Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Iodine? And Rash Getting Worse


fedora

Recommended Posts

fedora Enthusiast

Hello,

I have heard of iodine being a problem for gluten intolerant rashes . Would love to hear other people's opinions and experience. I recently bought new gluten free vitamins that have iodine from kelp worth 150% daily value of iodine. I don't use salt, except to make pickles. I am wondering if I need to watch this.

I have only been gluten free entirely for a month, but my rash is getting worse. I have elimanated the rash in the past by not eating wheat and it would only apear very lightly if I cheated and ate wheat, not with other gluten products. So now I am totally gluten free(no cheating and have been very careful) my rash has reappeared. It is not that bad, but worse than when I would cheat and eat wheat. Is this detox? My rash is watery filled blisters on palms of my hands that itch and burn.Then they break and scab over. Thank you so much for your advice.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



moldlady Rookie
Hello,

I have heard of iodine being a problem for gluten intolerant rashes . Would love to hear other people's opinions and experience. I recently bought new gluten free vitamins that have iodine from kelp worth 150% daily value of iodine. I don't use salt, except to make pickles. I am wondering if I need to watch this.

I have only been gluten free entirely for a month, but my rash is getting worse. I have elimanated the rash in the past by not eating wheat and it would only apear very lightly if I cheated and ate wheat, not with other gluten products. So now I am totally gluten free(no cheating and have been very careful) my rash has reappeared. It is not that bad, but worse than when I would cheat and eat wheat. Is this detox? My rash is watery filled blisters on palms of my hands that itch and burn.Then they break and scab over. Thank you so much for your advice.

From my experience, skin rashes are a outgrowth of fungus/yeast in the gut. The natural flora is gone and yeast has taken over.... dysbiosis. Sugar, honey, white rice, potato starch etc. will feed the fungus. Use stevia or agave instead and see if things get under control. Get some good probiotics from Natren like HT to help clear out the intestines and put some good guys in there. Pure coconut oil will also kill off the fungus in the intestines. If you are really loaded, do these things on a day where you are near the bathroom. .... get my drift?

ML

ptkds Community Regular

It sounds like it could be DH. I didnt develop a skin rash (unconfirmed DH) until after I went gluten-free. I haven't taken any meds w/ Iodine in it, but Iodine on my skin caused a pretty bad rash. Lots of people say that the rase usually gets worse before getting better since your body must get rid of the gluten that is built up in the body. It could take months for all the gluten to leave your body. You should avoid Iodine, but you can't avoid it completly since our bodies need iodine to survive. I use non-iodized salt at home and it has helped me out some.

You can always get a biopsy done by a dermatologist if you really want it confirmed as DH or not DH.

ravenwoodglass Mentor

I have, well had, really severe DH. I have been gluten-free now for about 5 years. In the beginning I would get an outbreak from iodine in my vitamins. I had to change brands. However after about a year or so I was able to add them back in without any more problems. You may want to stop the vitamins for a bit and then if you still have doubt you could add them back in after you are healed up and see if the blisters come back.

Also as we heal sometimes we become more sensitive to nonfood contact, have you checked your lotions, any art project glues, pastes, clays, etc, been remodeling?

If you have Dh you get IGA (think it is IGA) deposits in your skin. It can take up to 2 years for the deposits to 'go away'. If they are still present it will take very little gluten to reactivate them.

My biggest clue to my DH going inactive was when instead of blisters being my first indication of gluten they became one of the last and very mild. I have only been glutened a couple of times in the last couple years and now I just get one or two tiny pinhead size blisters that are gone in a couple of days, instead of a couple of months.

moldlady Rookie

I guess I really did not answer your question... sorry...

By going gluten free and avoiding many of the things that feed fungus you set your self up for a Herz. reaction or die off because you are starving the fungus/yeast in your body. Iodine is a known fungal killer and therefore more rash. A rash seems to be your body's die off reaction in most cases...

For me, it was all intestinal. For others it would be tiredness.

ML :)

fedora Enthusiast

Thanks for the advice/ opinions.

My rash is not bad, just interesting that it has reappeared. In the past I had it so horrible I could only use my thumb and first finger on my right hand. The rest of the hand was bad. It also got infected with staph and strep at the same time. :angry: Thanks again.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,549
    • Most Online (within 30 mins)
      7,748

    Blough
    Newest Member
    Blough
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.