Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My Eye Wont Stop Twitching!

dksart

By dksart
in Coping with Celiac Disease

Recommended Posts

dksart Apprentice
dksart
Posted

Has this ever happened to any of you? I guess it's celiac related, I've gotten accidentally glutened a few times in the past month and am having many other side effects from it as well. (The last time was yesterday at P.F. Chang's.....we're not safe anywhere.)

I have always had a mild version of this, with my eye jumping or eyelid twitching, but it is now happening every day, all day long. At least once every hour and more. It is really bothering me and it's becoming more apparent. No one could notice when it happened before, but now it's almost causing my eyelid to close.

Does anyone know if this a pinched nerve or something else? Should I get it checked out? I don't have any insurance. This is starting to worry me.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GlutenWrangler Contributor
GlutenWrangler
Posted

It really might just be a Magnesium deficiency. The same thing used to happen to me. You see, when I get glutened, I lose some of my electrolytes, creating a deficiency. It doesn't go away until the Magnesium is replaced. You could try some Magnesium rich foods or get a Megnesium supplement to see if it helps. Good luck.

-Brian

sickchick Community Regular
sickchick
Posted

LOL used to happen to me all the time! B)

HAK1031 Enthusiast
HAK1031
Posted

It's also a symptom of b12 deficiency. Have your doctor run a nutrient deficiency panel.

jewi0008 Contributor
jewi0008
Posted
Has this ever happened to any of you? I guess it's celiac related, I've gotten accidentally glutened a few times in the past month and am having many other side effects from it as well. (The last time was yesterday at P.F. Chang's.....we're not safe anywhere.)

I have always had a mild version of this, with my eye jumping or eyelid twitching, but it is now happening every day, all day long. At least once every hour and more. It is really bothering me and it's becoming more apparent. No one could notice when it happened before, but now it's almost causing my eyelid to close.

Does anyone know if this a pinched nerve or something else? Should I get it checked out? I don't have any insurance. This is starting to worry me.

The same thing happened to me, but I just got blood tests done for Celiac and they showed that I do NOT have it. Anyways, I agree with the B Deficiency as well as magnesium. I take a B Complex and Cal/Mag/Zinc vitamin every day now....my twitching has, for the most part, gone away.....

But I wonder why, if I don't have Celiac, I am deficient?!?

dksart Apprentice
dksart
Posted
  • Author
It really might just be a Magnesium deficiency. The same thing used to happen to me. You see, when I get glutened, I lose some of my electrolytes, creating a deficiency. It doesn't go away until the Magnesium is replaced. You could try some Magnesium rich foods or get a Megnesium supplement to see if it helps. Good luck.

-Brian

I am not taking any magnesium suppliments, but I do try to eat foods containing it. I suppose from being glutened so many times, I'm not absorbing nutrients as well as I should.

Any suggestions?

It's also a symptom of b12 deficiency. Have your doctor run a nutrient deficiency panel.

I just started taking b12 because of my energy level etc.

Plus, I don't have a doctor.

fedora Enthusiast
fedora
Posted

This happens to me too. BUT it hasn't happened once since not eating gluten!!!!

There were episodes it was so bad my eye barely would stay open too.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


JNBunnie1 Community Regular
JNBunnie1
Posted
This happens to me too. BUT it hasn't happened once since not eating gluten!!!!

There were episodes it was so bad my eye barely would stay open too.

Wow!!! I've only noticed it in the past six months, on and off, my bloody eye wouldn't STOP TWITCHING! It's not visible to tohers, but it's irritating as all get-out. I'll have to try supplementing with magnesium next time it happens, I already take extra B.

Glutenfreefamily Enthusiast
Glutenfreefamily
Posted

Do you have rosacea on your face? I found out through twitching that I had it in my eye and it was happening due to irritation. Sjogren's (Im not sure on the spelling was another option) was a possible option too but it ended up being ocular rosacea. It might not hurt to get it checked out and it never hurts to take extra b vitamins.

Sweetfudge Community Regular
Sweetfudge
Posted

i've experienced this off and on over the past couple years. it was really bad right before i went gluten-free, but i was also really stressed out. now it's been happening more frequently again, but i don't think i'm that stressed. i might have to try some B supplements. taking everything else. its so annoying though, i feel ya on that one!!

dksart Apprentice
dksart
Posted
  • Author
Do you have rosacea on your face? I found out through twitching that I had it in my eye and it was happening due to irritation. Sjogren's (Im not sure on the spelling was another option) was a possible option too but it ended up being ocular rosacea. It might not hurt to get it checked out and it never hurts to take extra b vitamins.

Thanks, I do have rosacea. I've had it for many years, but it's not nearly as bad now as it used to be. I will have to do some research on ocular rosacea, though. I've never heard of that.

Glutenfreefamily Enthusiast
Glutenfreefamily
Posted

Mine looks better on my face than it has in years so I was shocked to find out it went into my eyes.

I would see an opthalmologist to see if it is it and there are drops for about a week to put in. If left untreated it can lead to problems. If you do find out you have it, eyelid scrubs work wonders. I take burts bees baby soap and wash my eyelids with eyes closed twice a day and rinse thoroughly. It helps tremendously to keep breakouts down. I havent had a problem with it for quite a while due to my scrubs. Im sorry you dont have insurance, maybe they could set up a payment plan with you to pay off the visit?

Good luck in figuring out what it is :)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty commented on Scott Adams's article in Multiple Sclerosis and Celiac Disease
      3

      Gluten-Free Diet Linked to Reduced Inflammation and Improved Outcomes in Multiple Sclerosis (+Video)

      I worried at one point on my journey whether I had MS, having many of the symptoms myself. However, my symptoms improved dramatically with high dose thiamine hydrochloride, Benfotiamine, and Thiamine TTFD. Thiamine deficiency symptoms overlap with MS symptoms, including changes on brain MRIs. Thiamine deficiency affected my eyes (light sensitivity),...
    2. trents
      - trents replied to Matthias's topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products...
    3. Matthias
      - Matthias posted a topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing...
    4. trents
      - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen...
    5. Scott Adams
      - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that y...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,328
    • Most Online (within 30 mins)
      7,748
    VerafromNJ
    Newest Member
    VerafromNJ
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      Unexpected gluten exposure risk from cultivated mushrooms

      By trents · Posted

      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
    • Matthias
      Unexpected gluten exposure risk from cultivated mushrooms

      By Matthias · Posted

      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing from a visible layer of shredded cereals that had not been removed. After a quick web research I learned that these mushrooms are commonly cultivated on a cereal-based medium like wheat bran. I hope that info his helpful to someone.
    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      IBS-D vs Celiac

      By Scott Adams · Posted

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Question

      By Scott Adams · Posted

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.