Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Something Worse Than Celiac?


FlourShopGirl

Recommended Posts

FlourShopGirl Explorer

I feel like I have something worse than Celiac. As I watched Oprah a few days ago a woman commented on Dr. Oz and how she had constant diarrhea & blood in stool. She went to the doctor's and at 32 found out she had colon cancer, stage 3. Scary! After I gave birth to my kids, they were both HUGE babies (my daughter was over 9 pounds), I got hemmroids which I would consider severe. Here and there after a bowel movement I see red. Maybe twice a year but those are also hurting at the same time. I didn't think too much of it until I heard of the lady who got colon cancer at my age. I'm three and 1/2 week into this diet with NO results and chronic diarrhea. I eat and 10-20 minutes later use the restroom 3-4 times. Should I be concerned? I've always had stomach problems but now I thinking I have something worse. I would have thought this diet would be working for me by now and my husband says I am not giving it a chance. :(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



psawyer Proficient

You are only a few weeks into the diet. It can take much longer for you to recover, depending on the extent of the damage to your system and your age. Many of us saw improvement in just days, and others took weeks or months.

Keep strictly to the gluten-free diet. Yes, there may be something more serious, but I would give it at least another month to see if the diet is working. Your husband is right that this can take more time.

I was in severe distress after several years of undiagnosed and uncontrolled celiac disease. I had explosive diarrhea, malabsorption, anemia, and other problems. It took about four months for most things to return to normal. My bones are still weak (osteoporosis) after more than six years gluten-free.

Things will get better for you. Stay gluten-free.

I've been there. If there is anything I can help you with, just ask. You can post a question here, or send me a PM.

celiac-mommy Collaborator

If there's still blood, you need to call your dr!!! I always tell my patients to ere on the side of caution-better safe than sorry. I have yet to see a dr. angry/upset to rule out a heart attack. I can't imagine one to be upset to rule out colon cancer. If there's no blood, maybe wait. BUT if this is going to be weighing on your mind for the next month, call your dr. and request a colonoscopy. Blood in the stool usually gets their attention pretty quick!!

ksymonds84 Enthusiast
I feel like I have something worse than Celiac. As I watched Oprah a few days ago a woman commented on Dr. Oz and how she had constant diarrhea & blood in stool. She went to the doctor's and at 32 found out she had colon cancer, stage 3. Scary! After I gave birth to my kids, they were both HUGE babies (my daughter was over 9 pounds), I got hemmroids which I would consider severe. Here and there after a bowel movement I see red. Maybe twice a year but those are also hurting at the same time. I didn't think too much of it until I heard of the lady who got colon cancer at my age. I'm three and 1/2 week into this diet with NO results and chronic diarrhea. I eat and 10-20 minutes later use the restroom 3-4 times. Should I be concerned? I've always had stomach problems but now I thinking I have something worse. I would have thought this diet would be working for me by now and my husband says I am not giving it a chance. :(

I would definately give your doc a call but also relax. I used to get bloody diarrhea when I was younger and was diagnosed with ulcerative colitis along with my ibs. I don't get diarrhea anymore as long as I stay gluten free. Give the diet a chance, it take some months to a year to heal but as long as your careful with cross contamination etc. you will see improvements along the way.

debmidge Rising Star

Hi

Been through rectal bleeding (my husband has celiac not me) but I have had internal and external hemmorroids AND rectal fissures that bled. This can be fixed outpatient. But please see a gastro for colonoscopy and he'll tell you if you need to see just a protologist for hemmorroids.....chances are that is all it is....but don't take it lightly.

FlourShopGirl Explorer

I have the internal and external. After the birth of my son 12 years ago, I got them pretty bad. I was upset being so young and I wanted to get them removed. I would read on the net how much trouble and pain it was to get them removed though and it turned me off. i only get this about twice a year but the blood is scary where I question it.

I really appreciated the answers here. I feel discouraged from the diet sometimes, I am one of those instant gratification sort of people even though I can't expect that. It's just frustrating to use the restrooms 10 times a day and barely make it. I think an internal exam could rule out a bunch of stuff though so I might as well go.

ravenwoodglass Mentor
I have the internal and external. After the birth of my son 12 years ago, I got them pretty bad. I was upset being so young and I wanted to get them removed. I would read on the net how much trouble and pain it was to get them removed though and it turned me off. i only get this about twice a year but the blood is scary where I question it.

I really appreciated the answers here. I feel discouraged from the diet sometimes, I am one of those instant gratification sort of people even though I can't expect that. It's just frustrating to use the restrooms 10 times a day and barely make it. I think an internal exam could rule out a bunch of stuff though so I might as well go.

Have you eliminated dairy as well? We often need to in the beginning to heal and may remain symptomatic if it is not eliminated. Also have you checked all meds, toiletries, are you the only one at home that is gluten-free? That really makes CC very likely.

I agree with your husband that you need to give it a bit more time, also eliminate the dairy for at least a month and be aware that you may experience more anxiety and moodiness during the first month or two. In addition, the mucous membranes reation to gluten can make hemmies really bad. They will likely fade the longer you are gluten free. If you are really bothered about the thought of colon cancer then do contact your GI doctor and see if he thinks a scope is warrented.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,140
    • Most Online (within 30 mins)
      7,748

    KP009
    Newest Member
    KP009
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      These are labeled gluten-free: https://www.amazon.com/Corn-Husks-Tamales-Authentic-Flavorful/dp/B01MDSHUTM/
    • Wheatwacked
      Just a gluten free diet is not enough.  Now you have to identify and replenish your malnutrition.  Celiac disease is co-morbid with malabsorption syndrome.  Low vitamin D, Low Thiamine caused Gastointeston Beriberi, low choline, low iodine are common the general population, and in newly diagnosed Celiacs in the western culture its is more likely.  It takes time to heal and you need to focus on vitamins and minerals.  Gluten free foods are not fortified like regular processed foods.  
    • Sarah Grace
      Dear Kitty Since March I have been following your recommendations regarding vitamins to assist with various issues that I have been experiencing.  To recap, I am aged 68 and was late diagnosed with Celiac about 12 years ago.  I had been experiencing terrible early morning headaches which I had self diagnosed as hypoglycaemia.  I also mentioned that I had issues with insomnia, vertigo and brain fog.   It's now one year since I started on the Benfotiamine 600 mg/day.  I am still experiencing the hypoglycaemia and it's not really possible to say for sure whether the Benfotiamine is helpful.  In March this year, I added B-Complex Thiamine Hydrochloride and Magnesium L-Threonate on a daily basis, and I am now confident to report that the insomnia and vertigo and brain fog have all improved!!  So, very many thanks for your very helpful advice. I am now less confident that the early morning headaches are caused by hypoglycaemia, as even foods with a zero a GI rating (cheese, nuts, etc) can cause really server headaches, which sometimes require migraine medication in order to get rid off.  If you are able to suggest any other treatment I would definitely give it a try, as these headaches are a terrible burden.  Doctors in the UK have very limited knowledge concerning dietary issues, and I do not know how to get reliable advice from them. Best regards,
    • knitty kitty
      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.