Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hot Flashes

wowzer

By wowzer
in Related Issues & Disorders

Recommended Posts

wowzer Community Regular
wowzer
Posted

I've been gluten free since January 1, 2007. I'm sure the night sweats I had for years were probably from gluten. I do take synthroid for thyroid. I quit taking estrogen about a year ago. I ended up stopping cold turkey and didn't notice any difference at the time. I really wonder if I was even absorbing the stuff. I am 53 and I have notice more hot flashes lately, so it could be menopause. I sure hope that I'm not getting glutend this often. Can you tell the difference between the two?

Wendy

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


blueeyedmanda Community Regular
blueeyedmanda
Posted

I am only 25, and I used to be cold all the time, I sweat more now gluten free than I ever did. I used to wear sweaters but not I have dwindled my collection and everything. I even get very toasty at night sometimes, they aren't night sweats nor do I get soaking wet, but sometimes I put shorts on or take all the covers off which is unusual to me.

ravenwoodglass Mentor
ravenwoodglass
Posted

If you go to your OB-GYN they have a blood test that will tell you where your hormone levels are. That will tell you if you are experiencing hormone related hot flashes. Celiac took away my periods at around 40 before I went gluten-free, I was having almost constant hot flashes then. They continued for a long time but after I went gluten-free they decreased to once a night at about 2 am. Why always the same time I have no idea. I do know that when glutened they do seem to occur during the day also but that only lasts a day or two.

Lisa Mentor
Lisa
Posted

Raven had the answer to knowing if you are in menopause, get your hormone levels checked. And perimenopause can last up to ten years before the full onset of the big "M". I started at 35 and not sure it was related to Celiac or not.

Oh, forgot to add, that after I was diagnosed I would often break out into a sweat during a meal or snack. I finally figured out that I was reacting to dairy in any form. It stopped after about two years gluten free. I did not eliminate dairy, just dairy light for a short period of time.

Gemini Experienced
Gemini
Posted
I've been gluten free since January 1, 2007. I'm sure the night sweats I had for years were probably from gluten. I do take synthroid for thyroid. I quit taking estrogen about a year ago. I ended up stopping cold turkey and didn't notice any difference at the time. I really wonder if I was even absorbing the stuff. I am 53 and I have notice more hot flashes lately, so it could be menopause. I sure hope that I'm not getting glutend this often. Can you tell the difference between the two?

Wendy

If you are in your 50's and having hot flashes, then it's menopause. Hot flashes can start years before you actually go into full blown menopause and last for a long, long time. They can also start and stop without warning. That is very common.

As for testing, forget blood draws for hormone levels....very unreliable. Saliva testing is the way to go but you may need to see a less mainstream physician for that. Blood levels tend to be what's stored in your cells and may not be what's floating around for use by your body. That's why many women go and have their blood tested and are told their hormone levels are fine...when they have flaming symptoms of menopause.

I never had any gluten related hot flashes and am not convinced they are from gluten anyway.

It may be that before diagnosis of celiac disease, a person is very run down, adrenally, and this could cause temperature shifting. Hot flashes are generally a hormone mediated response and can occur for years around menopause. If your hormone levels are in flux, for whatever reason, you'll have a hot flash.

It may be a better idea to use bio-identical hormones, in cream form, for any hormone replacement. They are prescribed by a physician and obtained through a compounding pharmacy. As they absorb through the skin, there is no worry of mal-absorption problems. They are safer to use than mainstream pill hormones too.

Look on the bright side.....your heating bills should go down once the hot flashes gear up! :P

jerseyangel Proficient
jerseyangel
Posted
As for testing, forget blood draws for hormone levels....very unreliable.

I agree with this--during perimenopause, especially, hormone levels can change daily.

wowzer Community Regular
wowzer
Posted
  • Author

I do know that I need to get my hormone levels checked. It is a little harder for me to figure out, since I was born without a uterus, I've never had periods. My one lonely ovary does still ovulate, but I think that is happening less now.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


nmw Newbie
nmw
Posted

It does sound like meno. I get hot flashes when glutened as well as with hormonal shifts. To answer your question, for me the hormonal ones pass quickly with little, if any residual effects, and the glutened ones are more like a toxin reaction and are accompanied by all my other gluten symptoms.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,679
    • Most Online (within 30 mins)
      7,748
    ashleyturner3696
    Newest Member
    ashleyturner3696
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Rejoicephd
      Draft gluten-free ciders… can they be trusted ?

      By Rejoicephd · Posted

      That and my nutritionist also said that drinking cider is one of the worst drink choices for me, given that I have candida overgrowth.  She said the combination of the alcohol and sugar would be very likely to worsen my candida problem.  She suggested that if I drink, I go for clear vodka, either neat or with a splash of cranberry.   So in summary, I am giving ciders a rest.  Whether it's a gluten risk or sugars and yeast overgrowth, its just not worth it.
    • Inkie
      Tea Bags and Gluten

      By Inkie · Posted

      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      Tea Bags and Gluten

      By Scott Adams · Posted

      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      Inconclusive results

      By Scott Adams · Posted

      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
    • Scott Adams
      Medication

      By Scott Adams · Posted

      Welcome to the community! Generally, for a gluten challenge before celiac disease blood tests, Tylenol (acetaminophen) is considered safe and should not interfere with your antibody results. The medications you typically need to avoid are those like ibuprofen (Advil, Motrin) or naproxen (Aleve) that can cause intestinal irritation, which could potentially complicate the interpretation of an endoscopy if you were to have one. However, it is absolutely crucial that you confirm this with either your gastroenterologist or your surgeon before your procedure. They know the specifics of your case and can give you the definitive green light, ensuring your surgery is comfortable and your celiac testing remains accurate. Best of luck with your surgery tomorrow
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.