Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Son Complains Of Leg Pain


mama2two

Recommended Posts

mama2two Enthusiast

anyone else's child complain of leg pain? my son has been complaining of this for several days now and I am not sure what to make of it. he has no other symptoms but is now complaining of symptoms of a UTI, I let them have a bubble bath a couple weeks ago. I am taking him to the pedi today. I am wondering if it's not enough calcium, they drink almond milk, but he does not drink much, he is still nursing a little. one reason it really concerns me is that my cousin had compliants of leg pain at 5yrs and he was diagnosed with leukemia, but he also had fever and could hardly walk on his. my son walks well, but I have noticed him with a slight limp once and he was stiff legged today, just in the morning. any thoughts or similiar experience?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dbmamaz Explorer

Even tho I never had them, all my kids have had varying degrees of 'growing pains.' My daughter would wake in the night with pains in her legs. It was the muscles, and massage and heating pad would cure it. my first son's pains were in his tendons. Only ibuprofen fixed that. He also had ongoing pain in his legs during the day, and it got worse and worse. Eventually we ended up at a physical therapist who said one of his tendons was just really tight, and gave him some excercises which really helped. My 4 yo just falls asleep better if I massage his legs a bit.

So it could be a sprain, or growing pains, or a bruise even - dont worry too much!

home-based-mom Contributor
anyone else's child complain of leg pain? my son has been complaining of this for several days now and I am not sure what to make of it. he has no other symptoms but is now complaining of symptoms of a UTI, I let them have a bubble bath a couple weeks ago. I am taking him to the pedi today. I am wondering if it's not enough calcium, they drink almond milk, but he does not drink much, he is still nursing a little. one reason it really concerns me is that my cousin had compliants of leg pain at 5yrs and he was diagnosed with leukemia, but he also had fever and could hardly walk on his. my son walks well, but I have noticed him with a slight limp once and he was stiff legged today, just in the morning. any thoughts or similiar experience?

Commercial bubble baths are prime sources of UTI. Pour whatever you use to wash him with under the running water as the tub fills up and it should provide safer bubbles.

I had lots of leg "growing" pains as a child and have learned here that I could have been gluten intolerant as far back as then! :o

You'll know more after seeing the doctor.

gfpaperdoll Rookie

There is no such thing as growing pains. I had those leg pains as a child, but it was because I cannot eat wheat, rye, oats, or barley. I was also anemic. We were also poor & did not have medical attention, & my mother said that I just had growing pains. I have double DQ1 genes, so am classified as gluten intolerant. I found out I was severly allergic to barley & oats when I was 25, I am 61 now. Too bad I did not find out there was something called gluten... I also cannot have dairy.

I hope you get your child checked for anemia & also check to see that he is not getting CC from some of the gluten free grain replacements, like Diamond Nut thin crackers, or Quacker Rice Cakes, that sort of stuff...

JennyC Enthusiast

My son has been getting growing pains too. As a child I used to get UTIs all the time. Avon has a bubble bath that I could use it is supposed to be very gentle.

bekalu Newbie

my son had pains in his legs until going gluten free. he would wake up crying most nights. it only took a few days of him being gluten free for his leg cramps to stop completely.

shayesmom Rookie
anyone else's child complain of leg pain? my son has been complaining of this for several days now and I am not sure what to make of it. he has no other symptoms but is now complaining of symptoms of a UTI, I let them have a bubble bath a couple weeks ago. I am taking him to the pedi today. I am wondering if it's not enough calcium, they drink almond milk, but he does not drink much, he is still nursing a little. one reason it really concerns me is that my cousin had compliants of leg pain at 5yrs and he was diagnosed with leukemia, but he also had fever and could hardly walk on his. my son walks well, but I have noticed him with a slight limp once and he was stiff legged today, just in the morning. any thoughts or similiar experience?

If you suspect a UTI, you may want to look into getting a D-Mannose supplement. It is a powder made from the ingredient in cranberries which prevents UTI's. You can mix it in water or juice.

My dd got dx'd with a UTI last year. We did not have to take antibiotics as a combination of D-Mannose and probiotics cleared it up in about 48 hours. I did get a prescription for our doctor "just in case". Luckily, I had read that D-Mannose was one of the most effective things to give someone with a UTI, not only to treat it, but to prevent it.

As for the leg pain....there are several vitamin deficiencies which could cause it. Somehow, I suspect that this isn't a problem with calcium, more likely Vitamin A, possibly magnesium.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



aprilh Apprentice

Last year my daughter had severe leg pains that at times she would not even walk on them. After 7 doctor visits, we figured out she was anemic. The iron supplementation helped.

Then just recently in the last 2 weeks, they started again. Checked her blood and once again she is anemic. She has been gluten free and mostly dairy free for about 1 1/2 years or so.

I don't believe in growing pains. I think that is an answer to a problem that doctors don't know the answer to. I wonder if in many of those cases had they checked iron levels they may have come back low.

Lead in the tissues can displace iron. Malabsorption in the gut can cause iron deficiency. Mold exposure can mess up iron levels as well.

mama2two Enthusiast
anyone else's child complain of leg pain? my son has been complaining of this for several days now and I am not sure what to make of it. he has no other symptoms but is now complaining of symptoms of a UTI, I let them have a bubble bath a couple weeks ago. I am taking him to the pedi today. I am wondering if it's not enough calcium, they drink almond milk, but he does not drink much, he is still nursing a little. one reason it really concerns me is that my cousin had compliants of leg pain at 5yrs and he was diagnosed with leukemia, but he also had fever and could hardly walk on his. my son walks well, but I have noticed him with a slight limp once and he was stiff legged today, just in the morning. any thoughts or similiar experience?

Well, his urine was OK, no uti. My pedi said to wait a week and see if he continues to complain and keep a record of it, what leg, etc. She said we may do an xray and blood work if it continues. He went two days with no complaints and today he has complained twice, but one time he was sitting on his legs. We will see, but I am leaning towards getting the diagnostics done at the end of the week regardless of how many times he complains. I want to rule out the bad stuff. I will keep you posted.

scotty Explorer

i apologize ahead of time but did not read other replies...

i know i had a run in with unepxected glutenening there a couple months ago and my legs started breaking down all over the place as they had just before going g;luten free; everything was starting to come back; maybe there is a sneaky gluten getting in somewhere. crazy as it sounds, mine was Bob's Red Mill. just happened again this past week here. determined me...gotta find foods though; gotta go through them a few times then stop then go back...gotta figure out how they will work for me

TCA Contributor

I had TERRIBLE "growing pains" as a child. I was tested for everything from RA to leukemia, all negative. i was told it was in my head and to deal with it. "Take a tylenol and you'll outgrow them." At 29 I still had them. My daughter was born and I went gluten-free while nursing her because of suspected (later confirmed) celiac disease. After a few months of her thriving I noticed that I was not hurting for the first time in my life. When I now get an accidental glutening, the pain is almost unbearable. A friend has the same symptoms and went gluten-free with the same miraculous results. I never would have suspected gluten, but there is no doubt it was to blame for my lifetime of pain. good luck in assessing the problem with your son. It could be anything, but it was gluten for me.

fedora Enthusiast

My son gets terrible leg pains. I think they are probably dietary(he is not gluten free yet) and vitamin related.

I don't believe in growing pains, BUT the medical field says growing pains NEVER happen during the day. That is a definate sign of more. Even they realize it shouldn't happen during the day, but I think it shouldn't happen at all.

When I was growing rapidly as a child I had them horrible, but then I continued to have them after I stopped growing. I also was vomiting, had D, and skin rash, and terrible awful moods. All gluten intolerant symptoms-for years. The Drs diagnosed me with stomach bugs and growing pains. UGH. That led me to not trust them at a young age, they never listened to me or validated me at all.

I have had joint and muscle pain my entire adult life, but it has gone away since going off gluten :D

I got accidentally gluttened and my shoulder hurt a bit.

Not sure if that was helpful, but good luck. I am hoping when I take my son off gluten they will stop(it's his only symptom,but it was my first)

RiceGuy Collaborator

What worked for me is magnesium. I also started taking a sublingual methylcobalamin (B12), and vitamin D, both of which I believe have been important factors.

jen2be2 Explorer

My DD Jiselle has had chronic leg pain since October '06( since she was 4 years old). She can not even walk up the stairs without being in pain.

She was dignosed with Celiac in Jan '07. She got her first - bloodwork 6 months ago and she still has terrible shin pain. We just met with Endocrine 2 days ago and after several tests and scans,he has dignosed her with juvenile ostoperosis (sp?). He tells me that her leg pain could be caused by her very low bone density.

Ursa Major Collaborator

Leg pains can have many causes. My grandson (who is also gluten and nightshade intolerant) gets dreadful leg pains from red food dye. So, it can be caused by things other than gluten.

I had 'growing pains' for over fifty years, until I went off gluten, lectins and salicylates.

I like Rice Guy's suggestions for extra magnesium and vitamin B12 (a B complex is good on top of taking B12, because the B vitamins work together). Anemia is another possibility. And hopefully it isn't osteoporosis (which isn't too likely with a child that young).

I also don't believe in growing pains. When doctors don't know what causes pains in young kids, they'll 'diagnose' growing pains, and in adults it is psychological. Whatever.

Don't give up on looking for the cause, because if you look long enough, you'll eventually find it.

scotty Explorer
I had 'growing pains' for over fifty years, until I went off gluten, lectins and salicylates.

Ursa,

what are these things more specifically. i guess i am wondering which foods you eat or which you avoid to avoid lectins and salicytates?

Ursa Major Collaborator

Scotty, I am in Mexico right now and don't have my bookmarks, of course. I will answer your question with links to follow when I am back home (we are flying tomorrow).

scotty Explorer
Scotty, I am in Mexico right now and don't have my bookmarks, of course. I will answer your question with links to follow when I am back home (we are flying tomorrow).

great

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
      25

      Headaches / Migraines and Hypoglycaemia

    2. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      25

      Headaches / Migraines and Hypoglycaemia

    3. - Scott Adams replied to Russ H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      KAN-101 Treatment for Coeliac Disease

    4. - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Body dysmorphia experience

    5. - Scott Adams replied to Colleen H's topic in Related Issues & Disorders
      2

      Heat intolerant... Yikes


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,151
    • Most Online (within 30 mins)
      7,748

    Travis25
    Newest Member
    Travis25
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
    • Scott Adams
      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."  
    • Scott Adams
      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
    • Scott Adams
      The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.      
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.