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shan

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shan Contributor
shan
Posted

Don't know if you remember, but my dd, who is now three and gluten free for a year... well her numbers went up instead of down. The gastro said he's never seen anything like this, and sent me to the dietician. Well, after the dietician, i got really confused. Basically, this is what he said - TAKE OUT ANY AND ALL PROCESSED FOODS. How in heavens name can i do that?! What would she eat?! Seriously, its basically only her breakfast that is the problem and of course snacks. I guess i could really introduce more fruit to her diet, but hte gastro said that could be what is causing her bloated tummy. I called the celiac society here in israel, and they said that they have also never heard of such a severe case in such a young child. Children normally take approx 6 months to heal, and even if theyhaven't healed, they don't go up!

Any ideas, advice?!

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gfpaperdoll Rookie
gfpaperdoll
Posted

I would also not give her processed foods. IS she dairy free? You could read up on the damage that dairy can do to the intestines

tarnalberry Community Regular
tarnalberry
Posted

breakfast can be fried rice - rice and eggs with some chopped veggies, an apple and peanut butter, a fruit smoothie (coconut milk instead of dairy milk?), homemade muffins...

shan Contributor
shan
Posted
  • Author

Thanks for your suggestions... I don't give her any dairy, except for the really odd chocolate, and i am trying to cut down on her soya intake although that is hard. I really have no time in the morning to make any great breakfast, she is very picky in the mornings, the only meal that she really eats nicely is lunch, so that i work for and also for supper - but breakfast i need easy and quick, either something that is 1,2,3 to make or something that i can make in advance, freeze,like pancakes but they are with soya, and take out in the morning and be ready in a jiffy :)

Darn210 Enthusiast
Darn210
Posted

There is no rule that says you have to have cereal or pancakes for breakfast. What does she eat for lunch? Are there components that you can give her for breakfast that would be quick. . . heat up some rice, a little fruit, peanut butter on a rice cake, leftover spaghetti . . . as long as it's safe for her, consider it fair game. I make my own pancakes and muffins and freeze them, then reheat as needed. My daughter loves fruit smoothies so I will make two blender-fulls at a time and freeze the leftovers into one cup servings that we defrost in the microwave and have anytime. Sometimes we make popcicles out of it. A fruit popcicle for breakfast might be enticing for a three year old!

shan Contributor
shan
Posted
  • Author

Thanks, Darn210, for your reply... I give my dd for lunch the leftovers from supper the night before - or a jacket potato, or eggs with oven chips - basically anything that can be ready the second she comes back from daycare, coz she is STARVING :D I am now on a hunt for glute, dairy and soya free pancakes, coz she loves them. I am also on a hunt for peanut butter that says on the packet gluten free, not that i have to call up. We are trying to take her off all things that we know are gluten free but don't say so on the packet... Any and all advice welcome!!!

gfpaperdoll Rookie
gfpaperdoll
Posted

I am happy to hear you are cutting down or getting rid of the soy. Soy is not good, especailly for a child. Spring rolls are good for breakfast. You can make them ahead & they will keep several days in the refrigerator.

also a baked apple is good anythime. Take a glass baking dish & slice an apple in it, sprinkle with cinnamon & maybe a little nutmeg - just heard today how good nutmeg is for us... spinkle on some honey & some 100% maple syrup, toss on a few raisins, toss on some chopped pecans or walnuts & microwave till the apple is soft. You can also put a layer of cooked chopped ham or chicken on the bottom & it will be all sweet & juice & yummy.

a banana some dried apricots or raisins & some Lunchberg Rice chips spread with some PB & Jelly is also a good breakfast. I like to get those little packages of canadian bacon - precooked & child sized, you can also cut a stack of them into little slivers & sprinkle on the rice chips with the PB. Also one thought is that peanut butter contributes to leaky gut, you might want to think about switching to almond butter. You can also get the jam that has no added sugar or corn syrup which is really a lot better for you some brands add grape juice for the sweetner & it is very delicious.

Will your child eat bacon - bacon is really good for us all & you should let her have all she wants...

deviled eggs would be good for breakfast - there again she could eat them with the canadian bacon or regular bacon add a fruit & you are done. also homemade pudding made with coconut milk.

If she does like rice cakes the Lundberg brand is really the only one that I would suggest that you get. You can also make ahead a rice pudding with raisins and eggs & cinnamon etc & she could have that for breakfast. boars head lunch meat rolled up - is good anytime with a fruit - maybe she would eat it better if it is rolled up & she can dip it in something - everything tastes better if it is dipped!! :)

it sounds like you are not gluten-free, so I guess you know that if you are cooking anything with wheat flour in the house that she will stay sick from that. Also things like cake mixes etc that people do not realize contain wheat flour. Is she getting cross contaminated at day care - very likely & are they using gluten free play doh?

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buffettbride Enthusiast
buffettbride
Posted

We make what we call "fat eggs"

We take a small glass pyrex dish and spray it w/ oil (for no sticking) then lightly beat an egg and nuke it for 35 seconds. It is soooo fast.

Sometimes we pre-make egg cups for the week and make a scrambled egg/veggie mix and bake in cupcake tins for single-servings. Also very quick to reheat and eat.

gfpaperdoll Rookie
gfpaperdoll
Posted

This idea is lifted from the Paleo forum ... You can take boiled eggs & peel them & then surround them with chopped meat - you could use pork & ground beef etc, or sausage... then you bake them in the oven until the meat is done. I thought that sounded like something that kids would like to make & eat. dip in ketchup - sounds kid friendly...

shan Contributor
shan
Posted
  • Author

it sounds like you are not gluten-free, so I guess you know that if you are cooking anything with wheat flour in the house that she will stay sick from that. Also things like cake mixes etc that people do not realize contain wheat flour. Is she getting cross contaminated at day care - very likely & are they using gluten free play doh?

HAK1031 Enthusiast
HAK1031
Posted

Jennie-O makes turkey bacon that is gluten and pork free, though I don't know if it's Kosher certified..just throwing it out there!

But I eat anything for breakfast, leftovers, etc...I used to love pizza for breakfast! Plus that's more filling than a bowl of cereal, and the time when you need all those calories is in the morning when you have a big day ahead of you.

Ask your doctor before you supplement with a child (or really anyone for that matter) but GNC makes many supplements that are free of (it seems) just about everything you could possibly be allergic/intolerant to!

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  • Recent Activity

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      Hi @Scatterbrain Thank you for your reply. Some of these things could be weaknesses, also triggered by stress, which perhaps have come about as the result of long-term deficiencies which can take a long time to correct. Some could be completely unrelated. If it is of help, I'll tell you some of the things that started in the first year or two...
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    • cristiana
      Feel like I’m starting over

      By cristiana · Posted

      Hi @Scatterbrain Thank you for your reply.   Some of these things could be weaknesses, also triggered by stress, which perhaps have come about as the result of long-term deficiencies which can take a long time to correct.   Some could be completely unrelated. If it is of help, I'll tell you some of the things that started in the first year or two, following my diagnosis - I pinned everything on coeliac disease, but it turns out I wasn't always right!  Dizziness, lightheaded - I was eventually diagnosed with cervical dizziness (worth googling, could be your issue too, also if you have neck pain?)  A few months after diagnosis I put my neck out slightly carrying my seven-year-old above my head, and never assigned any relevance to it as the pain at the time was severe but so short-lived that I'd forgotten the connection. Jaw pain - stress. Tinnitus - I think stress, but perhaps exacerbated by iron/vitamin deficiencies. Painful ribs and sacroiliac joints - no idea, bloating made the pain worse. It got really bad but then got better. Irregular heart rate - could be a coincidence but my sister (not a coeliac) and I both developed this temporarily after our second Astra Zeneca covid jabs.   Subsequent Pfizer jabs didn't affect us. Brain fog - a big thing for people with certain autoimmune issues but in my case I think possibly worse when my iron or B12 are low, but I have no proof of this. Insomnia - stress, menopause. So basically, it isn't always gluten.  It might be worth having your vitamins and mineral levels checked, and if you have deficiencies speak to your Dr about how better to address them?    
    • knitty kitty
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      By knitty kitty · Posted

      @NanceK, I do have Hypersensitivity Type Four reaction to Sulfa drugs, a sulfa allergy.  Benfotiamine and other forms of Thiamine do not bother me at all.  There's sulfur in all kinds of Thiamine, yet our bodies must have it as an essential nutrient to make life sustaining enzymes.  The sulfur in thiamine is in a ring which does not trigger sulfa allergy like sulfites in a chain found in pharmaceuticals.  Doctors are not given sufficient education in nutrition (nor chemistry in this case).  I studied Nutrition before earning a degree in Microbiology.  I wanted to know what vitamins were doing inside the body.   Thiamine is safe and nontoxic even in high doses.   Not feeling well after starting Benfotiamine is normal.  It's called the "thiamine paradox" and is equivalent to an engine backfiring if it's not been cranked up for a while.  Mine went away in about three days.  I took a B Complex, magnesium and added molybdenum for a few weeks. It's important to add a B Complex with all eight essential B vitamins. Supplementing just one B vitamin can cause lows in some of the others and result in feeling worse, too.  Celiac Disease causes malabsorption of all the B vitamins, not just thiamine.  You need all eight.  Thiamine forms including Benfotiamine interact with each of the other B vitamins in some way.  It's important to add a magnesium glycinate or chelate supplement as well.  Forms of Thiamine including Benfotiamine need magnesium to make those life sustaining enzymes.  (Don't use magnesium oxide.  It's not absorbed well.  It pulls water into the intestines and is used to relieve constipation.)   Molybdenum is a trace mineral that helps the body utilize forms of Thiamine.   Molybdenum supplements are available over the counter.  It's not unusual to be low in molybdenum if low in thiamine.   I do hope you will add the necessary supplements and try Benfotiamine again. Science-y Explanation of Thiamine Paradox: https://hormonesmatter.com/paradoxical-reactions-with-ttfd-the-glutathione-connection/#google_vignette
    • Wheatwacked
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    • NanceK
      My only proof

      By NanceK · Posted

      Hi…Just a note that if you have an allergy to sulfa it’s best not to take Benfotiamine. I bought a bottle and tried one without looking into it first and didn’t feel well.  I checked with my pharmacist and he said not to take it with a known sulfa allergy. I was really bummed because I thought it would help my energy level, but I was thankful I was given this info before taking more of it. 
    • Wheatwacked
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      Hello @Scatterbrain, Are you getting enough vitamins and minerals.  Gluten free food is not fortified so you may be starting to run low on B vitamins and vitamin D.   By the way you should get your mom checked for celiac disease.  You got it from your mom or dad.  Some studies show that following a gluten-free diet can stabilize or improve symptoms of dementia.  I know that for the 63 years I was eating gluten I got dumber and dumber until I started GFD and vitamin replenishment and it began to reverse.  Thiamine can get used up in a week or two.  Symptoms can come and go with daily diet.  Symptoms of beriberi due to Thiamine deficiency.   Difficulty walking. Loss of feeling (sensation) in hands and feet. Loss of muscle function or paralysis of the lower legs. Mental confusion. Pain. Speech difficulties. Strange eye movements (nystagmus) Tingling. Any change in medications? Last March I had corotid artery surgery (90 % blockage), and I started taking Losartan for blood pressure, added to the Clonidine I was taking already.  I was not recovering well and many of my pre gluten free symptoms were back  I was getting worse.  At first I thought it was caused a reaction to the anesthesia from the surgery, but that should have improved after two weeks.  Doctor thought I was just being a wimp. After three months I talked to my doctor about a break from the Losartan to see if it was causing it. It had not made any difference in my bp.  Except for clonindine, all of the previous bp meds tried had not worked to lower bp and had crippling side effects. One, I could not stand up straight; one wobbly knees, another spayed feet.  Inguinal hernia from the Lisinopril cough.  Had I contiued on those, I was destined for a wheelchair or walker. She said the symptoms were not from Losartan so I continued taking it.  Two weeks later I did not have the strength in hips and thighs to get up from sitting on the floor (Help, I can't get up😨).  I stopped AMA (not recommended).  Without the Losartan, a) bp did not change, after the 72 hour withdrawal from Losartanon, on clonidine only and b) symptoms started going away.  Improvement started in 72 hours.  After six weeks they were gone and I am getting better.  
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