Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New Diagnosis And Gluten - Need Help Finding Gluten


CeliacMom2008

Recommended Posts

CeliacMom2008 Enthusiast

My son was diagnosed in Dec. Since then we've had 3-4 suspected glutenings. Can anyone tell me if they've had any trouble with any of the following? I thought they were all OK, but now I'm wondering...

Aunt Jemima syrup - I just found out Pinnacle won't commit to gluten free, but they said there is no gluten in the ingredients, but there may be CC.

Kraft Shredded Mozarella, grated Parmesan & Romano cheese blend - He eats cheese regularly, but these are the occassional varieties. I made pizza tonight with all of them.

Ragu pizza sauce

Doritos Cool Ranch

Cheetos

Skittles

Thanks for the help! I sure would love a "gluten meter". Something I could stick to his forehead and have it come up with a "Yep, been glutened. Throw out the ________." B)

As a side note, my DH went gluten-free 1.5 weeks ago and we all had homemade pizza tonight and they both ended up in the bathroom. But on previous occassions I've suspected my son takes a few days to ramp into the D, preceded by fatigue and gas for a day or two. But we're so new to this that I could be all wet. And DH's blood tests came back neg. (twice - didn't trust just one :huh: ), but he has shown classic symptoms for about 10 years (IBS diagnosis, extreme fatique, moodiness, easily injures joints and long time to heal those injuries). He decided to try gluten-free just to see what would happen despite blood test.

Help!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



JennyC Enthusiast

Cross contamination with Frito Lay products is quite common. We buy Cheetos from Walmart or Trader Joe's. Walmart's gluten-free products say gluten free on the label. I would suspect Frito-Lay as the culprit. They have a bad reputation around here. As far as syrup goes, it seems like the information changed too frequently, so we switched to pure maple syrup. We had never used it before, but we are used to it now. (It can take some getting used to, especially for kids.)

Ridgewalker Contributor

I agree with everything Jenny said. We used to do Frito-Lay products, but I finally had to nix them. There is simply too much CC at their factories. I almost never buy their stuff anymore, because it's just a big fat risk. And the pure maple syrup is guaranteed safe- it's virtually impossible to get straight answers on other types.

Having said that...

Are you using a pizza stone that has been used for gluteny pizza in the past? Or an old brush to brush on olive oil? Those are two possible culprits in homemade pizza contamination.

We've never had problems with the Kraft cheese blend, Ragu pizza sauce, or Skittles. Well, ACTUALLY, Skittles give me diarrhea and always have. But they are gluten-free and don't bother my kids. I don't know why they do that to me.

CeliacMom2008 Enthusiast

Thanks! We'll omit Frito Lay. :( He's not much of a chip eater anyway. Has always preferred Quaker rice cakes...which look to be a possible source of cross contamination too, so I've already stopped buying those. I guess we'll use gluten-free pretzels for those rare occassions. It's healthier anyway, right. <_< And we already got rid of the Aunt Jemima and switched to Log Cabin Country Kitchen. We also bought the real stuff and we'll try to cross over. I'll do anything at this point to eliminate these accidental glutenings. He has been amazing on the diet and so willing to try anything and accept whatever new curveball we throw at him. He deserves to have that result in NO MORE D!!

How about Smart Choice White Cheddar Popcorn? He loves that, but I think it's Frito Lay or some other mainstream company as wel...

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - marlene333 replied to Grace Good's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Bee balm lipbalm not gluten free

    2. - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      4

      Related issues

    3. - Scott Adams replied to catsrlife's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Patiently Waiting to See Results

    4. - catsrlife replied to catsrlife's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Patiently Waiting to See Results

    5. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      Related issues


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,263
    • Most Online (within 30 mins)
      7,748

    Elyn Joy
    Newest Member
    Elyn Joy
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • marlene333
      To play it safe, use Vasoline Lip Therapy. No questions as to it containing gluten.
    • Mari
      jmartes, Thank you for sharing  more information with us. Most of us Celiacs whose problems do not clear up with in a few years have to decide what to do next. We can keep seeing DR.s and hope that we will get some  medication or advice that will improve our health. Or we can go looking for other ways to improve our health. Usually Celiac Disease is not a killer disease, it is a disabling disease as  you have found out. You have time to find some ways to help you recover. Stay on your gluten-free diet and be more careful in avoiding cross contamination . KnittyKitty  and others here can give you advice about avoiding some foods that can give you the gluten auto immune reaction and advice about vitamins and supplement that help celiacs. You may need to take higher doses of Vit. B12  and D3.  About 20 years before a Dr. suggested I might have Celiac disease I had health problems that all other Dr said they could not identify or treat. I was very opposed to alternative providers and treatments. So many people were getting help from a local healer I decided to try that out. It was a little helpful but then, because I had a good education in medical laboraties she gave me a book  to read and what did I think. With great skeptism I started reading and before I was half way through it I began using the methods outlined in the book. Using those herbs and supplements I went from hardly able to work to being able to work almost fulltime. I still use that program. But because I had undiagnosed celiac disease by 10 years later some  of my problems returned and I started to loose weight.    So how does a person find a program that will benefit them? Among the programs you can find online there are many that are snake oil scams and some that will be beneficial. by asking around, as I did. Is there an ND in your area? Do they reccomend that person? If you would like to read about the program I use go to www.drclark.net   
    • Scott Adams
      It's unfortunate that they won't work with you on this, but in the end sometimes we have to take charge of our own health--which is exactly what happened to me. I did finally get the tests done, but only after years of going down various rabbit holes and suffering. Just quitting gluten may be the best path for you at this point.
    • catsrlife
      My doctor didn't take the time to listen to anything. I don't even think she knows what it means. She is more concerned about my blood pressure that is caused by her presence than anything else and just wants to push pills at me. The so-called dermatologist wouldn't do a skin test. she prescribed all of these silly antihistamine skin meds. This lady didn't even know what she was talking about and said "they never turn out as celiac, they usually just say it's dermatitis so here's your meds," just like my regular quack. I'm trying to change insurance companies at the moment and that has been a battle because of red tape, wrong turns, and workers having wrong phone numbers. What a joke! The allergy blood days say I have a wheat allergy of .31. Hopefully it's just that and until I find a decent doctor and dermatologist, I'll just lay off the wheat anyway, since it gives me asthma, high blood sugar, and joint pain. So frustrated at this point. The rash on my back of arms/elbows is mostly gone. Both calves and chest have started up. smh. It comes and goes. It fades faster now, though, although my forearms still produce one or two bumps on each side. The itching has calmed down a lot except for the bump area. I have dry skin to begin with so anything affecting it just makes it crazy. i'm never going to eat wheat again. I don't care if they need it to produce results or if it is just an intolerance, allergy, or celiac. It gives me hell.
    • Jmartes71
      I had the test done by one of the specialist through second pcp I had only a few months because he was saying I wasn't.Even though Im positive HLA-DQ2 .My celiac is down played.I am with new pcp, seeing another girl doctor who wants to do another breathe test next month though Im positive sibo this year.I have high blood pressure not sure if its pain from sciatica or sibo, ibs or hidden gluten. Im in disability limbo and I should have never been a bus driver because im still suffering and trying to heal with zero income except for my husband. This isnt fare that my health is dictating my living and having ti beg for being revalidation of my disregarded celiac disease. Its an emotional roller coaster I don't want to be on and the medical made it worse.New pcp new gi, exhausted, tired and really fed up. GI doctor NOT girl..
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.