Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What About Millet?


u396

Recommended Posts

u396 Newbie

My husband is a celiac newly diagnosed by endoscopy etc. We are in FL for 3 months and can't seem to find any bread products that don't contain millet. We've been to 2 health food stores and they say these are okay. In MA I was able to get french rolls, bread, doughnuts etc. made from rice flour. With those products he has been symptom free. What about mail order ofr bread.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MySuicidalTurtle Enthusiast

About Millet. . .as far as I know it's "see how you do with it." Some people don't react well to it and others are fine with eating it. I personally don't eat it.

A great company to mail-order from is Kinnikinnick. They have the best tasting products. I used to mail-order their products until a local store here startd carrying them. If you like them try and get your stores to order them.

Open Original Shared Link

They are Canadian but ship to the states (I am in Georgia). There are 3 Celiacs in my family and we all reccomend their products. I eat the english muffins everyday.

lovegrov Collaborator

Millet itself is OK but stay far away from Deland millet bread (which I think is made and sold in Florida). It's been tested more than once and has had tons of wheat.

richard

hopeful Newbie

I ask myself the same question at every meal, "what about _____?" I don't eat millet because it's not allowed in the specific carbohydrate diet I follow. This diet is more restrictive than gluten-free. The reason it's more restrictive is because wheat gluten may not be the sole root cause of celiac disease. The sinister thing about celiac disease is that the foods which are the underlying culprits may not generate any symptoms for a long time. ie., you can be symptom-free for a long while, but your diet is creating inbalances of bacteria, toxins, etc. that lead to allergic reactions with other foods. For instance, I ate lots of wheat bread for years and had no problems with it. But all the while, I was becoming progressively more allergic to more and more kinds of other foods. When I went on the SCD, many of these allergies disappeared. For instance, after several weeks, I was able to eat lean, high quality steak. Before going on the SCD, one bite and I'd be agonizing in the bathroom within minutes. Amazing! And by the way, everybody's allergies are different. The question is, what foods are causing the allergies? Again, you can be tolerant of something that makes you allergic to something else. That's what's so sinister about celiac disease.

The specific carbohydrate diet is well-balanced and healthy. So why not do it instead of just gluten-free? It seems to me that you're more likely to improve with the SCD, although it's harder to follow. For more information, read "Breaking the Vicious Cyle: Intestinal Health Through Diet" by Elaine Gottschall. In it, she has a section called "The Celiac Story" where she chronicals the gluten-free diet. Essentially, she argues that the gluten-free diet is the typical doctor's hammer, for which everything looks like a nail. Relapses are "all-too-common," she says.

I'd love to eat millet. But because it's not allowed in the SCD, I believe, in the long run, it would push me further down instead of building me up. The reason it's not allowed is very logical. Not enough space to explain here. Read the book.

IrishGirl71 Rookie

I've been eating the millet bread made by "Food For Life" and so far so good.

I had tried some of their rice flour breads, but I found they didn't toast well, and the millet really does (for me).

Good luck!

DrLeonard Newbie

Hi

None of the store-sold bread in Florida is gluten-free---in fact, the Whole Foods where I shop now has a huge sign saying this about millet bread sold in Florida. There might be small bakeries around that make gluten-free bread but in four years, I've not found anything.

I'm one of those celiac's who can't eat millet; three tries, three trips to the ER. My physician says that I just happen to be allergic to it. My advice is that if you're going to try it, start very very small. It takes about six hours before eating millet until I get sick and then I'm violently ill (to the point of hallucinating) for a day or more. So small doses might be the way to go.

tarnalberry Community Regular

Millet itself is gluten-free, but there are a NUMBER of breads made with millet (many which say wheat free) which are not GLUTEN free. Be careful reading the labels.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Maggie1956 Rookie
I've been eating the millet bread made by "Food For Life" and so far so good.

I had tried some of their rice flour breads, but I found they didn't toast well, and the millet really does (for me).

Good luck!

:D I saw a Food For Life store here in Queensland, Australia last week as we were driving by, after buying groceries (always the way isn't it?)

I'm so excited to find a good gluten-free store that may be ok for us lot...celiacs. ;)

I'll have to go and have a look in there next time. It's not always easy to find a large variety gluten-free foods here.

Thanks for the tip.

jboom Newbie

I tried the gluten free millet bread. Thought I found the new answer to sandwitches. The first time I ate it no problems, the second time I tried it I got violently ill (within and hour). It affected me differently than gluten though. It caused me to vomit violently, something I haven't done in years.

Tabitha Newbie
A great company to mail-order from is Kinnikinnick. They have the best tasting products. I used to mail-order their products until a local store here startd carrying them.

I'd love to try them. What is the store?

Thanks!

Racheleona Apprentice

I work at a health food store, and I read the ingredients on the food for life millet bread, and it has Rye flour as one of the ingredients...

terri Contributor

I've had millet in it's natural form, not in bread. I made stuffed peppers with it and tonight used it in place of barley when I made split pea soup. I've never tried the bread, but the millet itself used as I have used it, is great and my ultra sensitive self has had nothing but a quiet tummy. :D

mela14 Enthusiast

I haven't had millet in a while and don't remember if I was ok with it or not. So many things were going on at the same time. I was also using quinoa but remember that something started to make me sick so I stopped both. a few months I started using quinoa again but started to feel sick afterwards so that's I took that off the list.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,860
    • Most Online (within 30 mins)
      7,748

    Rena Celiac
    Newest Member
    Rena Celiac
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rogol72
      Some interesting articles regarding the use of Zinc Carnosine to help heal gastric ulcers, gastritis and intestinal permeability. I would consult a medical professional about it's use. https://www.nature.com/articles/ncpgasthep0778 https://www.rupahealth.com/post/clinical-applications-of-zinc-carnosine---evidence-review https://pmc.ncbi.nlm.nih.gov/articles/PMC7146259/ https://www.fallbrookmedicalcenter.com/zinc-l-carnosine-benefits-dosage-and-safety/
    • Jillian83
      He is. Which makes everything even more difficult. I’m not a believer in “staying for the kids” but I have nowhere to go and it’s not just me, it’s me plus my babies. We live in a beautiful place, lots of land in the country and me and the kids love the place we’ve called home for their entire lives. But Im seeing that he’ll never change, that my kids deserve a happy healthy Momma, and that staying in this as is will be the early death of me. Then I look at the scars covering my entire body…this disease and the chronic stress I’ve been enduring for years that tell me I’m no longer beautiful and no one will ever look at me with interest again. I try self care, try to give myself grace so I can just start loving myself enough to gain strength but the slightest sparkle in my eye and skip in my step attracts his wrath and it all comes crashing ten fold. Life is just absolutely railing me from every single direction leaving me wanting to wave that white flag bc I don’t feel like there’s much hope no matter what happens. 
    • trents
    • Jillian83
      Hi, I was recently diagnosed with Celiac and dermatitis herpetiformis after years of suffering without answers. I lost my mind. I lost my job. I lost so much time. I lost Me. Conventional doctors are opulent come near me and the one who did sat across the room, misdiagnosed me, pumped me full of steroids which collapsed my entire hip for 6 months. So without answers I began my holistic journey. Fast forward a couple of years and still struggling with a mysterious whole body itchy, crawling “skin hell”, perfect teeth now deteriorating, thick hair now thinning rapidly and no more than a day or 2 at most relief….An acquaintance opened up a functional medicine practice. Cash only, I found a way. Within a month tests clearly showing my off the charts gluten allergy/sensitivity as well as the depletion of vital nutrients due to leaky gut and intestinal damage. dermatitis herpetiformis was more than likely what I was experiencing with my skin. I was happy. I thought this is easy, eat healthy Whole Foods, follow the diet restrictions and I finally get to heal and feel confident and like myself again very soon! 😔 Supplements are very pricey but I got them and began my healing. Which leads to the other major issue: not working, stay at home Mom of young kids, entirely financially dependent on my man of 7 plus years. He’s never been supportive of anything I’ve ever done or been thru. He controls everything. I’m not given much money ever at a time and when he does leave money it’s only enough to possibly get gas. His excuse is that I’ll spend it on other things. So my “allowance” is inconsistent and has conditions. He withholds money from me as punishment for anything he wants. Since being diagnosed, he’s gained a new control tactic to use as punishment. He now is in control of when I get to eat. He asked for proof of my diagnosis and diet bc he said I made it up just to be able to eat expensive organic foods. Then after I sent him my file from my doctor he then said she wasn’t a real doctor. 😡. I go days upon days starving, sometimes breaking down and eating things I shouldn’t bc I’m so sick then I pay horribly while he gets annoyed and angry bc I’m not keeping up with all the duties I’m supposed to be doing. His abuse turns full on when I’m down and it’s in these desperate times when I need his support and care the most that I’m punished with silence, being starved, ignored, belittled. He will create more of a mess just bc I’m unable to get up and clean so that when I am better, I’m so overwhelmed with chores to catch up that the stress causes me to go right back into a flare from hell and the cycle repeats. I’m punished for being sick. I’m belittled for starving and asking for healthy clean water. I’m purposely left out of his life. He won’t even tell me he’s going to the grocery or to get dinner bc he doesn’t want me to ask him for anything. I have no one. I have nothing. Im not better. My supplements ran out and I desperately need Vitamin D3 and a methylated B complex at the very minimal just to function….he stares at me blankly…no, a slight smirk, no words. He’s happiest when im miserable and I am miserable.  this is so long and im condensing as much as I can but this situation is so complicated and disgusting. And it’s currently my life. The “IT” girl, the healthy, beautiful, perfect skin, perfect teeth, thick and curly locks for days, creative and talented IT girl….now I won’t even leave this house bc Im ashamed of what this has dont to my body, my skin. Im disgusted. The stress is keeping me from healing and I think he knows that and that’s why he continues to keep me in that state. He doesn’t want me confident or successful. He doesn’t want me healed and healthy bc then how would he put the blame of all his problems on me? This journey has been hell and I’ve been in Hell before. I’ve been killed by an ex, I’ve been raped, robbed, held hostage, abused beyond nightmares but the cruelty I’ve experienced from him bc of this disease is the coldest I’ve ever experienced. I’ve wanted to give up. Starving and in tears, desperate…I found a local food pantry in our small town so I reached out just saying I had Celiac and was on hard times. This woman is blessing me daily with prepared gluten free meals, donations, educational info, people who know this disease and how they manage life and the blessings just keep coming. But it’s overwhelming and I feel like I don’t deserve it at all. He just glared and I know he’s going to sabotage it somehow. I don’t even know what to do anymore. I’m so broken and just want peace and healing. 
    • cristiana
      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.