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Help, Is My Girlfriend Having Celiac Disease

jf.houde

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jf.houde Newbie
jf.houde
Posted

Hi everyone, my girlfriend and i are trying to find what is her problem exactly. We went to see 5 doctor, in french we called them gastro ent

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kbtoyssni Contributor
kbtoyssni
Posted

Many celiacs have diarrhea, but many also have constipation. The symptoms that doctors most often associate with celiac is malnutrition, weight loss and diarrhea, but recent studies have shown that about 50% of celiacs gain weight. Symptoms can also include joint and muscle pain, difficulty thinking, heartburn, eye twitches, headaches, difficulty sleeping, etc. I would encourage your girlfriend to get tested and try to diet even if testing comes back negative. Traditional medical testing is notorious for false negatives.

jf.houde Newbie
jf.houde
Posted
  • Author
Many celiacs have diarrhea, but many also have constipation. The symptoms that doctors most often associate with celiac is malnutrition, weight loss and diarrhea, but recent studies have shown that about 50% of celiacs gain weight. Symptoms can also include joint and muscle pain, difficulty thinking, heartburn, eye twitches, headaches, difficulty sleeping, etc. I would encourage your girlfriend to get tested and try to diet even if testing comes back negative. Traditional medical testing is notorious for false negatives.

thanks a lot for the info, how do you get tested? I know you can be testes with a blood taking. (not sure how its called) is there anyother ways?

Yesterday we wanted to test if it was a gluten problem, so my girlfriend eated pasta ans bread like never before lol ...and then nothing she was in good form ... but the two past days she was having dificulty to sleep and everything you describe. is it normal taht she react like 2 or 3 days later or as soon as you heat gluten you have consequence.

thanks again

happygirl Collaborator
happygirl
Posted

Ask your doctor to run these blood tests:

Anti-gliadin antibodies (AGA) both IgA and IgG

Anti-endomysial antibodies (EMA) - IgA

Anti-tissue transglutaminase antibodies (tTG) - IgA

Total IgA level.

Open Original Shared Link is a good site with more information.

RiceGuy Collaborator
RiceGuy
Posted
Yesterday we wanted to test if it was a gluten problem, so my girlfriend eated pasta ans bread like never before lol ...and then nothing she was in good form ... but the two past days she was having dificulty to sleep and everything you describe. is it normal taht she react like 2 or 3 days later or as soon as you heat gluten you have consequence.

Yes, a delayed reaction is fairly common. Also there may be a sensitivity to dairy, at least at first. Many report this too.

jf.houde Newbie
jf.houde
Posted
  • Author
Yes, a delayed reaction is fairly common. Also there may be a sensitivity to dairy, at least at first. Many report this too.

yes, before i found the celiac desease we toght i was dairy, and in fact she goes a bit better without airy so we wnt with soya milk aand stuff like that but when it was continuing i've search again and found the celiac disease. thanks for all the comments, we will se in one or two days how she goes ... because yesterday was a gluten trip

jf.houde Newbie
jf.houde
Posted
  • Author
Ask your doctor to run these blood tests:

Anti-gliadin antibodies (AGA) both IgA and IgG

Anti-endomysial antibodies (EMA) - IgA

Anti-tissue transglutaminase antibodies (tTG) - IgA

Total IgA level.

Open Original Shared Link is a good site with more information.

thanks we are gonna ask him to test her blood

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jewi0008 Contributor
jewi0008
Posted

Kbtoyssni- You said that a symptom is eye twitches? Really? I have never heard that but my eyes for the past several months have NOT STOPPED twitching! It drives me crazy! I feel as though I've had something wrong with me since I developed a rash around my nose when I was about 12 years old. I wonder if the eye twitching is a latent symptom from years and years of continuing to eat gluten?! Thoughts?!

Many celiacs have diarrhea, but many also have constipation. The symptoms that doctors most often associate with celiac is malnutrition, weight loss and diarrhea, but recent studies have shown that about 50% of celiacs gain weight. Symptoms can also include joint and muscle pain, difficulty thinking, heartburn, eye twitches, headaches, difficulty sleeping, etc. I would encourage your girlfriend to get tested and try to diet even if testing comes back negative. Traditional medical testing is notorious for false negatives.
lizard00 Enthusiast
lizard00
Posted
Kbtoyssni- You said that a symptom is eye twitches? Really? I have never heard that but my eyes for the past several months have NOT STOPPED twitching! It drives me crazy! I feel as though I've had something wrong with me since I developed a rash around my nose when I was about 12 years old. I wonder if the eye twitching is a latent symptom from years and years of continuing to eat gluten?! Thoughts?!

It's a vitamin B deficiency. Mine twitched for months. I started taking a B supplement, it went away in a matter of days. It's a symptom because of the malabsorption. Malabsorption=nutrient deficiencies.

HAK1031 Enthusiast
HAK1031
Posted

Thanks for the eye twitch info!! My mother's eye has been driving her crazy for a week now. She tested deficient and got a shot, but it didn't do much. Now if only I could convince her that the problem is celiac... and it doesn't help that she had part of her intestine that aids in absorbtion removed due to colon cancer (which is probably celiac related) but I digress

Sorry to thread hiijack, I just was excited to read that! :)

jewi0008 Contributor
jewi0008
Posted
It's a vitamin B deficiency. Mine twitched for months. I started taking a B supplement, it went away in a matter of days. It's a symptom because of the malabsorption. Malabsorption=nutrient deficiencies.

Interesting. I have had it for so long. Then, I started with the B Complex and it pretty much disappeared, too. In addition, I have awful mouth problems. My mouth is constantly irritated. My oral tissues drive me crazy. NOT like canker sores or sores just an overall burning, annoying sensation, with occassional extreme teeth pain. This flair also goes down a lot when I'm taking my B Complex. On Friday I forgot to take it and like clockwork yesterday was hell for me. I'm hoping today or tomorrow for some relief!

What B Complex do you take? And does that make sense to you that if I don't take it, for even one day, that all of the twitching/mouth problems, ect would come back full force?

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    • AlwaysLearning
      Gluten related ??

      By AlwaysLearning · Posted

      Get tested for vitamin deficiencies.  Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
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      By Jmartes71 · Posted

      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      My only proof

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      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
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