I can't be of more help.

YoloGx Rookie
i basically eat the same things every day.

yogurt

trail mix

fruit

chicken salad

gluten-free crackers

chicken or fish

rice

veggies

and

gluten free rice or energy bars...

i went off dairy for a week of so about a month

ago and didnt feel any different or better

so i got back on.

was feeling a BIT better, i think until this last week.

and for the past 2 days,

the nausea and that foggy/drugged feeling

and exhaustion have come back on strong...

my makeup is gluten free.

my dial soap is safe

i am getting super frustrated.

WHEN will i FEEL BETTER!!!?????

: (

It often does take time to actually feel better, however it is worth it in spades.

You might want to dial back on the rice. I can't eat it every day myself despite not eating much gluten for years. It actually has a small amount of gluten in it.

The trail lmix might also be suspect. Even if it doesn't have gluten in it it probably has lots of sugar...plus some folks like me have difficuilty with nuts due to leaky gut that usually accompanies celiac. The nuts are often irritants since they are hard to digest in any case. Its better if you soak them overnight to get rid of the growth inhibitors. It makes them more available as food for you no matter what to slightly sprout them.

I suggest you try yams, sweet potatoes, squash, and/or alternative grains like quinoa (you have to wash it first. to make sure its OK since it also has a growth inhibitor), teff (originally from Ethiopia) and amaranth. Just have the rice say twice a week (i.e., with a couple of days in between) and make sure its brown whole grain stuff.

Also I suggest you try some detox herbs etc. And some enzymes like bromelain/papain. See my posts elsewhere for more on this and other supplements. Alternatively or in addition lots of exercise, suanas, etc. And mucho water.

Wow--though--dial soap is way too strong for me. Are you sure its OK for you?? I'd use some peppermint castille soap instead just to be on the safe side.

Yolo

Lux Explorer

Rice contains gluten?????????

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      12

      My only proof

    2. - NanceK replied to Jmartes71's topic in Related Issues & Disorders
      12

      My only proof

    3. - knitty kitty replied to Larzipan's topic in Related Issues & Disorders
      39

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    4. - trents replied to Larzipan's topic in Related Issues & Disorders
      39

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    5. - Scott Adams replied to Larzipan's topic in Related Issues & Disorders
      39

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,365
    • Most Online (within 30 mins)
      7,748

    candiceelse08
    Newest Member
    candiceelse08
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      You're right, doctors usually only test Vitamin D and B12.  Both are really important, but they're not good indicators of deficiencies in the other B vitamins.  Our bodies are able to store Vitamin B12 and Vitamin D in the liver for up to a year or longer.  The other B vitamins can only be stored for much shorter periods of time.  Pyridoxine B 6 can be stored for several months, but the others only a month or two at the longest.  Thiamine stores can be depleted in as little as three days.  There's no correlation between B12 levels and the other B vitamins' levels.  Blood tests can't measure the amount of vitamins stored inside cells where they are used.  There's disagreement as to what optimal vitamin levels are.  The Recommended Daily Allowance is based on the minimum daily amount needed to prevent disease set back in the forties when people ate a totally different diet and gruesome experiments were done on people.  Folate  requirements had to be updated in the nineties after spina bifida increased and synthetic folic acid was mandated to be added to grain products.  Vitamin D requirements have been updated only in the past few years.   Doctors aren't required to take as many hours of nutritional education as in the past.  They're educated in learning institutions funded by pharmaceutical corporations.  Natural substances like vitamins can't be patented, so there's more money to be made prescribing pharmaceuticals than vitamins.   Also, look into the Autoimmune Protocol Diet, developed by Dr. Sarah Ballantyne, a Celiac herself.  Her book The Paleo Approach has been most helpful to me.  You're very welcome.  I'm glad I can help you around some stumbling blocks while on this journey.    Keep me posted on your progress!  Best wishes! P.S.  interesting reading: Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/
    • NanceK
      So interesting that you stated you had sub clinical vitamin deficiencies. When I was first diagnosed with celiac disease (silent), the vitamin levels my doctor did test for were mostly within normal range (lower end) with the exception of vitamin D. I believe he tested D, B12, magnesium, and iron.  I wondered how it was possible that I had celiac disease without being deficient in everything!  I’m wondering now if I have subclinical vitamin deficiencies as well, because even though I remain gluten free, I struggle with insomnia, low energy, body aches, etc.  It’s truly frustrating when you stay true to the gluten-free diet, yet feel fatigued most days. I’ll definitely try the B-complex, and the Benfotiamine again, and will keep you posted. Thanks once again!
    • knitty kitty
      Segments of the protein Casein are the same as segments of the protein strands of gluten, the 33-mer segment.   The cow's body builds that Casein protein.  It doesn't come from wheat.   Casein can trigger the same reaction as being exposed to gluten in some people.   This is not a dairy allergy (IGE mediated response).  It is not lactose intolerance.  
    • trents
      Wheatwacked, what exactly did you intend when you stated that wheat is incorporated into the milk of cows fed wheat? Obviously, the gluten would be broken down by digestion and is too large a molecule anyway to cross the intestinal membrane and get into the bloodstream of the cow. What is it from the wheat that you are saying becomes incorporated into the milk protein?
    • Scott Adams
      Wheat in cow feed would not equal gluten in the milk, @Wheatwacked, please back up extraordinary claims like this with some scientific backing, as I've never heard that cow's milk could contain gluten due to what the cow eats.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.