Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New Diagnosis And Gluten - Need Help Finding Gluten


CeliacMom2008

Recommended Posts

CeliacMom2008 Enthusiast

My son was diagnosed in Dec. Since then we've had 3-4 suspected glutenings. Can anyone tell me if they've had any trouble with any of the following? I thought they were all OK, but now I'm wondering...

Aunt Jemima syrup - I just found out Pinnacle won't commit to gluten free, but they said there is no gluten in the ingredients, but there may be CC.

Kraft Shredded Mozarella, grated Parmesan & Romano cheese blend - He eats cheese regularly, but these are the occassional varieties. I made pizza tonight with all of them.

Ragu pizza sauce

Doritos Cool Ranch

Cheetos

Skittles

Thanks for the help! I sure would love a "gluten meter". Something I could stick to his forehead and have it come up with a "Yep, been glutened. Throw out the ________." B)

As a side note, my DH went gluten-free 1.5 weeks ago and we all had homemade pizza tonight and they both ended up in the bathroom. But on previous occassions I've suspected my son takes a few days to ramp into the D, preceded by fatigue and gas for a day or two. But we're so new to this that I could be all wet. And DH's blood tests came back neg. (twice - didn't trust just one :huh: ), but he has shown classic symptoms for about 10 years (IBS diagnosis, extreme fatique, moodiness, easily injures joints and long time to heal those injuries). He decided to try gluten-free just to see what would happen despite blood test.

Help!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



JennyC Enthusiast

Cross contamination with Frito Lay products is quite common. We buy Cheetos from Walmart or Trader Joe's. Walmart's gluten-free products say gluten free on the label. I would suspect Frito-Lay as the culprit. They have a bad reputation around here. As far as syrup goes, it seems like the information changed too frequently, so we switched to pure maple syrup. We had never used it before, but we are used to it now. (It can take some getting used to, especially for kids.)

Ridgewalker Contributor

I agree with everything Jenny said. We used to do Frito-Lay products, but I finally had to nix them. There is simply too much CC at their factories. I almost never buy their stuff anymore, because it's just a big fat risk. And the pure maple syrup is guaranteed safe- it's virtually impossible to get straight answers on other types.

Having said that...

Are you using a pizza stone that has been used for gluteny pizza in the past? Or an old brush to brush on olive oil? Those are two possible culprits in homemade pizza contamination.

We've never had problems with the Kraft cheese blend, Ragu pizza sauce, or Skittles. Well, ACTUALLY, Skittles give me diarrhea and always have. But they are gluten-free and don't bother my kids. I don't know why they do that to me.

CeliacMom2008 Enthusiast

Thanks! We'll omit Frito Lay. :( He's not much of a chip eater anyway. Has always preferred Quaker rice cakes...which look to be a possible source of cross contamination too, so I've already stopped buying those. I guess we'll use gluten-free pretzels for those rare occassions. It's healthier anyway, right. <_< And we already got rid of the Aunt Jemima and switched to Log Cabin Country Kitchen. We also bought the real stuff and we'll try to cross over. I'll do anything at this point to eliminate these accidental glutenings. He has been amazing on the diet and so willing to try anything and accept whatever new curveball we throw at him. He deserves to have that result in NO MORE D!!

How about Smart Choice White Cheddar Popcorn? He loves that, but I think it's Frito Lay or some other mainstream company as wel...

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Guinness, can you drink it?

    2. - MogwaiStripe replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Gluten Issues and Vitamin D

    3. - Butch68 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Guinness, can you drink it?

    4. - trents replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Taking Probiotics but Still Getting Sick After Gluten – Advice?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,216
    • Most Online (within 30 mins)
      7,748

    Athenablue
    Newest Member
    Athenablue
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.